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venting: the "Sleepless Steroids" club...

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Posted 6/5/2013 8:58 AM (GMT 0)
OK. Been on steroids for 7 weeks now...

IV 60mg at first (3weeks)
then 50 Oral... weaning down weekly.
Now at 30mg....

Very well aware of insomnia side effect.... (been on roids before... )

Just wanting to vent a little and see who else is in the same boat as me right now....

I'm getting 5 hours of sleep per 24 hr cycle.....


ARGH!!!!!! would love to sleep more.... can't... internal alarm clock says "OH! you've been sleeping now for 5hrs.... WAKE UP!!!!" doesn't matter what time I go to bed.... 5hrs... awake... today up at 3:50AM... no sleep to be had.... still need to go to work and run after my preschoolers at 8:30... gonna be a day with big bags under my eyes.... lol!

Oh well, I know it gets better... and no, I don't want to take sleep aid...
I do occationally manage a 1 hr nap in the early evening.. but:


MAN! THIS SLEEPLESSNESS is getting pretty old!!!!!

Unfortunatly this time around, I get the insomnia but not the huge rush of energy I got last time.. (maybe due to how run down I was pre-PRednisone?) So 19hrs to get stuff done.. but not much energy to do anything!

Thanks for listening, feel free to share or add to 'vent'
Posted 6/5/2013 9:14 AM (GMT 0)
What is it with Pred having a 5 hour sleep limit?! I'm up by 4:45 am every morning and can't go to bed until after midnight. Fortunately, I feel great during the day. I do seem to have darkness under my eyes, but I had that while flaring and sleeping all the time. I just try to do as much as possible during the day (and leading up to midnight) in hopes that I will sleep until my alarm clock actually goes off each morning at 5:30!
Posted 6/5/2013 9:20 AM (GMT 0)
lol - Ya.. haven't needed my alarm.. in weeks..... : )
Posted 6/5/2013 9:25 AM (GMT 0)
I'm right there with you! I just woke up....made it to 5a today! Victory! Yesterday was 345a...not so good. I don't always get the energy rush but I just try to get as much as possible done with the "extra" time. Thankfully I haven't been feeling too worn down so far but I've only been back on Pred for 12 days now.
Posted 6/5/2013 9:51 AM (GMT 0)
I get up at 3:30. Then I'm able to sleep until 4:30.

Luckily we're on mandatory overtime at work, so I can always go in early.
Posted 6/5/2013 11:50 PM (GMT 0)
Glad to see I have sleepless companions.. :)

not glad you are sleepless.... but glad I'm not alone! haha

Here's hoping we might each get lucky tonight!!! and by that I purely mean SLEEP!!! ;0)
Posted 6/6/2013 12:04 AM (GMT 0)
I am not on prednisone at all, and I would NEVER sleep if not for Ativan.
Posted 6/6/2013 1:36 AM (GMT 0)
geeker so your on Ativan??? so am I !!! im almost certain I wouldn't get a wink of sleep without it either
Posted 6/6/2013 1:42 AM (GMT 0)
Yes, I take 1 mg at 9pm. It does the trick for me. My doc has no problems with me being on it forever and ever, and I really do not sleep without it.

I cannot figure out why the IV sedation for colonoscopy does not do the job and knock me out better, and sedation for dentistry fails for me too. I am such a wimp that I got tipsy off of two sips of beer (back when I drank beer lol) I am a documented mutant though :)
Posted 6/6/2013 4:18 AM (GMT 0)
I'm right there with you canadagal. I got released from the hospital 6 weeks ago and am currently on 40 mg of pred. I usually get to bed between 2-3am and get up around 7-8am. In those 5 hours I wake up at least twice to pee and/or leg cramps...pred sucks! The last 3 days, though, I've had a nasty cold and been able to sleep about 6-7 hours. I guess my cold is telling my body "this dude needs to sleep".
Posted 6/6/2013 9:19 AM (GMT 0)
I'm getting ready to take 12 teenagers toNew Orleans on a Mission trip for a week. Pred will help since I CAN'T sleep and the kids WON'T sleep!
Posted 6/6/2013 9:48 AM (GMT 0)
lol 46

Dude- hope your cold feels better soon...

I crashed early last night (9:45) so, been up since about 3:30 already.. might get a quick nap in before work right now... :)
Posted 6/6/2013 12:32 PM (GMT 0)
My sleeps a little better now that I have dropped to 30 mg Pred. Still wake up like a rocket though. My boss told me to slow down this morning. I was talking 90 miles an hour and it was only 5am lol. be. Not having as much leg or foot cramping either. Got my 3rd dose of Remicade in on Monday and should be dropping to 20 mg pred Next week.
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