Posted 7/9/2013 12:33 PM (GMT 0)
Out of the hospital and back home. I'm feeling better but I'm still bleeding and with mulitple BMs. I'm on 40mg of Pred with a weekly taper, Lorzapam for my anxiety, I start Humira today and the dreaded Rowasa Enemas.
My doctor wants a 10mg weekly taper on the Pred but I'm going to convince him to do a 5mg. I've done 10 before and it's too fast. Don't want to make things worse just to avoid some acne and moon face. Going to grow a beard to cover up my face and keep my diet in check so the weight gain isn't too bad. I typically do power lifting 4 days a week so it helps keep the weight off (I'm 5'9", 183lbs and can see my abs thanks to UC and 4 days of a liquid diet).
I really hope the Humira is as effective as the Remicade was. My doctor told me that my antibodies were elevated on the Remicade and we could have tried increasing the dosage or lessen the time inbetween dosages but he felt that was a battle we would lose.
I maxed out my OOP insurance for the rest of the year so everything is covered which is a lot of stress off my shoulders.
Going to have to figure out diet next. I'm typically a high protein, moderate carb and fat guy that does all of the family cooking. I think avoiding raw veggies for the time being makes sense as they kind of rush through me. I typically cook indian, thai, italian, and some american and like lots of spice. going to have to rethink some of that until I'm in remission.
Also would love to get these mouth sores to go away.