Ulcerative Colitis in Remission

hey colgone1

Right now I am perfectly fine with my life. I'd say about once every 7-10 days I have a bad day. And these bad days might be 3 trips to the loo and most of the trips are formed just a lot lol. Other than that I do a very healthy, although limited SCD diet. I use the mesalamine enemas for about another month every night then taper and hopefully will have remission. I have my life, I can ride my bike, I go out with my friends, I use the can once I day, I can play music, I go to work, I occasionally drink vodka. Only thing missing is a sex life... But in time!!!

I have no blood, pretty good BMs, and I have energy I really don't need more drugs right now. If things start getting bad again, LDN is the first thing on my list to try. Mesalamine nightly enemas seem to really keep things under control. I am going to use them for about 4 weeks then taper SLOWLY, and try to obtain remission this way.

Thank you for your prayers that is incredibly thoughtful. I will think of you too colgone1 and that you maintain a long beautiful remission.

It sounds promising Robert. And I'm happy to hear you've come out of it well!

After doing a bit of research, I find Glutathione would be beneficial for those, like me, who have yeast/candida or bacteria overgrowth. Bad bacteria inhibits glutathione, so by supplementing with glutathione, it may be possible to balance out the good & bad bacteria.

Well I had a CAT scan, which they added for good measure, and the cystoscopy: nasty little test. They did not see any evidence of any fistulas, only an adrenal gland that is still in recovery mode. Evidently being as close to death as I was it takes some time for some organs to fully come back. Urologist is now thinking that the septic shock could have been the result of not re-leaving myself, bladder, as often as I should. He warned me not to try and hold it in, an ability I seem to have since younger days, good/bad, obviously not good. To go when I feel even a twinge of an urge.

I have now re-introduced salsa (some actual hot), jalapenos and salads back into my diet. Attempting moderation as I do love hot and spicy. Praise the Lord and pass the LDN.

Hi..that's awesome news!!!

What meds are you on exactly?, still any 5ASA?

Thanks for the update...have a great summer.

q

so no uc meds?  You might consider to change your signature to reflect that you are or aren't on meds.  I didn't read all the posts again..

q

Mindoverbutter, was just updating this post and was wondering how you are doing?

Tagged for LDN

I hadn't thought about this site for quite a while and just wanted to put out there how thankful I am for no symptoms. I eat whatever I want, although I try and for the most part eat around the diabetes thing. I am down to 237 and normal bowel movements. Not doing anything special concerning the UC. Other than the low sugar diet I only occasionally drink alcohol. Have even been eating some ghost pepper salsa regularly with no problems.

Thought I would give an update. I consider myself cured. I see some of the most inane things on line. One that just caught my attention said that the only cure for UC was removal of intestine. SAD that this stuff is out there. Any way I thought I would give an update. When I eat an extremely high sugar meal (just ate a large piece of chocolate cake, remember I am a diabetic, my stomach/intestine is in growl mode which made me think of this past condition in my life. I now on odd occasions will have poops so solid they have hurt. I eat hot Thai, Mexican etc. I will take some probiotics occasionally. I know people do not like the word cured but I have been cured of other ailments so I have no problem now after so many years of "remission" saying I am cured. Praise the Lord.

Not taking LDN anymore. My doctor said it would not hurt to keep taking but thought that I was doing so well that I would try without. Have been off of for years. Have to take occasional pain meds for bad back and the LDN is a receptor blocker. I really believe that the LDN was instrumental but also the low sugar diet and probiotics. Until proven otherwise I believe the cause was food poisoning combined with antibiotics.

What form of LDN is best? I heard there is a tablet form, sublingual and some kind of cream. Which is the best form for UC?

Thank you hateuc, me too. I was having mine made at a compound pharmacy in Tempe, AZ. Do not have any expertise on which is best. It took 6 weeks to "kick" in. My diagnosis was severe. My gastro said mine was one of the worst he had seen. If I ate anything I had to be within 10-15' of the bathroom. Going up to 30 times per day, total fluid, no control, lost over 80 lbs. If I wanted to go anywhere I could not eat for 4-5 hours. My "inflammation" lasted for about 1.5 years. I had a day of a normal disposal and the next day was total liquid including blood (every time I went) which continued for 1.5 years. I believe I had put this all in my post. You may want to read through the entire story. I was on the cusp of having the snip, which is why I went to the Homeopath. I contacted him a few months ago to see how he is doing. He now practices in California. Dr. Sam Benjamin, highly recommend.

Glad to hear you're doing well, keep doing what's working for you