Omg my body hurts, is it remicade?

I had my third treatment oct 2. I have heard of body aches from the remicade but couldn't find it on here. I am tapering off steroids and at 15 mg a day.

I still have D but no bleeding. The D is so bad it is stirring up my hemmroids. I almost wonder if my lialda is not working.

I have a call into the dr but need advice on what to ask him.

I am going to another dr to talk about surgery because I'm tired of being in pain and crapping all the time.

Ok dr just called and told me to go back to 20 mg steroid and they are upping my remicade.

So after all this, does the remicade cause body aches?

No premeds

Usually my hip hurts 3 days after, then it goes away. I remember reading someone's joint hurt on a certain week after every time. But couldn't find it.

I definitely notice body aches the day of my infusion and days afterwards. It especially causes pain in my knees, hips, and hands/wrists. The nurse that gives me my remicade told me to drink extra water the day before your remicade, the day of, and the day after (so drink more than the normal 6-8 glasses or whatever it is lol). He said they've found that it helps with the body aches and flu like symptoms people get after remicade infusions. I also receive tylenol before my infusion and I usually take more later that day and the next day.

However, the body aches could be a combination or symptom of tapering from pred too. My body has never hurt as much as it did when I was on pred/tapering pred last year. I even went and saw a rheumatologist because I thought I had rheumatoid arthritis it hurt so bad!
I'd just tell your doctor about the pain you've been experiencing and ask what it could be caused by and what to take/do to help.

Hope you feel better!

When tapering off Prednisone my knees really hurt. But I've also had some joint pain for several days following a Remicade infusion. Can really feel it in my ankle which I broke a few years ago.
Also notice sensitive teeth for about a week, had the same side effect from Prednisone.

Ask for premeds before your next infusion and see if they help. I take Benedryl and Solumedrol and I don't have the body pain anymore.

When I tapered off pred I felt like I was dying. I have been lucky and never needed any premeds with remi.

I have been on Remicade since January 2012, so about 21-22 months. The first 6-8 months my body was still healing and I wondered if the medicine was really working, but they had scoped it after two months and I showed a colon in remission.

I developed body aches with Remicade after about 6 months on the medicine. Starting August 2012 I began having different sick feelings that have bee attributed to almost anything from mono, to staph infection in my throat, to tonsillitis. I have run upwards of $10,000 in lab work trying to find the cause of these concerns, but none have come back with an answer. We just recently had the Remicade antibody test (called the AnswerIFX I believe) run, and it showed all my levels as allowable... and my doctor wants me to continue on the Remicade.

I delayed an infusion this spring by one week and my disease was back with a fight, and having that for only a couple short days made these body aches a walk in the park compared to that.

My body ache symptoms are as follows:
-I get horrible elbow aches if I try to do any repetitions such as lifting weight.
-I get transient joint pains, mainly in my fingers.
-I get these bad joint aches that used to go all over my body in a transitory fashion, but now remain mostly in my upper body and head.

I take two Tramadol (prescription pain reliever) every morning with tylenol and slowly enjoy my body coming out of the pain as it kicks in. Usually it is enough to last me all day unless things are really wearing on me such as stress.

Ask any questions you want, as I'm in your shoes and have spent hundreds of hours approaching the issue.

Best of luck.

I have been on remicade/infleximab now since March last year. Every 8 weeks.

Just recently after my last infusion I started aching all over, when that went away it turned into joint pain. It's generally ok during the day when I'm working but at night, especially in bed the pain is unbearable.

My wrists, fingers, shoulders, knees and ankles all hurt and are stiff. I feel like a cripple some nights.

Went to my gp a few weeks ago who did blood tests for all arthritis and came back clear.

I just had my appointment with my specialist yesterday and they done some blood tests and it seems I have remicade induced lupus.

Scary!!

Means I have to go back on prednisone (god help me) for 8 weeks. Starting with 30mg for 3 weeks then tapering off 5 every week after. I hope it works. Also on plaquenil

Post Edited (Pirramimma) : 10/24/2013 3:07:35 AM (GMT-6)

I don't take Remicade, however, was taking a few others like 6MP, Mesa, etc. I would sometimes get body aches and even fevers, and thought it was the 6MP. As a test, I went without drugs for about 3 months.. and still got the aches, fever esp after a flare up or D. bout.. so my conclusion is that just having inflamation like UC can cause aches etc., and it may not even be the meds. Of course when I'm in remission (if and when it happens by chance), then the aches are almost non-existent.