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Is this kind of fatigue normal?

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Ulcerative Colitis
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Posted 5/18/2013 5:39 PM (GMT 0)
I've been laying on my couch since 6pm last night. Only time I get up is to use the restroom or maybe fill my drink up. I can barely eat anything, and if I do, it goes right through me. My mouth is dry, losing weight, and just paying attention to something on the tv exhausts me. After a shower, I have to sit down and am out of breath. It's getting worse each day it seems. Is this pretty standard with uc?
Posted 5/18/2013 5:52 PM (GMT 0)
I was feeling like that when I finally went to the Dr. I had lost close to 80 lbs. I didn't eat because every thing went right through me. I was severely anemic and malnourished. Had no energy at all. I started on iron pills and vitamin C tabs once a day plus got a B12 shot every 2 weeks. Now I get the B12 shot every month and take the iron twice a day. My iron count is slowly going up. I feel really good for several days after getting the shot. My GI has me taking asacol and prednisone. We are still Trying to figure out what to use. He reassured me I would get better but as far down as my body is that its going to take some time. Please see a Dr before your body get worse.
Posted 5/18/2013 5:54 PM (GMT 0)
Machina12, I think from your past posts you are flaring right? and on a combo of drugs??? (adding signature would help)

You sound like I did the fw days before I was admitted to Emergency. Perhaps you are dehydrated, anemic, low blood pressure??? all of the above??? might be time to get checked out. Fatigue/exhaustion are definately attached to UC, but not being able to function is not a good thing.. I had not realised how bad I was until I was in hospital. Don't let yourself get that bad. If you are flaring with diarrhea and/or bleeding you may be loosing more blood and fluids than you can replace..

Both a GI and Fam. Doc, missed the signs in my deterioration.. only in ER did they run the proper tests to see how bad I was... Please get checked out.
Posted 5/18/2013 6:00 PM (GMT 0)
Anemia will cause you to be out of breath. Vitamin D can cause you to be tired if it is low. You do not have to see blood in your stool to be anemic. it is hard for some of us with UC to absorb nutrients. Some people's main symptom is fatigue. It is for me but Vitamin D3, Ferrous Sulfate an Sulfasaladine have helped a lot.
Posted 5/18/2013 6:20 PM (GMT 0)
I am on 40mg of pred. Just started flagyl. And take 3 lialda. He wrote me a scrip for Canasa enema but my ass hurts too bad to even think about using that :/
Posted 5/18/2013 6:38 PM (GMT 0)
Have you had your blood checked for low iron, low D, etc? Thyroid checked?

You need to eat.

Canasa is a supporitory....you should use them, it'll only hurt temporarily while inserting it.

q
Posted 5/18/2013 6:53 PM (GMT 0)
Well they check my blood every time I go in. All was normal but that was 2 weeks ago. I eat a little bit. Just ate a large bowl of chicken and rice soup. Has anyone had good luck with Canasa?
Posted 5/18/2013 7:49 PM (GMT 0)
lots of info on here about Canasa...it's a 5ASA (mesalamine) suppository that will help the rectal only inflammation.

Retention enemas are better....but the supps are much better than nothing.

Just use them....many have success, some don't because they're either sensitive to 5ASA meds, or it's not enough to deal with the extent of the inflammation (full rectum/sigmoid) or it's not enough medication dosage.

It really doesn't matter if some have success or not...I encourage you to try them...
q
Posted 5/18/2013 10:29 PM (GMT 0)
I had a lot of luck with canasa. I still use it. How long have you been on pred?
Posted 5/18/2013 11:52 PM (GMT 0)
this is how i feel when i'm at my worst. that's just kind of how it goes with UC. i think it's the dehydration and malnourishment.
Posted 5/19/2013 12:37 AM (GMT 0)
Just finished my 3rd week of pred.. 2 at 60 1 at 40.. Still on 40. No blood. Quincy.. I see you take bentyl. Does that help with stomach ache from pred and does it make you drowsy?
Posted 5/19/2013 12:53 AM (GMT 0)
imo, if you have any level of active uc, you're gonna feel fatigued - period -
Posted 5/19/2013 5:27 AM (GMT 0)
The bentylol can make me "relaxed" if I'm not doing anything.

I've never been on pred, so don't know if it would help with that type of pain. It's better than nothing, however....but the pred pain could mostly be from very high acidity..so another med could also be used to counter the possible effects of erosion.

q
Posted 5/20/2013 5:24 PM (GMT 0)
Regardless how quickly everything goes through you, eating and drinking is key, I watched my brother end up in the hopitol because he was flaring so bad he wouldn't eat or drink, sure that still could end up being the case, but you need to eat and get fluid in you.

I've seen a lot of success with canasa, sure they may hurt a little if your really sore, but its only for a brief moment, then nothing. It usually helps to clear up a lot of the soreness within a few days.

Good luck
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