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In a bad flare

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Ulcerative Colitis
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Posted 4/26/2013 1:52 PM (GMT 0)
I am not feeling well at all!! Been having urgent bm's every other day to the point where I cannot go to work!!! I am starting to see a lot of mucous and blood. I know its my diet (been eating out A LOT) and a lot of stress due to my job and hubby and I recently bought a new house!!! I was feeling pretty good until last week. Bad urgencies and constantly running to the bathroom for a good portion of the day. I am trying to watch what I eat by eliminating coffee, restaurant foods, etc. Does anyone have any advice as to what I should eat to help ease the flare up? Breakfast ideas would be great too since I am a teacher and need at least two hours before I leave at 7am for work. So something simple to eat in the am would work. I am also going to try Uceris later today. I am on Humira as well. I take Lialda but only half of the recommended dosage since the 4 pills make me throw up. :( Thanks for listening. I hate being away from my 6th graders. I also had to fill out paperwork for the Sick Bank Days. The district gave me 8 days from the bank to use for this disease. Its really been a lifesaver!!!! Been having such a rough week. Sorry for the long post.
Posted 4/26/2013 2:03 PM (GMT 0)
Are you able to split the dosage up like two in the morning two in the evening?

I suggest you see your GI asap. Uceris has been great for me. Maybe you want to look into the spinach and sunflower seed diet too.

I'm sorry you're not feeling well.
Posted 4/26/2013 2:05 PM (GMT 0)
stop blaming yourself... you are flaring.. out of your control.

I'm also a teacher - my poor little preschoolers are getting pretty restless without me in the classroom for 2 weeks now.

Make sure to follow up and get treatment NOW... I had some issues seeing my GI and I kept pushing through and working anyway... and well I ended up in hospital... now day 11 - hard to believe.

Teaching is a tough job when we feel well. take care of yourself so you don't end up even worse.

Allow yourself a set time to be "woe's me..." (an hour or so, have a good cry) and then pick yourself up, think positive and be active in your recovery and medical supervision.

Good luck
Posted 4/26/2013 2:15 PM (GMT 0)
Thank you canadagal...your post made me feel better...at least emotionally lol..I am sorry to hear that you're in the hospital. I hope you feel better asap! Everyone around me (husband, parents, co-workers, friends, etc.) think that my disease could be controlled on eating right and stress control. Hard to do at times. Sometimes it works, other times it does not. I agree with you canadagal that I need to put more time for me. I always put my job and everyone else around me first. Time for a change. Hubby and I keep talking about trying for a family this summer. Cannot even imagine doing so with all of the flares I am going through.

Andrina- I tried the two in the morning and two at night and still had the same effect. :( Nothing else works. Apriso made me feel loopy. I don't have any other choice than the Humira, taking two Lialda and now starting Uceris today.
Posted 4/26/2013 2:41 PM (GMT 0)
when the chemical signals in your brain are telling your body to fight itself... it goes into crisis. and you need help. - never your fault or your actions.

IMO there is a lot we can do choice wise, food, stress, lifestyle etc to help our IBD but ultimately it is a medical issue that needs medical care. Sometimes more so than others.

I had been feeling so crappy for a few months but never put it all together with the flare - kind of though on top of flaring instead of because i'm flaring...

When i admitted myself to hospital all my blood levels were approaching danger zones, veryhigh inflamation markers, dehydrated, tachycardic, basically my body and organs were on the verge of shutting down.

I though oh I'm flaring, and I have a cold... and a sore throat, and im tired, and a sore back. and... and.. and...

It was all connected to a poorly treated acute severe flare! Now I know better... and docs should have recognised how bad I was during past 2 months.... but didn't... so just make sure you speak up... loudly!!!

And get better soon. the rest of the school year is always crunch time. :)
Posted 4/26/2013 2:45 PM (GMT 0)
I am sorry to hear of your troubles. I am a substitute teacher and know how difficlt it is the have UC. I also have not been able to work due to my flare. It's not the type of job you can sneak out to use the restroom when needed and/or quickly. Maybe try a low residue diet and try more frequent smaller meals/snacks. I also notice I do better when I drink my beverages at room temp. As far as breakfast, are you on any special diet? Ex: gluten or dairy free? If not maybe eggs and toast. I have even had homade soup for breakfast before because it was more gentle on my system. Good luck I hope the medicine starts working soon for you.
Posted 4/26/2013 2:52 PM (GMT 0)
Thank you canadagal and UCandMe...I appreciate your stories and tips. Are you both able to eat fruits and vegetables??
Posted 4/26/2013 3:23 PM (GMT 0)
I'm sorry you are in a flare. As far as breakfast goes, try some scrambled eggs and maybe some applesauce. When I was flaring, I would give myself an extra hour in the mornings to be sure I was ok before heading out to work.
Posted 4/26/2013 3:29 PM (GMT 0)
I would not be surprised if your GI upped the Humira to once a week to get you over the flare. Call him immediately and ask along with starting the Uceris.
Posted 4/26/2013 4:01 PM (GMT 0)
Just placed a call with my GI doctor and waiting to hear back.
Posted 4/26/2013 4:48 PM (GMT 0)
I am sorry sunflowers. You were doing so well for quite some time. Hopefully the uceris gets you back on track quickly. I think we all go through ups and downs and it helps me to remember that not all of them get worse, sometimes they are mild and get better quickly. I try to stay calm and hope there is some improvement each day.
Posted 4/26/2013 5:00 PM (GMT 0)
Right now I am still watching the fruits and vegetables I eat. I consume mostly potatoes, sweet potatoes, carrots, and zuchinni. I am starting to try and expand on those. As far as fruits, I eat bananas and canned pears. I am working on expanding those too. I think anything cooked well such as soups and stews are easier to digest. I am going to try some pureed soup recipies this week.
Posted 4/26/2013 5:08 PM (GMT 0)

iluvsunflowers15 said...
Everyone around me (husband, parents, co-workers, friends, etc.) think that my disease could be controlled on eating right and stress control.

You need to tell them to educate themselves on this disease because even if people often mean well it is a burden to be flaring and getting "advice/blame" by people who do not know what they are talking about.
Posted 4/26/2013 5:12 PM (GMT 0)
It sounds like the humira may not be working as well, I would look at that before food stress connection. Were there signs before all the transitions of a flare starting up?
Posted 4/26/2013 6:33 PM (GMT 0)
tell me again why you're not on any rectal meds?

Please give them a consideration.

q
Posted 4/26/2013 10:24 PM (GMT 0)
You should look into 5asa intolerance. But if you aren't intolerant, you should be having rectal meds. They can help you.
Having a bland diet may help also. If you have issues with wheat/gluten, you can eliminate those. But that's up to you. If you think you don't have an issue with them, don't eliminate it.
Be careful around dairy and anything fried.

How long have you been on your medication?
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