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Recommended reading (books) for UC

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Posted 5/13/2013 4:24 PM (GMT 0)
Hi all,

Newbie. Going through a flare up with UC right now, wondering if anyone has any reading recommendations for UC, diet or otherwise.

Thanks so much and Godspeed to all.
Posted 5/13/2013 4:29 PM (GMT 0)
Read my posts. They are very informative and have insighful information.

Don't read stuff by Quincy, eh. Basically it revolves around sticking things up your bum. Not my thing, but we shouldn't judge what other want to do on their spare time.

;)

Read, the SCD diet book. Maybe you get lucky.

http://www.breakingtheviciouscycle.info/

Posted 5/13/2013 4:41 PM (GMT 0)
I made the silly mistake of reading 'self healing crohns and colitis' by david klein - was not helpful at all in my case! I also paid him the outrageous sum of $150 for a consultation (I was extremely confused and unwell at the time).

i recently got in touch with 'dr' klein to let him know of my dissatisfaction with his methods and he did refund my $150 which was something at least. Self healing C&C is now in the bin!

Not recommended!
Posted 5/13/2013 5:15 PM (GMT 0)
lol he refunded you? Im surprised.

You should have done the 30 banana per day for a month clense.
Posted 5/13/2013 5:19 PM (GMT 0)
Self healing colitis sucks you know what. Id recommend what somedude said plus "life without bread" and "the paleo solution." Both are at my library so if you hate it at least its free.
Posted 5/13/2013 5:21 PM (GMT 0)
"Id recommend what somedude said plus "life without bread" "

See, Ebby, I am an insightful person. Stick with me and we go places....

...places that have washrooms around ofcourse...
Posted 5/13/2013 5:26 PM (GMT 0)
I would suggest going through the substantial amount of posts on this board regarding Diet modification, etc. You will find what works for one does not the other, however I would be in bad shape if I had not found this board. I doubt you will find a more complete set of UC posts anywhere on the web.

Best...
Posted 5/13/2013 5:29 PM (GMT 0)
yep - lets just say that I made myself very clear to doctor klein and he gave me my money back.

He still refused to take any responsibility for any negative effects of his healing plan but then the guy is a fundamentalist so that is to be expected.

On his site he makes the outrageous claim he has a 100% success rate. According to him everyone who follows his plan will heal and if they don't it's because they have not followed the plan correctly or have not given it enough time. Its ridiculous, under his logic even if it only worked for one out of every thousand people who try it then this would still equate to 100%. Outright lies!
Posted 5/13/2013 5:29 PM (GMT 0)
UC is different in everyone. Sometimes diet, etc works for some but not others. There is all kinds of info out there which will work in some not others, just like meds. Much if the info is conflicting like some say don't eat red meats, others things say eating red meats is the best. It's hard to make sense of it all so reading books is like hit and miss. Might help you, might not. There's no way to tell except to give it a try. By the way, Quincy is very knowledgeable and has helped many people.
Posted 5/13/2013 5:48 PM (GMT 0)
Yeah its that iPoop guy you gotta really look out for as he's clearly out in left field tongue
Posted 5/13/2013 6:03 PM (GMT 0)
"By the way, Quincy is very knowledgeable and has helped many people. "

Troof, I'm just pulling legs.
Posted 5/13/2013 6:05 PM (GMT 0)
Popular Mechanics
Posted 5/13/2013 6:10 PM (GMT 0)
back to reading lists, this is the only novel I'm aware of in which the protagonist has UC:

http://www.amazon.com/American-Fuji-Sara-Backer/dp/B0035G02PY/ref=sr_1_1?s=books&ie=UTF8&qid=1368468385&sr=1-1&keywords=american+fuji

I like it a lot. Bear in mind that the protagonist's UC differs from other people's, like everyone else's. I just say that because the ending is slightly more optimistic than I ever feel about UC. But the novel is a surprisingly well thought out, occasionally funny, interestingly plotted book that also considers themes of loss and grief and that part of mourning (mourning any loss, death, divorce, job loss, health, etc.) that questions why or how as if knowing the details could make much of a difference.

