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Ulcerative Colitis
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Posted 5/25/2013 6:58 PM (GMT 0)
hey,im back...
i was in really bad situation about 7 month ago for 2 week... i used enema 2or 3 times a day and asacol 800 about 4 tab in a day,i was at home that 2 week and ...
but after that i just have 2 or 3 asacol 400 in a day,i dont have dierriah and no blood..im so good now
i think its just because of prayers of my mother and supports of my boyfriend,im honored to have him in my life,im so thankfull of their kindness and also thank God..
Remember to be thankful for everything you have
may all our disese will end tongue
Posted 5/26/2013 8:35 PM (GMT 0)
Ulcerative Colitis is a lifelong thing and there is a strong chance you will flare back up when you stop maintenance meds. Each subsequent flare gets harder and harder to treat, requiring even stronger medications with terrible side effects. Take your winnings and stay on the pills so that you have the chance to enjoy a lifelong remission.

Please don't stop your medications if you are feeling well.
Posted 5/26/2013 8:46 PM (GMT 0)
StealthGuardian said it right! Don't stop the meds. I did, and was really sorry. You haven't mentioned any side-affects from your medicine, so I don't see why you should stop. I felt as you do, that I was better. I also thought about all of the potential side-effects of the medicine, some long term. But the risk of side-effects and the inconvenience of taking a medications several times a day is nothing compared to the inconvenience that goes along with a severe UC flare.
Posted 5/26/2013 8:47 PM (GMT 0)
Soystud, Imagardener, Insofla, those people aren't on meds.

What do you two have to say about that. *so there*

lol
Posted 5/26/2013 11:40 PM (GMT 0)
It is not necessarily the case that every subsequent flair is harder to treat - my first few flairs where much harder to treat than recent flares.

Surely it is about finding the right balance in your life - medication, exercise, diet etc. Once you get this right then hopefully you stay in remission for as long as possible or at least flares become less severe and more manageable.

This has definitely proven to be that case for me...
Posted 5/27/2013 7:36 AM (GMT 0)
Thank you for your good comment,i dont have any side effect of asacol in this years,so i think now to not stop meds anymore ,i dont want any flare back
Posted 5/27/2013 12:10 PM (GMT 0)
Please continue taking it so you don't have to suffer with the rest of us.

Also, ask your doctor if you can take Lialda instead, same formulation as asacol except higher dose -- it's just 2 pills a day and that's it -- preferably in the mornings.
Posted 5/27/2013 12:30 PM (GMT 0)
I will ask my doctor ..thanks
Posted 5/27/2013 12:37 PM (GMT 0)
A&B,

Welcome to the forum.

Sorry about your recent flare.

There are other things you can add to control symptoms.

If you are interested,  there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.

Posted 5/27/2013 9:14 PM (GMT 0)
Welcome to the forum!

Don't stop the meds!
Posted 5/28/2013 7:57 AM (GMT 0)
Dear Insofla
I read the post you wrote and i like it..also must have serch about LDN and paleo diet,im honored if you can explain them ..
I used rectal meds during last flare and it worked alot !you are right.
Posted 5/28/2013 11:33 AM (GMT 0)
A&B,

You can search LDN on the UC Resources page, you'll see a post about it.

And when it comes to the other things, including Paleo, you can look at the 11th post on that page as well.

You can also search on the HW site for Paleo, and I know you'll find tons of resource links.

Paleo, for me ( there are some variations of this too), means: lots of grass-fed animal products: eggs, beef, lamb, chicken, bison, also wild fish such as salmon, lobster, shrimp, herring, + salads, veggies, low fructose fruits, BUT no grains, no legumes, no nightshades, no dairy. I do have an occasional plate of potatoes with lots of butter ( for a meal) by itself. BTW, butter is good for the colon.Pistachios and cashews in moderation. Nut butters such as almond, macademia butters are good, BUT not peanut butter as it is derived from a legume. I drink lots of filtered water all day long. Oh, and on Paleo dark chocolate is allowed!

Hope this helps.

:-)

 

Posted 5/28/2013 11:51 AM (GMT 0)
Thx for sharing your experince to me,
I will reserch those and try these you said...
sometimes im a little scared to have new things But hope they work for me too
Posted 5/28/2013 11:52 AM (GMT 0)
Feel free to email me if you have any questions.

Or you can ask them here too.

Posted 5/28/2013 2:03 PM (GMT 0)
Ps - I also have Mercola's Pro-Optimal whey protein shake made with almond milk every morning. It is a Paleo product since it comes from grass-fed cows.
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