Relatively newly diagnosed... CMV/Colitis... Help?

Hi - I have been reading this forum for a long time, since I was diagnosed with ulcerative proc*** in Febuary, but haven't wanted to post until now.
Was wondering if I could benefit from your experience and have some help deciding what the next course of action is.

Basically, I was immunosuppressed from the flu and a stomach virus that I had in close succesion with one another. Because of that I developed CMV, which turned into CMV colitis.

For 2 years, I have had one regular, relatively urgent BM in the morning, but it was never anything I got anxious about or worried about. It was just a normal part of my day.

In January I started having a lot of gas, tenesemus, no blood that I could see. I was also exhausted, to the point that sometimes I could barely move my arms. I had a lot of blood taken, stool samples, and a sigmoidoscopy. I had mono/cmv, ulcerative proctitis and CMV. I also had an endoscopy and they discovered I had a healing ulcer in my stomach as well as gastritis.

about a month later I had a colonoscopy, and the results were the same.

My energy slowly slowly came back and I was able to do mostly everything, but just felt a little more tired at the end of the day. My stomach was not getting any better, but not any worse either. I was on Asacol HD and dexilant. I had about 3-4 BM in the morning, not really any D.

Finally, they decided to put me on IV ganciclovir for 2 weeks to get rid of the CMV and hopefully put me into remission, followed by 4 weeks of valganciclovir (valcyte). I went from having almost all of my energy back to being dizzy, lightheaded, weak, sometimes nauseous, and generally having no energy, feeling like I was in a fog, and not being able to do much of anything.
My stomach didn't get significantly better on these meds, but I wasn't (and hadn't really been up until that point) in pain, didnt have significant bloating, and my stools were generally formed, just occasional D.

I was looking forward to stopping the medication and getting my energy back.
So far, I have been off these meds for 2.5 weeks.
I am now worse than I was when I started. I am exhausted all the time, I can't imagine going to a supermarket and even walking down one aisle. I hardly ever leave the house except for doctor's appointments.

I had a sigmoidoscopy recently, and still waiting for results back from that. I am still ulcerated, have friability, bleeding when you are barely touching the tissue, and 12 cm of diseased tissue.

My stomach now gets more bloated, I have more twinges and pains. Sometimes I have days where I feel nauseous every time I go to to the bathroom, as well as weak and fatigued. It's as if the feeling of needing to go sucks every bit of energy I have out of me. I feel like this medication made me much worse.
My doctor's have no idea why this is happening. They tested my thyroid, potassium levels, etc and everything seemed normal. My viral load is normal. My sed rate is normal.

I discontinued my Asacol HD bc i am wondering if it is making my gastritis and general symptoms worse.
(I was asymptomatic in terms of gastritis so was surprised at the diagnosis. Now I feel heartburn and reflux pretty often).

I used to have a lot of energy and do a lot of things. Now I am completely miserable.
I accept that this is my lot in life. I just have no idea how to deal with it.

Anyone want to help me out??

1000 mg olive leaf extract 3x per day. Once before breakfast, once before dinner and at bedtime. .

1/2 scoop monolaurin before breakfast and dinner and at bedtime. Increase to 1 scoop 3x daily if you aren't having horrible die off.

renew life bifido max would be good for your probiotic, 1-2 caps 1hr AFTER breakfast
Add 1000mcg l-methyltetrahydrofolate, zinc picolinate, 2000 mcg hydroxy b12 to support detox. Stay away from any supplements containing folic acid.

Detox with Epsom salt or dr singhs mustard baths, at least every other day

Should clear within a month. If that doesn't work, consider houttynia.

Post Edited (PathogenKiller) : 6/16/2013 10:20:52 AM (GMT-6)

To kill get rid of the cmv/ebv and help you detox the die off. EBV hides in your peyers patches and the lymph nodes of your gut. These are nature's valcyte. you can take them longer to really get rid of the virus.

Folic acid is bad for 60% of the population due to defects in their methylation cycles. When you take folic acid with these defects, you in essence, make it impossible or atleast very hard to detox the things you need to so that you make your body inhospitable to pathogens