Anyway. I've read it a number of times and am considering putting it on my kindle so that I'll have it around whenever I get the urge :-) The urge to read it, I mean.
Posted 5/13/2013 7:04 PM (GMT 0)
LOL..my belief is you need a good filter while reading everything that's out there, whatever source.
Just don't believe that you'll be cured.

Eventually, you'll get it figured out through experience.

Somedude's way of joking is just arse-backwards...he puts things in his ear (I told you it wouldn't work Dude...hello??).

This forum is definitely a good place to bounce ideas/theories and try diets/methods should you desire.

Now, after all this, please introduce yourself with some info that will let us know about your UC/meds, supplents, etc.

Welcome to the forum!
q
Posted 5/13/2013 8:27 PM (GMT 0)
If you want something funny but truthful, the book "colitiscope" is so good.
Posted 5/13/2013 10:34 PM (GMT 0)

bananagirl said...
If you want something funny but truthful, the book "colitiscope" is so good.

Thanks -- I just bought this for my kindle, hadn't heard of it before. :-) I may get a copy for my boss, too.
Posted 5/13/2013 11:00 PM (GMT 0)
janey, it'll make you cry because it's so relatable! i had my mom read it when i was first diagnosed because the author is very descriptive about UC, especially urgency and accidents. he really makes light of it even though we all know how much it sucks. i remember one of the funniest things he said was how he can't go to taco bell and that you might as well dump the tacos straight into the toilet and just skip the middle man.
Posted 5/13/2013 11:05 PM (GMT 0)
Hey Bananagirl can you please go in my thread (it's at the top there) and tell pathogen about your dad and how he does nothing and his UC is controlled, plz. Help me out here. lol
Posted 5/13/2013 11:12 PM (GMT 0)
bananagirl, The best thing anyone ever said to me about accidents was my friend who said:

"Sorry you {pooped} yourself. I still love {poop}-legged janey. It's just a little dirt on a classic american car."

That made me smile. :-)
Posted 5/14/2013 11:34 AM (GMT 0)
Ebby,

Welcome to the forum.

Glad you've found us.

UC can certainly be an overwhelming disease.

And yes, it sucks big time.

If you are into treating your body and disease more holistically than throwing big pharma at it, then I would suggest what's worked for me:

probiotics, vitamin d3 supplementation ( must be blood tested for first), liquid minerals and liquid vitamins, protein shakes, l-glutamine, slippery elm powder, diet modification as in gluten and dairy free, I eat PALEO and it's great, and finally LDN low dose naltrexone - the total sum of which put me in remission.

If any of this interests you,  there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.

Posted 5/14/2013 12:02 PM (GMT 0)
The Inside Tract
'New' information in a pretty comprehensive format, including diet modification and supplements - even daily amounts!

IBS Free at Last!
The current US version of the FODMAP elimination diet. The Aussies are publishing a US version, due out in August. FODMAPs cause gas and functional symptoms. Eliminating them has helped me feel more comfortable.

The First Year
IBD Self-Management
Well organized, lots of medical information to help you communicate with your doctor.

When Someone You Love Has a Chronic Illness
Just leave this sitting out :)
Posted 5/14/2013 3:49 PM (GMT 0)
My top recommendation is Optimal Digestion: New Strategies for Achieving Digestive Health. This is an excellent book that helps you fully understand how a healthy digestive system is supposed to work, what can go wrong and why, and the latest complementary medicine approaches to fix it.
www.amazon.com/Optimal-Digestion-Strategies-Achieving-Digestive/dp/0380804980/ref=sr_1_1?ie=UTF8&qid=1368546397&sr=8-1&keywords=optimal+digestion

I'd also recommend Listen to Your Gut
www.amazon.com/Listen-Your-Gut-Inflammatory-Diverticulosis/dp/0968542107/ref=sr_1_1?s=books&ie=UTF8&qid=1368546467&sr=1-1&keywords=listen+to+your+gut

And Eating Right for a Bad Gut
www.amazon.com/Eating-Right-Bad-James-Scala/dp/0452279763/ref=sr_1_1?s=books&ie=UTF8&qid=1368546499&sr=1-1&keywords=eating+right
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