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I no longer have any doubt whatsoever that SCD helps me

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Ulcerative Colitis
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Posted 8/28/2013 10:34 PM (GMT 0)
Just wanted to share. Unfortunately I have been having blood in my stool since April. But besides that no other symptoms and my life is not inconvenienced.

When I stop eating SCD my symptoms go downhill very quickly. The first two times this happened I thought maybe it was a coincidence. After the third time, when I look at it objectively, there just can't be any doubt that it is no coincidence. I would love to be able to eat cake and ice cream without it affecting my UC and I gave my bowel plenty of chances to suggest to me that SCD wasn't helpful, but every time my bowel instead says BACK ON SCD NOW.

The most recent time I got off SCD was August 3. I had finished my semester in Germany and a friend and I were going to go backpacking around Europe. It would be very inconvenient to follow SCD so I decided not to and started eating bread and stuff again. Day one was fine. Day two I had bloating and a little bit of pain. Day 3 I had something heading towards D and more bloating. I decided to return to SCD. Symptoms did not get any worse after that and started improving the next day. I don't even want to know what will happen if I get off of SCD for a longer period of time. I really think it is holding a full fledged flare at bay.

(Protip: how to eat SCD while backpacking? Lots of bananas, apples, peanut butter, tomatoes, and canned fish. That was basically my diet for the rest of the trip... Ate some chicken at restaurants and steamed veggies when I was sure they were SCD legal)

I can however cheat sometimes on SCD without my condition changing. Currently I'm not cheating at all until my symptoms go away entirely, though. But for a while I was eating a few cookies every so often, no more than a couple of times per month, and nothing changed.

I am also looking for other treatments since I still have some symptoms...

But the good news is that I studied abroad in Germany between March and now and had a good time and no major UC problems. I was diagnosed in UC in December after a sudden severe pancolitis flare. At that point I was all set to go to Germany but my GI tried to gently discourage me. I went anyways and I'm glad I did! He didn't think I would stay in remission the entire time. And I guess technically I didn't, but I can't really say I'm flaring, either.
Posted 8/29/2013 12:36 AM (GMT 0)
SCD was the foundation that set me free from all those nasty mood altering drugs...
For me it was not the only answer but took me to (square one) so I could listen to my body.
If our bodies can't handle certain foods... don't push it. Damage happens slowly while we just say I'll try it one more time.

This comes from someone who has been at this for a very long time.
This is meant for any & all readers..

Dennis
Posted 8/29/2013 3:39 AM (GMT 0)
So you can handle legumes? I thought peanut butter wasnt allowed on SCD?

Glad you had a great trip! You'll never forget the experience and always be thankful! I also studied abroad/traveled around Western Europe in college. Best thing I ever did.
Posted 8/29/2013 4:28 AM (GMT 0)
I am eating paleo which is fairly close but also omitting eggs and nightshades until I get into remission again. I 'cheated' and had a burger on a gluten free bun this weekend and paid the price for 2 days. Almost instant discomfort, extreme extreme bloating, stomach pain and more blood than usual. A saving grace is a new cookbook I bought last week called 'Against all Grain.' Have already made several recipes and when I do hopefully reintroduce eggs she has some amazing baked goods I look forward to trying. I also have been making my own almond and coconut milks to ensure I know exactly what I am eating and have no preservatives until I get this all sorted out. Very easy to make and delicious.
Posted 8/29/2013 4:42 AM (GMT 0)
ulcerative coilitis took my large intestine in july of 2011........I wore a bag for almost two years......I'm just going to say that life with a bag was better than life with ulcerative coilitis...and to tell you the truth once diagnosed we only have so many years before the docs want to take it or it will turn into cancer...so what I'm trying to do is to ease your worries....I was lucky and have had a full reversal and they made a small pouch out of my small intestine so I still go and go but I'm at peace with what I eat....And best of all I don't hurt anywhere near like I did before....life is better now by far......
Posted 8/29/2013 9:06 AM (GMT 0)

jiggins said...
ulcerative coilitis took my large intestine in july of 2011........I wore a bag for almost two years......I'm just going to say that life with a bag was better than life with ulcerative coilitis...and to tell you the truth once diagnosed we only have so many years before the docs want to take it or it will turn into cancer...so what I'm trying to do is to ease your worries....I was lucky and have had a full reversal and they made a small pouch out of my small intestine so I still go and go but I'm at peace with what I eat....And best of all I don't hurt anywhere near like I did before....life is better now by far......

I'm pleased you've found a solution that works for you. But for many, surgery is always the last option. I know I will continue to try to find a suitable solution that doesn't involve. Plus cancer depends on many other things. You won't necessarily get it, just because you have UC. You always have to consider age, lifestyle, health, genes, etc.

With diseases, nothing seems to be black and white. What happens to one person or what works for one person, doesn't mean it will for the next.

Anyway, what is this SCD? And surely peanut butter isn't good as it's high in fibre?
Posted 8/29/2013 1:29 PM (GMT 0)
Peanut butter is allowed on SCD as long as the only ingredient is peanuts.
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