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Ulcerative Colitis
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Posted 8/25/2013 4:15 PM (GMT 0)
Well the cramping has lessened a little, the fever didn't develop, but I am still on the potty a lot with alternating d & c. So weird!

I have to work tomorrow so hoping things calm down later.

Thank you Q. How long does this last? Months? There is so much info out there and it seems to be so different for everyone!
Posted 8/25/2013 5:27 PM (GMT 0)
I have been diagnosed with UC for 5 yrs now and have been having major flare ups and bleeding but cat scans seem normal. I just had a colonoscopy and they it was moderate inflamation but overall well. After 5 days in the hospital i went home feeling good, then 2 days later the pain came back and blood was way more than normal. Went to ER and they said it was detox from the pain meds they gave me? Anyone ever had this happen to them?
Posted 8/25/2013 8:54 PM (GMT 0)
Not me! Sorry you feel so poorly
Posted 8/26/2013 2:04 AM (GMT 0)
So it's day two of antibiotics and my cramping only happens right when I eat anything, huge cramps! I also started taking a probiotic that I will never NOT take again! Will know if its cDiff or ? In the next couple days.

Have any of you had MRI or cscan of your tummies?

Xxoo
Posted 8/26/2013 6:14 PM (GMT 0)
I've had 2 MRCPs (MRI) of my abdomen/liver/gallbladder/pancreas because of PSC/PBC.

I had an ultrasound initially...

Eating will increase your peristalsis...so understandable that you'll get cramping.

Probiotics are awesome! Although not all agree with all of us..trial and trial...I have my cat on them as well.

You should call your doc and see if he'll prescribe you Bentyl which is an antispasmodic. It does help.

Are you going more times to the toilet?

q

.
Posted 8/26/2013 6:46 PM (GMT 0)
Seems like i am going more today! Off to look up some of your words, ;-) lol
Posted 8/26/2013 6:49 PM (GMT 0)
Whoa, there is actually a youTube video that shows peristalsis! Really cool. Amazing thing our body!
Posted 8/26/2013 7:03 PM (GMT 0)
lol...yep, isn't the internet amazing??

Just want to add that it could be peristalsis in hissy fits (aka...spasming).  The antispasmodic does help.

Are you eating OK?
q

Posted 8/26/2013 7:22 PM (GMT 0)
Yes i think i am. I am mindful to take small bites and chew! I only eat cooked everything and lean meats. I am exhausted, really tired these days! Probably cause i sick!
Posted 8/26/2013 8:39 PM (GMT 0)
Well Q, I caved.

I was sitting here trying to choke down lunch, then I was just so tired, I almost fell asleep at my desk and couldn't finish lunch.  My office mate told me I looked terrible.

Everyone here as said they ahve taken prednizone for one thing or another, so dang it all, I went home and got it and took the first dose.

I am taking 6 30mg tablets a day for 30 days.  Is that a high dose?  Why is there no tapering???  Maybe its such a low dose its not necessary or is it because its only 30 days (which actually seems like a life time).

My hopes is that it will kick start my colon, stop the spasms and inflamation and let me get back on track to where balsalizaides and rectal meds help.

In the meantime I have stopped balsalizides.  I am going to finish the antibiotics and keep up the probiotics and the enems though. 

Does that sound good.  Do you think that I will get side effects from pred at this dose and this amount of time?

Thank you so much.  I just couldn't take the cramps!

Posted 8/26/2013 8:43 PM (GMT 0)
  smhair 6x 30 mg?  uh freaking high dose...or did you mistype?

that would be 180 mg daily... shocked
q

Posted 8/26/2013 8:48 PM (GMT 0)
Oh yeah sorry it 6x 5mg!!!!
Posted 8/26/2013 8:52 PM (GMT 0)
oK...I can breathe now!

30mg daily isn't high like 60 that some end up on....
just make sure you get something like Zantac to protect your stomach for the possible high acid it can cause.

Hope it helps you.

q
Posted 8/26/2013 9:00 PM (GMT 0)
Thank you, u have made this so bareable thank you!!!
Posted 8/27/2013 5:17 PM (GMT 0)
hang tough...Hoping you don't have to wait too long for the results!

