I don't even know where to start....

I haven't been online much because I'm in the process of moving. We've been in our home for 13 years but after my husband had his hip replacement surgery, his income was reduced by half and to make a long story short...we lost the house. So now we are moving to a new home that is rent with option to buy. But my stress is at an all time high. We have 13 YEARS of accumulated stuff! So lots of packing and throwing away.

I'm not sure if any of you remember, but my Remi has been wearing off at the 6 week mark instead of 8. So I am having a mobile blood draw come to my house on Monday from Prometheus to check to see either A)The Remi is wearing off too soon - if that's the case I will either go to every 6 weeks or they will increase my dosage from 5mg to 10mp per body weight or B)I'm building antibodies against Remi - which I hope is not the case because then I will have to stop it.

I'm now at the 6 week mark post last Remi infusion and my darn gut is giving me grief. I have already been to the bathroom 9 times today just to expel mucous and gas and I honestly don't know if the red/yellow I see mixed in with the mucous is blood (I haven't seen blood in over a year) or from the antibiotic (Macrobid - this anti can cause stool and urine discoloration) that I am on for a UTI (which I was diagnosed with last Sunday).

I'm trying to be strong with everything going on but I'm ready to break.

I hope you're not building antibodies. If you are, at least Humira may be an option... I wouldn't be surprised if the antibiotic is causing some of the issues. I hope you're feeling better soon and that this passes. I've had a few rough days lately but things haven't been bad enough to complain about and I am thankful for that.

it's all about getting rid of shiitt, one way or the other -

sorry for your troubles - sucks !

Ugh, sorry to hear you're dealing with all of that.  Hang in there.

Chinamom

Well you sure have my sympathies; moving has got to be one of the most stressful things out there especially when it is due to the circumstances you are in. My husband's job is ending next spring so I wonder if we will need to move to a cheaper area and/or smaller house and just the thought stresses me out.

Hang in there! You've been through so much already, I believe you are very resilient so you will cope somehow.

So sorry that all this "stuff" is hitting you now. Are you taking any probiotic to counter the Macrobid kill-off of good gut bacteria? That could be causing your frequent bms. Moving definitely can be one of life's most stressful events. Feel free to vent to us as needed! (But I hope everything improves soon.) / Old Hat (32 yrs with left-sided UC; presently in remission taking brandname Colazal)

Sherry, I'm sorry you're having to deal with so much.

Moving is a huge stressor, and then having to deal with UC too, it makes things so much the harder.

When will you know about the Prometheus results?

I hope it's just the antibiotic throwing things off, and that you haven't built up any antibodies to the remicade.

A big hug to you!

Hey Sherry -- we just had the same thing happen -- my hubby has been out of work for 1 1/2 years so we lost his house and moved back into mine. We moved last weekend, but the downsize out of his house (where he was for 23 years) was mind blowing and stressful.

The "stuff" we had to choose to get rid of and keep was very hard for him. When it came down to the keep or save...most of it was just stuff. We kept the things that are important to us, the furniture we really loved, and the things that had good memories tied to it. The other stuff was just taking up room, and fortunately I have some younger friends at work that were starting out in a new house, so they were able to take some of the things we didn't need -- so we recycled! ;-)

I can tell you that it is a freeing experience to be out from under all the junk accumulated, but the banks are playing havoc with my husband. Not only did we pay his mortgage for the 1 1/2 years (hoping he'd get a job) but we also had all the paperwork in hand for a short sale, had a cash buyer in 24 hours, and that was back in January. Freddie Mac told our bank last month that he hadn't been in default long enough yet, so they couldn't accept the cash offer deal. Seriously? SERIOUSLY???? So, yeah, I get it. Life is not easy right now for many of us.

I too am having a few blips right now, but who wouldn't be? Take care Sherry, and I'm thinking about you -- sending Dave's magic wand to you, lol. Hang in there -- I'm so glad to have this forum! 

Sherry, Im sorry its so much right now. I hope after you get out of the eye of the storm there will be much more dancing in the rain (and sun).

That sucks a big time. But hang in there. Hope everything will be settled at earliest and in best possible way. Good Luck (and don't think much about what has happened, you will lose more than gaining anything out of it.)


When DS got a diagnosis of Autism, this exactly went through my mind. I do not want to end up losing house or similar thing. Since then, I changed my lifestyle completely. In last 10 years, I earned decent amount and at the end of 10th year, my savings were only $1000 and some investments. I enjoyed my 30s a lot (before DS was born), traveled the world. Really no complaints about life.

Now, I see it as if, next day will be my last day in this rental unit and I am moving in a RV, so collecting only that much stuff that will fit in a RV. I doubt such situation will come but I am preparing myself, physically/mentally and all other sorts. Good part of the story is, DS is improving by leaps and bounds, so at least that is happy and consoling part.

Sherry, we may have to sell and move soon too and yea it is not something i want to think about right now...

Hopefully it's just the antibiotic and your next infusion will put you back on track in no time...

Hope all goes well xx

Thank you all sooooo much! I can't thank you all personally (I don't have much time at the moment) but know that your support means the world to me! That's why I love this forum so much. It has many great compassionate people from all walks of life and different experiences.

But I will get my Prometheus test results in a week and I'm due for my next infusion on the 15th (can't come soon enough!). I'm to call my GI a day before my infusion to see what it says.

On a good note, I got the keys to the new house today and we are going to start moving things tomorrow. We have about 5 friends coming over to help. This house is a fix'er upper but it's all cosmetic, foundation is good and if everything plays out like it should, we will be homeowners again in 3 years. Btw, my hubby is doing much better with his hip surgery and so far, no more issues. He's actually at the one year mark of post op...but his income was reduced to 60% at the time of the surgery which is why we lost the house. But to be honest, I was ready to let this house go anyway...the neighborhood is getting bad and we were under water with the mortgage and the mortgage company wouldn't work with us. This new house is in a fantastic neighborhood, which I'm pleased about.

But...really....I do want to thank all of you for you're kind words. It may be a little while until you see me back on the boards so keep in mind that I have not abandoned you! :)

Welcome to HW Loosie :) thanks for the comment. But I recommend you create a post separate from this one to get better replies. Click on "Post a New Topic" and make your post there.