Prednisone and diet

I don't think that there is one specific diet. I would just go with gut friendly foods to help with the taper.

Laughing: There is no one diet that is guaranteed to work in anyone. Sometimes no diet helps at all. One person may respond to SCD or low residue while in another patient they could make you worse. Everyone is different. It is good to avoid certain foods that are hard to digest such as raw veggies, nuts, high fibers, and many have lactose intolerance issues. It's more of a question of avoiding certain foods than having a particular diet.

As a side note, I think it is a mistake to get a prednisone taper plan in place before the fact. Everyone is so different I personally think a tapering plan should be "winged" or improvised or tailored to a particular patient during the process, not before you start.

Jonny_Murray said...
I've always lost weight when I've reached the stage of starting pred so for the first few weeks, while I am on a high dose, I pretty much eat anything and everything. After have tapered to a lower dose say about 25mg I really start to watch what I eat - no red meat, no dairy, green smoothies for breakfast every morning, lots of fresh fruit and veg.

This works well for me - today is my last day of a 9 week pred taper started at 40mg for 2 weeks then down by 5mg each week. Not had any trouble getting off it, no symptoms returning and I feel good!

That's great! I have to admit I have been wondering if I could go out and sneak in one pizza while I am on a high dose, it has been so very very long... What maintenance meds are you taking? What was your taper schedule? She started me at 45mg which I took today but am kinda thinking of doing 40mg tomorrow, since it is what most people here take. She actually started writing 40mg then changed her mind, scratched it out, and put in 45 instead.

Oops, I just tried to reply to someone else's reply about scd diet and accidentally erased it! I have been on SCD diet before and it seemed to help but never got me into remission (hence the prednisone). I was considering retrying it. I am also considering a gluten, dairy, bread/yeast, sugar, red meat, alcohol free diet. I'd find the second diet easier to stick with, as I could still eat quinoa and legumes which I like and keep me feeling full. I didn't like all the meat on the scd diet!

Absolutely, RS diet. Going off the RS diet and pigging out on ice cream and doing other things brought the flare back.

RS diet requires normal stransit time so it can ferment into SCFA. I have lots of tools to fix transit time. Once that is fixed RS diet and work its magic.

Navy beans are loaded with RS. It converts to SCFA butryate. So I make a big batch of

1lb grass fed beef from Whole Paycheck
chopped brocoli
chopped spinach
chopped cabbage

low temp with water cook meat add full packet of chili ( vitamin A controls gut inflammation )
Set meat aside
Steam/cook down veggies
Recombine and add Cheddar cheese on top ( more Vitamin A )
Whole can or two of Navy Beans

eggs,vsl#3DS, that pretty much does it. Avoiding dairy but not yogurt and avoiding grains.

Was 60mg pred last week, 25mg so far today, after the bleeding halted I was just using it to get a zillion things done. Catscan at hospital showed active PAN colitis, really bad they took my drivers license when I tried to leave and threatened to catheterize me.

mindoverbutter said...
Careful guy, you got active disease, pred can be brutal make sure your sleeping. Dude just do SCD, you already cook and have money for whole paycheck, you'll be in remission for the rest of your life in like two years max.

Thanks. Yes I cannot come down too fast or adrenals wont ramp up when needed and I will flare again. It was getting unhealthy - 25mg feels much better. Worked 2-5:00 am but slept like a baby for an hour till 6:00 and back at it.

Teammate is in India so I am doing everything right now and there is a lot to do.

Back on 7.5mg blood thinner
Back on vasodilator

This will help the hand from auto accident and ensure the pred creates no clots.

I try to do SCD merged with RS, however I have many cheats right now, Bryers no lactose ice cream, almond muffins and coffee, and sugary natural yogurt.

As pred drops those will need to get really small or go to zero.

Going to play it 'smart' after this and go for long term remission. Had eggs this morning with swiss cheese and threw some Navy beans in. Psyllium fiber and seed powder and Wheat grass all need to staples in the SCD+RS diet.

Need to remove the hawaiian juice drink C-monster with passion and whey protein crushed ice - great hydration but huge sugar load.

I also stay away from dairy except goats yogurt which I am able to tolerate no problem!

Pred can take anything from a couple of days to several weeks to kick in so give it more time!