Amino acid therapy update-continued thread

This is a very good idea Mark,

The only way to test this powder is just to take it for some time and see how it works.

I tried some powders from supplement shops and they've caused bad diarrhea. I haven't tried the things from body-builder-Shops, maybe they are of a better quality. I'll try them later if this therapy works for me.

Here is another thing that I'd like to mention: although I talked with dr. Stein about the bad service from his receptionists nothing has changed. They are still unfriendly, my impression is that they work for free.

People who do not wish to get very unfriendly service but want to try this therapy should look for another doctor who does this therapy.

I still stick to this therapy and there is a very small improvement now. At the moment I am going to continue because this is my last option.

Update

I seem to be having a bit of a flare here. Actually I'm not sure if it's a flare or perhaps some sort of stomach bug... either way things are very uncomfortable.

It's different though - almost hard to describe, but if it's a flare it's not as bad as what they usually are like. And after my afternoon dose things settle down quite a bit. I'll see how the next few days go.

Frustrating though cause I was doing so darn good.... Technically speaking based on my history with all my other meds I've tried I'm at the same time point where I would usually flare on them as well. So overdue in a way I guess I could say.

No, not yet, but I do have one coming up this week. I'll mention the flare to him though before switching doses and see what he says.

Again though. Part of me in unsure if it's a flare or a bug... But I have a feeling it's a flare. Just not a strong as what they usually are. There'a not a lot of blood, and not a lot of mucus - more like an uncomfortable and almost deep inside painful feeling when going to the bathroom - multiple trips to the bathroom (like 8+ day), loose stool or d and it's somewhat painful to bend and move a lot... No crazy urgency other than just prior to having a bowel movement not sure what the heck to make of it. I'll give it a day or two and then maybe call the GI if I don't see improvement. The pain just feels different compared to all other flares I've had.

For sure I'm sticking with the AA treatment as again, after the afternoon dose I feel quite a bit better for a long period of time.

This is my 8th week. My colitis symptoms are a little bit better - I still can't even have a formed stool and I go multiple times (mostly in the morning) but other wise I feel really good. I have a lot of energy and my mind is focused.

Before I started this I felt bad all day long. Bad as in "I think I need to go to the hospital" bad.

I think there is something to this treatment but it could take months and a lot of trial and error. I'm going to stick with it.

Update:

Feeling a little better today actually. Symptoms were not anywhere as bad as the last few days and I was able to get out with no issues for the entire day. So this is a bonus.

New dosage change today that I'll start tomorrow and see what happens:

"Let us see if we can make your wish a reality. Please cut the neural replete to 1 pill 3 times a day, and increase the D5 Macuna to 2 per day. Do not change the tyrosine or the CysReplete.

1 week after the dose change, submit another urine testing and send me a report with regards to any changes in your symptoms.

I believe that these will make a difference. Every change is a step hopefully in the right direction."


PS - I wished I could just eat a darn sandwich or go out to dinner with family without any consequence! For once...

Aweosme... well good luck! hopefully it works... I think you will some benefit. For some unknown reason I really believe in this treatment...

Here is my link to weeks one and two on the treatment... maybe read the first two or three things I posted.

Crazy tiredness is a big effect of it, until you catch up on proper sleep I have found over the months. If you sleep a few days and nap as often as you can is lessons substantially. After that I sort of fell into a pattern of good sleep and good days. But when I get behind or force myself to stay up I'm done the next day...

Link www.healingwell.com/community/default.aspx?f=38&m=2675323

Since this I have been back and forth and up and down, but all in all in a positive direction to date. I'll have to see how this dosage change today makes me. Or more so over the next few days.

Haha... I believe this is exactly at the heart of this flare... I pushed things cause well... I like food! ugggg

I don't feel to bad today - but far from where I was.

Well.... Day 2 of the new dose and I'll be darned...

Significantly less symptoms all of a sudden. Not out of the woods yet, but I did get away for the afternoon without issue, same with this evening, and really haven't seen any blood. No real urgency. Just mucus. Cramping is very, very minor and well... I'll see how the next few days go as it takes 3-5 days to equate to a full dosage change.

huh...

Anything new on this front????

Anyone quit? Or make another dosage change?

I did a dosage change to cut 5HTP down or move down from 6 NeuroReplete Daily to one NeuroReplete 3x daily and add 1 Ldopa 2x Daily.

Anyway this brought about relief from the minor flare I was in, and then I added Resistant Starch and things improved further to solid and semi-solid stool. no blood, or very minor. Still have mucus though but again it's different.

Not feeling the best, but not the worst and am still off and so far have no need for meds. Diet is more tolerable as well - especially with the addition of Resistant Starch foods

Oh and milk causes me zero issues whatsoever now. Never had that before.

It does whip you around - that party why I still am curious if it will eventually work. So I keep following it and going through the changes.

I had the same thing as well - more bleeding, more mucus from a dose change, and then less bleeding, less mucus, from another dosage which is also the other reason I feel it's really doing "something"....

Dr. Stein has always told me it really does work. He said sometimes it's hard for people though as they have to go back and forth through all these changes and and that's what frustrates patients the most. So I guess we'll all see.

So, here I am, after 8 dosage changes there is absolutely no change in symptoms. ABSOLUTELY NO CHANGE!!!.

I believe that this disease is individual and has also individual causes, and Dr. Stein may say that it works for everybody but it does not, it may work for many but not for all of us. This thing is nevertheless worth trying, if you can financialy afford it.

 I had to take 6 spoons of tyrosine (which is a lot of money) last time and felt nothing at all. I think that I am going to stop now or very soon because I mean, how many spoons should I take to see some change (I don't speak about complete Remission, a small change is all that I need to go on), should I eat a container per day:)))???? 

I am going to try the Marshall protocol, because there were lots of pathogenic bacteria found in my stool and hope the best.

 I wish you all good luck guys with this thing , don't feel discouraged because of my negative experience.