Remission without meds??

I havent met a single person yet.

I have been lucky so far in that Ive been ok with salofalk, however I wasnt watching my diet and not really taking much for natural supplements, but I recently decided to stop the salofalk. I have to say that I think that so far Ive been able to luck out with this disease in that Im not experiencing as many symptoms as others do, I dont run to the washroom all day and have never really experienced diarrhea. I go once a day (first thing in the morning) and thats basically it, but the bleeding is always there. Ive had times where there was a lot of tissue as well. I never experienced pain in the abdominal area, but over the last month I have been experiencing diarhea like pains and nausea that comes and goes after a few seconds, but I dont actally have a bm. the next morning my bm is usually a soft-ish consistency which to me seems normal, its just the bleeding. If I do eat something I know is bad for me, Ill feel that urge to go and just blood and tissue will come out.

Im thinking about going back on salofalk suppository and sticking strictly to the foods I know are ok for me, and along with my supplements (taking l glutamine, omega 3 tabs, grass fed gelatine, consuming coconut oil, chia seeds, and recently placed an order for oregano oil as I read some good stories about it and how its helped others stopped the bleeding). I know that dairy is bad for me, and so is sugar, so I dont consume either (I use honey to sweeten whatever I would have used sugar in before and I make my own coconut milk ice cream for example).

Im tired of this disease :( Im a single parent, and a full time college student and I know I shouldn't pity myself as we all go through these experiences and we all ave responsibilities, but today, I just feel like feeling sorry for myself :( some days are ok, some days I feel in control of my body, but alot of days, I don't, some days I feel like Ive lost total control of it.

LDN isn't medicine?

Most people who have UC will eventually go into remission for a day, a month, a year even if not treated. It's how UC works - it's a disease of flares and remissions. The problem is that if you have a one-week remission after ten years of flaring, it really doesn't make you feel much better.

I have asked my GI this on countless occasions. He is from the medical establishment but has had a significant amount of patients achieve remission with diet change and things like Olive Leaf Extract, Wild Oregano Oil, etc and without UC meds. He mentioned his view on UC meds has changed a great deal in the last few years (He has been practicing over 20 yrs). Also, he has said the same as Judy2 has said that sometimes you can go into remission for no rhyme or reason-it just happens. His view now is simple..."There is no such thing as 'alternative' medicine, there’s only stuff that works and stuff that doesn’t."

Best...

Have been in a med-free remission for over 7 years. Got there by following an antifungal program for a time (grain-free, low sugar/carbohydrate) along with natural antifungals and probiotics. For me, I realize now my UC symptoms were fungus/yeast linked. I was a good candidate as I had taken antibiotics as a teen, birth control pills, lived in damp, water-damaged homes. Felt significantly better after 2 weeks on program. Had MAJOR fungal die-off so was miserable for the first week or so. I am now also gluten-free and try to limit processed foods. No glimmer of symptoms since.

kim123 said...
Have been in a med-free remission for over 7 years. Got there by following an antifungal program for a time (grain-free, low sugar/carbohydrate) along with natural antifungals and probiotics. For me, I realize now my UC symptoms were fungus/yeast linked. I was a good candidate as I had taken antibiotics as a teen, birth control pills, lived in damp, water-damaged homes. Felt significantly better after 2 weeks on program. Had MAJOR fungal die-off so was miserable for the first week or so. I am now also gluten-free and try to limit processed foods. No glimmer of symptoms since.

kim, Im pretty certain that mine was caused by the overuse of antibiotics. When I was pregnant a few years ago, I was put on antibiotics 4 times and then right after pregnancy, I ended up with bronchitis, sure enoughm antibiotics again. Not once in my lifetime was I ever told by any doctor that I when we go on antibiotics, we should be taking a probiotic as well! So, shortyl after my pregnancy, I started having some bleeding. I of course assumed (and was told by a doc) that it was jut post-pregnancy hemmoroids and was given a cream for it. Fast forward a couple of months, weird white tissue starts to show up in the toilet, and me being ignorant, brushed it off for a year until finally, I saw the first tinge of blood after eating carelessly (the way I always did) and rushed myself to the hospital and was diagnosed with UC shortly after.

Just curious, when you say you had major fungal die off and was miserable, how exactly were u feeling when u were miserable? Im pretty sure it may be what I am experiencing. What was your diet like during the time u were following an anti-fungal program? What do you mean by natural anti-fungals? I would love to find out more from you. Right now Im eating alot of organic meat, some veggies (cucumber/zucchini, onions) and some fish. Im so bored of this diet and am so anxious to be able to start incorporating more into my diet!

Post Edited (Maria2007) : 10/17/2013 7:35:45 PM (GMT-6)

There are recorded cases of beating uc without meds where people believe that uc is caused by a bug which actually grows and develops in the lining walls of the gut and elsewhere and thrives because of what is in the food we eat. They say uc loves and feeds on sugars yeasts and all manner of cultures that grow and develop in the human system because of what we eat. The simplest way to see this is look up some of the food groups and how they are grown and what is their journey from the farm to the human gut. In plenty of foods it is a nightmare of chemicals additives colorants shelf life enhancers irradiations and genetic modifications. The human system can not take this. the advocates of the dietary method will tell you a thousand times over to eat natural foods only and there are many herbal and other remedies to take also

I don't know off hand anyone who ended a flare without meds. Some near examples might be imagardener2 but she uses rectal meds for stubborn flares. InSoFla used LDN and talks as if it is natural when in fact it is an unnatural medication. It may not be patentable or acceptable to big pharma but it is not anywhere near natural. I needed antibiotics to get into remission.

But maintaining remission without meds is a different story. Besides myself there are dozens here and many others who no longer participate in the forum who get by perfectly well without meds, using diet, supplements, or whatever.

about 10 years ago after having no luck with canasa or asacol I went off of the meds and went on a very strict low residue diet. After a few weeks my symptoms went away and I was in remission for about 9 years give or take with a few blips along the way. I have mild ulcerative proctitis and when it flares I go about 8 times a day with a lot of pain/bleeding/mucus - the whole shabang!

I'm currently flaring and on prednisone and 6MP and every time I go off the meds I get worse so maybe the last time it was just luck or a coincidence. Everyone's body is different and I wouldn't necessarily recommend going off your meds without at least talking to your doctor first and having a back-up plan.

I went into remission without meds or without supplements or following a particular "diet" except my own "don't eat what hurts and stop all alcohol" diet if you call that a diet.

I took Asacol for 2 months after I was already in remission (because at the time I just blindly did whatever my doctor told me to do) and all it did was give me agonizing joint pain and maybe make my hair fall out (not sure I actually blame the Asacol for that).

If you're not intolerant to the mesalamine-based drugs, I'd personally stay on them (rectal and oral). Mesalamine is thought to reduce the risk of colon cancer and is a relatiely safe drug to take long-term.