prednisone induced phycosis?

hello fellow uc'ers my name is Yahaira I have just been recently diagnosed in April 03" with Pan Colitis Whoop do freakin dooo I have had symptoms of it since 2011 wasn't exactly treated for it until it got to the worst case possible some stupid physicians assistant minimizing my condition... never again!!!    so here I am after my second Flare newly diagnosed first time user of steroids and last time... Prednisone was the worst thing that ever happened to my life I mean it put me into remission  However the mental side effects put me in the hospital tapering for four days anxiety is on blast and I feel physically tired now all the time for some reason I feel in my soul that there is no hope of feeling like im the 28 yr old that I am instead of like 28 going on 90. I feel so depressed and down. daily I am on a mission to make myself keep up with all of my responsibilities being that I am a stay at home mom/ foster parent theres quite a bit of it too. I have two special needs children in my home and I feel like I cant handle it anymore. aches and pains in my body just feel horrible im so afraid of whats to come and I guess I really want to feel 100% again and I just haven't gotten to that point yet maybe it never will. I don't know what to do anymore. how can anyone live like this everyday I feel emotionally worse and worse.. I don't knowhow much more of this I can take I hate every moment of it. and I can talk till im blue in the face nobody understands not my fiancée not my mother not my sister not my pastor. I feel so freaking alone. I feel hopeless. prednisone is of the past but what's next? I hate this so much all I want to do all day everyday is cry because this is my cross that I have to carry for as long as God has me here to do so. it is so hard to feel happy anymore. i have to be strong though... i have to be a mother and future wife and whatever else it is God set forth for me to do.... but how? how can i do it right if i don't feel right?   this thing is really taking a hold of me...

That's pretty much how I feel after I taper. Took me a while to feel normal again. You should see a psych and maybe they can give you something to help you through it. I take remeron and this round of pred has been a little but smoother, but still bad.

I am so sorry you're going through this. I will keep you in my prayers.

Maybe I should be thanking my doctor for refusing to put me on prednisone, despite my BEGGING for it.

I can't stop crying and thinking about spending the rest of my life taking different medications to see which one works being a lab rat. And Having to also endure the agony of flares too... Acceptance is hard. All of of this is hard. So hard

Thanks geeker. It helps to know I am not alone. It is all unfortunate but vent to people who understand the agony makes it easier to talk about how I feel

I feel kinda weak and tired myself at this moment but I still want to write you.

You recently got diagnosed. Of course that's hard to take.

Prednisone has bad side effects on me too. I'm turning in to a maniac when I'm on it. It was the last time for me and I switched to Uceris (Budesonide). It made me feel a lot better and took care of my symptoms.

It is important to take maintenance drugs. Right now I'm off steroids and take Azathioprine only.

I wish you a lot of strength.

You are not alone. That is why forums like this exist. Who else can understand you better then other people who are living with it? I highly suggest you see a counselor or therapist trained to help people like us deal with being diagnosed with a chronic illness.

Being diagnosed is a very hard pill to swallow and I have also cried a lot in the past. It wasn't until I accepted it that I felt more in control of my life. Sure I still have days where I throw my pity parties, but I dust myself off and start over.

Do have an appt soon with your GI? I agree that you should be on rectal meds. They really do help. You don't have to be on a reoccurring pred cycle. I've had this for 21 years and I've never been on pred. But I have used rectals meds. I've had many, many years of flaring until I started on Remicade. I'm in remission now.

When I was first diagnosed, the med options were highly limited. But nowadays they have many other meds you can try. So please ask your GI for better options because while it sounds like your doing better, you need to be on something that controls it better.

When was the last time you had your blood tested for anemia?