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Ulcerative Colitis
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Posted 11/1/2013 8:51 PM (GMT 0)
All, I hope you remember me asking 'Is trapped gas in the Sigmoid an early sign of Sigmoiditis?'. I have been bleeding since 3 weeks and lots of rumbling/gurgling in the sigmoid. I insisted my GI for a Sigmoidoscopy.
Today I went through the sigmoidoscopy which revealed left sided mild colitis with mild patches in the rectum.

I proved I'm right to my GI as he has been telling me rumbling/gurgling is common in people with bowel disorder.
After I told him I have been bleeding he said plan A is to go for the stool test to measure the Calprotectin parameter which turned 27 which he said less.
Couple of days back I called him and insisted, after a long discussion he agreed for Sigmoidoscopy.

So this has been a great learning for me - my gut rumbling/gurgling is a symptom of the inflammation.
And couple of days back the farting was with a foul smell. This means the bad suckers have increased in the colon and caused the immune system to attack? Is my understanding correct?

Right, now coming to medication part now - I have been prescribed 'beclometason mesalamine enema(3g) 100ml'. My GI told this enema will reach out the sigmoid and little upper sigmoid as well.
I wonder why I have not been prescribed Pred. Is it because the inflammation is mild?

Has anyone been prescribed 'beclometason mesalamine enema(3g) 100ml' and has any experience?
Posted 11/1/2013 9:50 PM (GMT 0)
Mesalamine enemas are a great choice. Prednisone is reserved for people who are very ill. You folks in the UK have the unique choice of a mesalamine enema mixed with a corticosteroid. This should help you, but it is not a long term solution.
Posted 11/1/2013 11:22 PM (GMT 0)
Sara,

I can often tell too how much of my colon is inflamed. So good thing you insisted for the scope.

Were you diagnosed with proctitis before? Because you're asking if your inflammation is increased. I'm not sure if I understand your question right. But UC normally starts in the rectum and works its way up - all the way to the cecum. That would be called pancolitis. I happened to have pancolitis at least 2 or 3 times in my 11 year old UC "career". The sooner you do something, the better.

I think the mesalazine enema is good. He's right about how far they reach. However, if you don't react to it or react bad, I would ask for Hydrocortisone enemas. Since it's limited to the sigmoid I don't see why you should take orals right now.

Take care of it as best as you can now before it goes higher up.

Hugs girl
Posted 11/2/2013 6:26 PM (GMT 0)
Andrina, Thank you for your words. My initial diagnosis was delayed by a month which caused the disease to spread up to the descending. After 24mg of pred the inflammation calmed down.

But then after tappering down it started. Now I'm bit confused how come the rectum is affected with two to three ulcers but the sigmoid and the descending were reddish more than my rectum. So this does mean that the mesalamine enema(Salafolk) was protecting the rectum much effective than the oral mesalamine(Pentasa) protecting the upper colon.

I think Pentasa is loosing its effectiveness in me.

I think for me stress is the main parameter which is causing the flare because I work as a software professional. But getting to work in the morning is also a stress. Every morning travel stress counts in addition to the stress at the work causing the immune system to strip off the mucosa layer slowly and slowly.

I watched a video at youtube about the gut bacteria. When we get stressed, the gut becomes more alkaline which is the environment the pathogens love and they multiply.

What medication are you currently on?
Posted 11/3/2013 8:13 AM (GMT 0)

sarav84 said...

I watched a video at youtube about the gut bacteria. When we get stressed, the gut becomes more alkaline which is the environment the pathogens love and they multiply.


Could you share that video?

sarav84 said...
What medication are you currently on?


If that was meant for me: I'm currently on Imuran, 150 mg.
Posted 11/3/2013 8:42 AM (GMT 0)
Sure here it is - www.youtube.com/watch?v=xCPGio3IQXY

How do you feel now with Imuran? I heard that Imuran is hard on the Kidneys - how do you react to Imuran?
Do you do regular Kidney function test?

And what diet do you follow?
Posted 11/3/2013 7:49 PM (GMT 0)
Sara, thank you for the link.

I react fine to Imuran. No kidney or liver issues. I had it back in 2005-2007 and I started flaring so my GI had me lay it off. Which was a mistake. Now I'm back on it and I'm feeling great. I have regular blood work.

I eat what I want. I only avoid rice, grains, corn and milk. Sometimes I still eat those things but my tummy just doesn't like it.
Posted 11/3/2013 8:10 PM (GMT 0)
Nice to hear that.
You said you avoid rice. So what do you take for carbs?
Do you take yogurt?

I too avoid corn. Because they are nuts on my gut.
But I eat rice because that is the only carbs I take because I from southern part of India :-) where people love rice.

At the moment I just buy yogurt and prepare buttermilk by blending yogurt with water. So buttermilk is the only thing I'm having now. :( This disease sucks!!!
Posted 11/4/2013 12:04 AM (GMT 0)
I eat white bread or potatoes. Pasta is ok too.

I'm glad you can eat rice. I love rice and I eat it in small amounts but if I eat bigger amounts I get cramps.

I eat yogurt yes. But I buy either lactose free or make it myself.

Has the enemas been helping so far? Hope you get better soon.
Posted 11/4/2013 8:03 PM (GMT 0)
Ok. I don't know whether I'm now lactose intolerant or not. Before being diagnosed with UC I use drink milk a lot - almost half a liter per day :-) After the diagnosis I read at several web pages and stopped milk as they said if you have UC stop milk.

I now eat yogurt a lot - only organic. But I couldn't find any yogurt without sugar.

I don't know enema has been helping or not because I still bleed and get cramps. Today after lunch(well boiled white rice + added turmeric powder) I was getting a left sided pain and cramps - I went to the toilet - small unformed stools + + mucus + fresh blood.

I take psyllium powder to avoid diarrhea. I starve a lot which causes gastric pain. I think I secrete lots of acid.
I read somewhere that the pathogens can't live in acidic env but I think over acidic env will also kill the good bacteria; I don't know..

Hell lot of things to still learn.
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