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so does anyone thus far have anything good to say about uceris?

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Ulcerative Colitis
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Posted 4/18/2013 2:20 AM (GMT 0)

therearemiracles said...
Today I went to the bathroom 20+ times all blood and now I'm so fricken tired I was sleeping at work! You would think there would be some improvement in 8 days instead it's worse.

I'm happy though for those that it's working for.

I will see maybe tomorrow if eating brown rice today and yesterday and green bananas today and yesterday if my stool tomorrow am will be better. Wouldn't it be awesome if the resistant starch was my golden key?

Legumes were the golden key for me.

Doc refused Uceris - I got off pred as fast as I could after that, now I will never need that Doc again.

The fat on my body is disgusting, high dose pred was great brain fuel but the price is horrid, sometimes I would smooth out around the belly but there is some jiggly fat there now and the last place I expected to find it - on my chest which has always been lean. That is some old guys stuff - yeach. No more prednisone for me ever. All started with sore throat late last summer and I took antibiotics, got a sore throat now but NO more of that. Better to just wait for the body to deal with it than take antibiotics then need a GI butt doctor. No thanks.
Posted 4/21/2013 11:16 AM (GMT 0)
To really get the full benefit of Uceris, you need to take an 8 week course of therapy. Or if it is severe, you can take 16 weeks of therapy. Topical agents work much better for mild to moderate UC. I feel much better when I have to do a court enema BUT I hate taking them! I also heard that some pharmacists are substituting generic Entacort for Uceris just so they can clear the shelve of inventory($$$$). make sure you are getting Uceris if you want it. I can't wait to take this drug. My doc maxed me out on 4 lialda a day but it takes so long to kick in....I really want something that will kick this flare in the butt fast and then I will maintain with Lialda!

I Hate prednisone and will never take it again! My 35 yr old brother took it for 9 months....now he has to have a cataract removed! Thanks prednisone!

I don't care it the doc thinks expensive drugs are a burden on the system...it should be my choice. I pay larger premiums so I can get the best drugs. If you had UC, you would too doc!
Posted 8/18/2013 6:27 PM (GMT 0)
any one know if the side effects of uceris go away when discontinued, specifically the bloating and distended stomach?
after 3 days already getting better was going 20 times a day now down to 3. five more weeks to go also on lialda 4/day
Posted 8/18/2013 6:36 PM (GMT 0)
Big mistake to stop the Lialda in five weeks. UC is a disease where your body's immune system attacks something in your colon or the colon itself, causing inflammation. Drugs like Prednisone and Uceris cut off this immune system attack AS LONG AS YOU TAKE THE MEDICINE. Once you stop these meds your immune system will begin attacking your colon all over again and you will be back to square one. You absolutely must continue taking a maintenance med FOREVER, even if at a lower dose. Prednisone and Uceris cannot be taken forever but Lialda can. Future flares usually get harder and harder to treat so the goal is to never have another flare by taking maintenance meds like Lialda. If you don't each flare will get worse and worse. It's almost a 100% guarantee.
Posted 8/18/2013 6:37 PM (GMT 0)
Uceris did absolutely nothing for me. I was told that it was so amazing and would show improvements by week 1. I stopped after a month and back on prednisone, my nemesis. Good luck to those who currently see benefits on Uceris.
Posted 8/18/2013 7:54 PM (GMT 0)
I've never taken it - that's a good thing !
Posted 8/18/2013 7:56 PM (GMT 0)
I don't think it's doing anything for me. My GI doesn't either, but he wants me to finish out the 8 weeks. Three to go.
Posted 8/18/2013 8:00 PM (GMT 0)
Yes side effects go away. Just like pred. But mine were not as bad to begin with.
Posted 8/19/2013 12:15 PM (GMT 0)
I don't think I am seeing an improvement with it. Then again, I don't know what my state would be if I wasn't taking it. Plus, I can't say I saw signifciant improvement from Pred either.

I think my inlfamation right now is mostly in the rectum and my original dx was pancolitis so its possibly (maybe likely) that the lialda an uceris are keeping the rest of my colon in check for now. I just wish the hydrocortisone enemas would be doing their part.
Posted 8/19/2013 3:09 PM (GMT 0)
I used Uceris for two weeks while I was waiting for my Remicade to be set up. It cleared up the bleeding really quickly (which in turn took away some of the tiredness), but did nothing whatsoever for the D and urgency for me.
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