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Ulcerative Colitis
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Posted 11/7/2013 12:54 AM (GMT 0)
Been in remission for about a year.

Been seeing tiny bit of blood on poos, and sometimes a little bit of white stuff. (like when you poach a egg in water)

Perhaps for about 2 weeks.

If I didn't look in the bowel I wouldn't know if there was any blood. I normally have to flip poo over with a stick to see any blood.

Occasionally there is an idication of blood on paper, but it is so little.

Bowel motion once in morning and once at night which is  normal for me.

Poos firm and bulky.

No urgency

On assacol.

What do I do? Leave it and see if things improve or?????

Post Edited (Jessicaaa) : 11/6/2013 5:58:42 PM (GMT-7)

Posted 11/7/2013 1:01 AM (GMT 0)
How much Asacol are you taking? Did you use any other meds in the past to help put you into remission? I'm saying you have warning signs and you need to jump on this now before it is too late.
Posted 11/7/2013 1:04 AM (GMT 0)
6 tablets. Which is 2400mg

Last time (first time) I used prednisone which cleared it up in a day. (symptoms wise)

I rang my doctor and he said, if it gets any worse to come in.

Orignally when I saw any blood on the poos I had a pinching pain in my rectum for a few days. Which I thought was a hemroid type problem.

Post Edited (Jessicaaa) : 11/6/2013 6:15:58 PM (GMT-7)

Posted 11/7/2013 1:11 AM (GMT 0)
If you can, I would try getting your doctor to double your Asacol dosage, at least for a while. This is a disease where just waiting to get worse and then going in to see the doctor is bad medicine. The more your disease gets out of control the harder it is to treat. You don't want that to happen if you don't have to.
Posted 11/7/2013 1:15 AM (GMT 0)
I could just double the dose my self? I thought the upper limit was 8 tablets a day though? 3200mg
Posted 11/7/2013 1:19 AM (GMT 0)
Yes you could up it yourself if you have enough pills and you don't run out. The max dose is 4800mgs. I would do if for a whole month and re-evaluate after that. If you are better you could drop back down to the 2400 mgs dose. If you haven't gotten better then I would make an appointment ASAP.
Posted 11/7/2013 1:23 AM (GMT 0)
Do you think if I go to 4800mg and it works then go back to 2400mg, 2400mg wont work for maintenance?

Like a tolerance effect?

Posted 11/7/2013 1:55 AM (GMT 0)
Instead of increasing your oral meds, a more effective treatment would be to add rectal mesalamine enemas.
Posted 11/7/2013 2:22 AM (GMT 0)
Jessica, 4800 mgs is max dose and 2400mgs is the usual maintenance dose. It's tough to answer your last question because everyone is so different. Most people could go back down and be ok but it is also possible you could be correct on that. In most cases you would be able to go back down and be allright. Rectal meds could be of a big help but that might not be an option for you without seeing the doctor first.
Posted 11/7/2013 3:52 AM (GMT 0)
Geez gary...get on the rectal med suggestion before the double the oral dose suggestion.

Jessica...go to the doctor now..it's already worse. Request a prescription with refills for mesalamine enemas.
If you have probiotics get on them as well.

Keep us posted how it goes...please don't wait.
q
Posted 11/7/2013 7:38 AM (GMT 0)
I made an appointment for next week wednesday.

When ever I go toilet,  the blood is always just on one part of a piece of pool. Which makes me think i'm bleeding from just one single spot?

I have this bludge of ball that comes out and goes back in every time I go toilet, but the gp couldn't feel anything, because this is what I thought was bleeding.

With fibre, is it often advised to lower intake due to increased transit time of bowel motions or because of irritation to colon lining?

Post Edited (Jessicaaa) : 11/7/2013 2:22:03 AM (GMT-7)

Posted 11/7/2013 12:37 PM (GMT 0)
Ask the doc for rectal meds, and you should double up on the probiotics.
Posted 11/7/2013 1:00 PM (GMT 0)
 

                    I have been in remission as well for about a year now...Oh felt so nice, until I too started noticing a bit of mucus and blood. I know I went off my diet and blamed it on food. I also became so bloated like I was pregnant.

So yesterday I drank a big glass of prune juice just to clean my colon out. Lots of running to the bathroom but now this morning I had some gas and had a normal bm...praise god! Now i can hopefully start fresh on my diet which is avoiding bread and meat and sugar....best of luck too u..I hope this helps!  turn   

Posted 11/7/2013 1:36 PM (GMT 0)
Jessicaaa, if you are seeing blood and mucus in your stools, then it means your uc is getting worse and left untreated it could likely result in a full flare up of your uc; which can be pure misery. I would agree that a melamine enema (a.k.a. rowasa) would be good, and you could ask to have your asacol hd doubled as well to 4,800 mgs. Catch it early before it gets worse. Everyone has different maintenance doses, and you can stay on both of these at these dosages indefinitely (no need to reduce them afterwards).
Posted 11/7/2013 1:51 PM (GMT 0)
This past winter/spring I waited way too long to do anything medically when I had the same signs as you and I paid the price dearly. I had my worst flare ever, which I am still battling, and I think I could have squashed it early had I taken action and got back on the rectal meds at the first signs of a coming flare.
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