Still in Remission from Spinach/Sunflower Seeds 3 Years Later PART II

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Old Mike - no remission in 33 years with as much knowledge as you keep sharing makes me real nervous! My question is, what haven't you tried "seriously" enough that you think has merit?

Couple of things on my mind I'd love to hear your thoughts on

1.) this new spinach + SF seeds and/or RM diet deal (namely I'll add beans to my diet)
2.) PhosphotidylCholine (i.e. soy or sunflower lecithin). Starting Soy lecithin granule enemas..tried one this evening and it stayed in about 2 min...bad start! Love the science of this one and cant wait for the delayed release versions to hit the U.S. (....15 years later). Will keep trying the PC enema (diluted in filtered water for about 10min to breakdown lecithin)
3.) A bunch of supplements I haven't tried but have just started today, or in the next couple of days (I'm not very patient)
- Bosweillia 800mg
- NA Cysteine 600mg
- Sunflower Lecithin 1200mg (oral)...wont get me the PC to colon most likley but figured it cant hurt
- High dose fish oil (~ 2400mg dha+epa x 2/day) --> ~5g/day of the good stuff
- Borage Oil 1000mg (high in Gamma Lineoic = ~240mg acid, AKA GLA)
- Beta Glucan's. 500mg..read somewhere this had a big help
- Quercetin + Bromelain
- Sodium Butyrate (similar to spinach/SF seeds of course)

I imagine pretty much everything above has crossed your path so maybe you can weigh in on rank order, useless and useful ones. Or at the very least which you havent tried so I can start there first :)

Post Edited (Elso) : 4/30/2013 5:34:00 AM (GMT-6)

When you say "try it" does that mean each of these you've tried for a least a few months. Have you ever tried them all together?

I was thinking there may be some benefit to sending in the whole army...rather than just 1 soldier. My UC also appears to be very stubborn since at best I've gone a few months with normal BM's which were only short lived with Remicade or Prenisone (AKA: The Devil).

Anyhow, I'm giving the "whole army" route a try now, I'll let you know what happens.

Some I have tried for months, have gone at it from multiple angles at once,on occasion.
Have tried much more than listed,so many have forgotten when and how.
Pc enema,E enema,never did probiotic enema,limited fecal poo enema, colon strain bacteria yogurt.

Getting some frozen spinach,taste somewhat better than canned.
I also eat fresh,because I like it.

I am also on low/no added sugar,and low maillard reaction product diet.

Made a nice rib roast sunday,I cut off all the outside nice tasty parts,granddog hade a wonderfull meal.

Although get 2 grams from eating rice chexs.

Umm umm good,just had a half cup of canned spinach and beans,actually the beans make the spinach taste better.

Would also advise to also drink the water from the can or frozen,it seems that many of the antioxidants in spinach are water soluble.

I also would guess that on this diet need to drink lots of water,would hate to get a kidney stone from all the oxalic acid.

Todays results so far,pree poo shoot blood and mucus as normal, poo some thin ones,then two one footers,but that happens often. I will also add I would call these easy gliders,no pain no strain better diameter.

Have not seen any green poo yet.

For dinner after talking about the above made creamed spinach,butter,flower,milk, little garlic,onion,bay leaf and a clove, salt and pepper.  Pretty good. Had spinach and beans and salad,with steamed crab legs,fried a crab cake for the wife,her colon does not care.

Old Mike

Post Edited (Old Mike) : 4/30/2013 5:42:05 PM (GMT-6)

I am having perhaps extra blood,and I was only taking 1/2 teaspoon sunbutter. I will stop for a few days and see if I improve. Extra arginine really causes me a problem,makres extra NO.
Old Mike

It's not working for me.

we are not supposed to eat complex carbs or wheat/gluten, so rice and (lol) white bread is out of the question. By the way, white bread is the worst thing, it's full of sugar. If you need to eat bread, eat whole wheat it's better health wise.

(that is, if you follow paleo or scd. Even if dont follow those diets, WHITE bread probably needs to be avoided)

Just wanted to jump in here to say that although we are constantly told that white bread is bad for us, I found it absolutely necessary to heal myself.  I can NOW eat whole grains, but it took a while to get to this point.  Read the advice on that helpforibs.com website.  It makes sense. 

I'm having mucus again although I eat spinach daily. So apparently it's not working for me. Should I continue the spinach or no? Will it still get better? I have been doing spinach for several weeks now.

I kinda stopped the seeds because I couldn't digest them. I once found butter but I didn't buy it. It's so hard to find. I will have to drive to the store where I saw it and pick it up. You think it will get rid of the mucus?

Andrina - Since you've already committed to doing the spinach part, I really think you should try the Sunbutter.  It may be expensive, but it's far less expensive than medicine.  And keep in mind that you won't always have to eat a lot of it.

I agree, the spinach alone without seeds or sunflower seed butter wont work.  I noticed I started having UC symptoms again when my local grocery store stopped carrying the brand of seeds i like and I went  a few weeks without them.  I was still eating spinach, but a few weeks without seeds and the symptoms started to return.  Luckily I didnt wait to long before finding them and after eating the seeds again for a few days I was back to 100% remission. 

Andrina - You do not have to eat them at the same time. And, in case you were wondering, you don't have to eat them alone. I know you said you're getting sick of spinach. Try looking on the internet for recipes that include spinach that you might like. I used to make quesadillas all the time with lots of spinach. I also put chopped, cooked spinach in my marinara to serve over pasta. Or try putting fresh spinach into a smoothie (you won't even taste it).