Prednisone experience

Good that you are feeling better.

Well, the real fact of the matter is you can only get off of pred once your uc inflammation is healed enough to do so, yet somehow pred receives all of the blame. Pred can limit your body's attack on your colon, which buys you time to heal. If you come off of pred too soon, or quickly then you will return to a uc flareup.

Sometimes, to get off of pred you need to increase the dosage of your other uc meds, or add in another uc medication so you can exit the uc flareup for good. It really depends on how bad the flareup was, the damage done, whether your uc spread in severity or extent, and so forth. You got to have your uc in a manageable state once you exit the pred.

the only advice I can give is don't rush it. i know the side effects suck, believe me i know. but the worst thing you can do is rush a taper, get sick and have to go back up in dosage.

thanks All

Im officially on 35mg today, hoping to taper by 5mg every 3 days from here on out, Dr says to bump back up 5 if symptoms return, but so far its put the fire out pretty impressivley.

Decades back, I went from severe/ imminent surgery UC to total med free remission for a decade thanks to high dose pred (I cluldnt tolerate any other UC meds at the time)- it can yield super-remissions, all the moreso if you do well on maintenance meds. Best of luck.

I just left the hospital after 3 days from a severe flare thanks to pred. It seriously is a wonder drug for me at least. I'm on 40mg as well. However, my taper is 5mg every 7 days...a little faster than my 10 day normal taper but hopefully will work. 3 days does seem a little fast.

Luckily, for me I don't get to many of the side affects. I do get increased appetite and a bit of restless at night but nothing major. the most serve side affects from pred I had the first time I used it which was the shakes but that was really it.

I wouldn't worry about that though, like a previous poster said enjoy feeling good. Also, don't forget to focus on the maintenance of that remission it's really important. Good luck!

freddyj said...
Aguy-

So youre sold on navy beans still? Remember f factor bars? I bought someof those on your account.... But you really think the beans help?

" f factor bars"

They pulled me out of a flare and the store nearby stopped stocking them. They were hard to put down, kind of like psyllium seed powder. Eating salmon 3 meals a day worked too but that became hard to put down.

Navy beans worked and I rapidly tapered and GP said anemia could be defeated by eating dark chicken meat etc. I was not thrilled with the beans so I abandoned them. A month later I started slipping into a flare and accelerated it with bad behavior, ice cream, booze etc.

Now I dont try to wolf down a can of beans. No Sir I put them into grass fed beef chili and I love to eat them. Chili has lots of vitamin A which recently was shown to control gut inflammation.

This go around I am not gassy, probably because of nuclear devastation then repopulation with VSL3. But I just go with a small side with melted butter alongside morning eggs. Dairy is out as is most grains. Lots of olive oil and vitamin A.

If I stop the bean for 2-3 days I notice because my diet is high in protein ( shown to thin mucosal layer ) and I have bad cheat foods. RS is shown to thicken the layer.

Yes - I am sold on RS aspect of Navy beans. Go easy at first if gassy, should be temporary.

To avoid drowsiness post prednisone I take yohimbine HCI ( vasodilator ) and 1,3 dimethylamylamine ( vasoRESTRICTOR ) which has been banned but REALLY helps so I ordered 400 more pills from a supplier not yet sold out.

Neither of these nor the cherry coke I am drinking now give me urgency because Navy Beans thicken my 'shield'.

i assume this is the f factor bar you're referring to...
http://www.ffactor.com/products


do they help?

F factor didnt help me.

BG- I hope your pred experience is a brief and helpful one! Im tapering, hopefully not too fast but eager to be done with it... But still being helped GI wise for sure.

Same I think.... meaningless anecdote basically sorry. Im gluten free at the moment too.