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How often do you go in the middle of the night?

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Ulcerative Colitis
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Posted 8/27/2013 11:27 AM (GMT 0)
Most of poo action occurs between 3 - 730 in the morning totaling on average 6 trips depending on how much and what I eat.

I started taking Canasa last Saturday (I don't have any blood, my stools are ribbon like, my main problem is urgency and frequency), but I am just curious how many times everyone goes during this timeframe.

Also, for the folks on Canasa, how do you like it? See any improvements?

 

Posted 8/27/2013 11:53 AM (GMT 0)
I have more action in the morning as well, but normally I go upon waking at 6:20am and then once or twice more after coffee/break, and the usually when I get to work. Then things quiet down for a while typically. Usually some post lunch, late afternoon action too.
As to the canasa, and rowasa for that matter, I do not think they are helping. I feel the inflammation has been creeping back into my rectum lately despite the rectals, so I switched the rowasa for hydrocort two nights ago and I'll give that a go for a couple of weeks.
Posted 8/27/2013 12:06 PM (GMT 0)
I don't wake up in the middle of the night with the need to go unless I've eaten something that didn't agree with me or I have a bug. Now if I'm flaring its a different story. For me I only go once or twice a day in the morning.

I use canasa and I think it makes things more oily for lack of a better term. The enemas I don't have that problem with but I don't use them too much right now.
Posted 8/27/2013 12:21 PM (GMT 0)
The only time I've ever gone in the middle of the night was my first flare. I would wake up and be wide awake as I have every been instantly and have to squeeze or else I new blood etc. would come out. Not fun.

I have used Canasa and I liked Rowasa better. I have used both simultaneously, C in the morning, R at night...

Posted 8/27/2013 12:34 PM (GMT 0)
I normally don't get up in the middle of the night - if I find I do need to get up in the night then that is a VERY bad sign for me and I would be getting in touch with my GI asap.
Posted 8/27/2013 1:00 PM (GMT 0)
I don't wake up to go in the middle of the night. I also take Canasa and it helps me quite a bit.
Posted 8/27/2013 1:51 PM (GMT 0)
I usually wake up once during the night to poop. It can be anywhere between midnight and 6am. I am still on 12.5mg of pred so that might have something to do with it. I take Rowasa and it certainly helps me some.

Generally, I have one nocturnal poop and a couple more poops within an hour or two of waking up. After that I am good for the rest of the day and I can forget about uc for a while.
Posted 8/27/2013 3:09 PM (GMT 0)
Haven't gone at night at least 3-4 months now. I remember I was up almost every hour during my flare.
Posted 8/27/2013 4:22 PM (GMT 0)
Thanks for the responses so far, although I go in the middle of the night a few times, luckily I am able to fall back asleep. And the same applies for me, once I am done in the morning, I am usually good to go for the rest of the day/evening and can forget about my UC.
Posted 8/27/2013 4:53 PM (GMT 0)
Maybe 4 times in 24 years..so, no I don't, even when I'm flaring. If I'm flaring, I'll have the enema in, so that might be why.

I suggest you get on the enemas rather than the suppositories.


q

Posted 8/27/2013 5:32 PM (GMT 0)
I don't get up in the night currently but when I was flaring, I got up a ton. I think canasa is very helpful but at the time when I was getting up in the night, it did nothign for me because I wasn't able to retain it.
Posted 8/27/2013 6:00 PM (GMT 0)
one of my cats gets me up about 2 in the morning - don't know if he needs to poop but he is very insistent so i'm obliged to comply with his desire to get out NOW -

I usually pee while i'm up -
Posted 8/27/2013 7:44 PM (GMT 0)
I am flaring, have been for forever, for the past 1 or 2 years ( I have lost track ) I am up a lot. I am happy with 2 , but last night it was four or five. My body has adjusted though, I'm not the zombie I should be.
Posted 8/27/2013 10:45 PM (GMT 0)
Also, do you get a persistent headache/sinus ache from it, not bad, just constant? I hope yo can get some sleep and try and stay positive that you can back to where you were.
Posted 8/27/2013 11:55 PM (GMT 0)
When flaring its at least once or twice a night.
Posted 8/28/2013 12:20 AM (GMT 0)
Luckily I don't wake up at night for a BM. I have however during a flare woke up with abdominal discomfort and gas :(
Posted 8/28/2013 1:01 AM (GMT 0)
Most of my BMs were at night, usually between 11 PM and 6 AM. I was on prednisone at the time and my GI told me part of the problem was from the prednisone wearing off at night. It helped a bit to split my prednisone dose and take it throughout the day (until 4 PM). I would typically have 8-10 BMs during that time period (sometimes less because I would give up on sleep and stay on the toilet)... I got in the habit of "waking up" to eat breakfast REALLY early because eating (and taking meds) seemed to settle my GI tract a bit.
Posted 8/28/2013 1:07 AM (GMT 0)
I go 1-2x a day lately and it's always first bm at 4-6 am and the next 10 am-1 pm. obviously, i'd prefer to go before bed since the middle of the night is freaking annoying, but at least it's not 30x a day because it's been that bad. I always look for the positive with this disease!
Posted 8/28/2013 1:08 AM (GMT 0)
When I was first diagnosed I was put on Canasa and it helped A LOT. I got into total remission and stayed there for about 6 months. But, when the next (and final) flare started, there was nothing that could help me. I would get up to go at night at least once an hour. I didn't sleep for more than an hour at a time for over 4 months. So, I'd say most nights of my flare....from 10pm till 10am, I would "go" at least 10 times, often more. I don't know how I survived that! I hope you get to feeling better very soon.
Posted 8/28/2013 5:35 AM (GMT 0)
I am currently in a flare and having about 5 BM a day. Usually 3-4 are between 2AM - 9AM and the other 1 or 2 are throughout the day. Meds are 1 Hydrocort at night 2 Llialda (one at night, one in the morning) 20MG prednisone (morning). Starting Canasa today to see if it helps any.

Natural Calm has helped, without it I could barely get any stool moving.
Posted 9/17/2013 2:47 PM (GMT 0)
I have been in a flare since last December, currently on oral pentasa and 15 gm of pred. When at night, I usually have 2-4 BM. I am really tired of keep getting up at night and rushing to the toilet. I hope sometime in the future I will find a way to have this unpleasant journey under control.
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