How are you doing today?

q
Posted 8/27/2013 5:33 PM (GMT 0)
Thank you for asking. Things are "firming up" and i only cramped one time very little in the last 24 hours. Woke up about 4:00 this morning and could not go back to sleep, hope it is not a sign of things to come! Still made it to work and fairing ok! Will be tired later. I did call a pharm to find out what would happen if i quit taking pred after only one dose and he advised against it. It is just a scary drug! He actually told me it is a wonderful drug!!!!!

I will keep taking it but as soon
as i get stool results and talk to dr i want to see if i can quit sooner than 30 days!


Thank again Q!!
Posted 8/28/2013 12:13 AM (GMT 0)
you can quit taking it now. You could take it for 5 days and then quit it...as per some short courses of pred my friend has gone through a few times.

If you're improving...stop the pred...especially if you don't need it at this point. It won't cause any bad effects.

Just tell him you didn't take it..period.

q
Posted 8/28/2013 5:54 AM (GMT 0)
Ok! Let me give it a few days. I am already insomnia -
and still not tired. Not good! But i am improving after 2 doses, or is it the flagyl? Omg this is incredibly hard huh?
Posted 8/28/2013 4:22 PM (GMT 0)
Hi Everyone,

I am not sure how this forum works. Please help me. I don't even know where the last message I posted a few days ago is.  New member and Not computer savvy. I will make it short since I don't know where it will land in cyberspace.

This is my third bout with C-Diff. Diagnosed with actual U.C. 2012, but contracted  C-Diff in summer 2011 got better on Flagyl.  In June, 2012 contracted C-Diff again put on flagyl and cured but colonoscopy showed U.C. so I started taking Lialda 4 pills Sept. 2012. Was doing good but still had blood when I wiped but I have hemorrhoids so feeling fine until July 2013, lots of blood in my stools, clots when wiping. Did a stool test for C-Diff it was negative. The 4 Lialda was not helping. Stools become loser and stomach cramps. Colonoscopy done on Aug. 19th and it showed I have Proctitis (inflammation of the rectum) stool test during colonoscopy showed positive for C-Diff. I am on Flagyl again, making me sick, stomach pains, bad taste in the mouth, used Cortifoam but the foam kept coming out of the side of the can instead on the plunger did that for a few nights. Today went back on Lialda. Already before 11:00AM had two BM with blood in the bowl. I don't know what to do. I have to go back to work next week and I don't know if I can do it. I have another 5 days on the flagyl. Cannot take Vancomycin. Before I had C-Diff I never had any of these problems.  Thank you for writing. Serenity6

Posted 8/28/2013 4:51 PM (GMT 0)
I hope a mod comes and moves your post so you can get more help! Try to post right under the main thread by using post New instead of reply!

Good luck
Posted 8/28/2013 4:53 PM (GMT 0)
Q! I dont have cDiff or salmonella!!! I was so sure because of all the symptoms! Doc away till tomorrow but will revisit meds with him! Actually love the energy pred has given me!
Will keep u posted!
Posted 8/28/2013 5:31 PM (GMT 0)
Well, that's what some say until they try to get off it. You're in the honeymoon phase..lol.

It's good you're improving, it's good that you don't have c.diff or salmonella...but it's always better "mentally" to have something more tangible isn't it?

I should have remembered, but are you still on steroid enemas?

What I think you could consider at this point is to do a fast pred taper.

The other thing...you did go off the Colazal, right? Maybe something with that?

When do you see your GI again? Maybe time to see him this week and make a different plan for your medications?

q
Posted 8/28/2013 6:54 PM (GMT 0)
I kind of thought this was the calm before the storm! I have been taking steriod ennies about a week now! I want to go back to mesamelmine kind- i dont want any steriod! Is that feasable?

I NEVER bled until i started balsalaside after dr gave to me after colonosopy with ennies for treatment! I was only have mucus! I hate balsa - gives me horrible headache. I was only taking 3 1x a day!

Would like to taper then just use ennie and maybe apriso? What do you think of that?

How do you do a fast taper? Sounds good, i need an annulment before honeymoon over!
Lol
Posted 8/28/2013 6:59 PM (GMT 0)
To add, i think the tangable answer is that i am in a major flare that h
Just needs to be put back in control with steroids than go back on maint drugs? Hopefully! I just hope i can maintain remission!!!!
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