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cautiously optimistic about Wild Oregano Oil (85% Carvacrol) Part II

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Ulcerative Colitis
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Posted 11/9/2013 4:47 PM (GMT 0)
Continuation of www.healingwell.com/community/default.aspx?f=38&m=2835269
Posted 11/9/2013 6:55 PM (GMT 0)
It would have been nice to keep this thread together. I have received numerous messages from people who like to read through all the posts together as it answers questions before they are asked. It is extremely helpful to have all the info together. Not sure I understand the logic of breaking this up but I guess that is your call.
Posted 11/9/2013 7:27 PM (GMT 0)
I don't understand the logic behind splitting it up either. Is it due to a technical limitation on the site?

Post Edited (StealthGuardian) : 11/9/2013 1:50:31 PM (GMT-7)

Posted 11/9/2013 8:42 PM (GMT 0)
Hi Notsosickly, Would you kindly consider keeping these threads together? I think one of the great values of this board is the information. When you break it up, others may miss out on critical information and have to search the site when there really may be no need to do that. This thread has been on topic throughout and while it may have 17K+ views, it does not have that many posts(I have seen several go over 500 posts before splitting up-we only have 240). Please reconsider.

Thank you. Protocolteck
Posted 11/10/2013 12:36 AM (GMT 0)
I don't understand why this is a problem. There is a link to part II at the end of part I, and a link to part I at the beginning of Part II. Shouldn't be a problem to read them in order if someone really wants to.
Posted 11/10/2013 2:01 AM (GMT 0)
How is this effective? I haven't connected with this thread at all, my apologizes. I just don't understand how this can be effective.

Does it allow our colons to heal?
Posted 11/10/2013 3:35 AM (GMT 0)
Sibby, you can read back to the past thread mentioned in the first post. I believe it acts as an antibacterial which helps with candida and bacterial overgrowth. It's definitely an interesting topic and it sounds like it's helping people.

HW can handle a long post, it's not inability of the site to handle a longer post. The issue is navigation and readability for users. I am sorry to anyone that it has caused a problem. I have never found it to be bothersome to read a part I/part II. I did alert the board admin so he can review and make a decision about splitting the post. I was following the site protocol.

Has anyone tried grapefruit seed extract? that's supposed to have antibactieral properties as well. I took it for a long time without success but I haven't tried WOO. I would definitely give it a try.
Posted 11/10/2013 2:53 PM (GMT 0)
I used GSE to deal with a very bad case of thrush in my oldest when he was a baby (and on myself) but I didn't have colitis then. It helped, but didn't get rid of it completely, my son had to take a 3 day course of diflucan to get rid of it. We battled it for 3 months.

I do not know if it is the WOO or not but usually my colitis symptoms are most problematic at this stage in my cycle and so far I have had no issues what-so-ever!
Posted 11/10/2013 3:12 PM (GMT 0)
Thanks for the info momto2boys, I am happy you're feeling good :)
Posted 11/13/2013 8:00 PM (GMT 0)
Sadly, I have discontinued this treatment.  I worked up to 13 drops daily and saw an increase in mucus and no decrease in blood.  Stuck with it for 3 days at that dosage.

Lialda did work in the past for me, didn't work for others, just our make-up I guess.

Now I'll have to do things the old fashioned way and made an appointment to see a  new doc on Nov 22.

I hope this WOO does work for others.

Protocolteck, thanks for passing it along.

Posted 11/13/2013 8:19 PM (GMT 0)
Beanie- Sorry it hasn't help you. Hope your appointment goes well next week.
For some reason I have had a lot of noises on the left side of my colon today. Lots of gassy sounds and popping noises. I also had a lot of gas last night and some mucus (clearish) this morning. I am hoping it is related to the egg I ate yesterday. They often upset my stomach but I really wanted to eat one yesterday.
Posted 11/14/2013 12:22 AM (GMT 0)
Adding my 2 cents: I tried WOO after reading about it here and other sites and bottom line is I liked it. Took it for about 2 weeks, without reuterii for the first 10 days because I was lazy to order the rueterii. First I took WOO with water but switched to putting it with a spoon of evoo. EVOO+ WOO haha.
I was not bleeding so can't say it helped that.

WOO was beneficial, more regular and fewer BM's daily. My diet is modified Paleo, no gluten.
Given my dismal history with supplements having WOO actually be good not bad is pretty amazing because it is strong stuff.
WOO goes into my (very small) "keeper" supplement cabinet, along with wormwood and little else.
I'm going to try taking the reuterii without the WOO, perhaps replace VSL#3
Posted 11/14/2013 5:17 AM (GMT 0)
Quick update - On about week three now close to four.

No blood whatsoever
No mucus whatsoever
6-7 lb weight gain (approx 2lbs/week) since starting - never been able to gain weight in the past.
No urgency till just a bit before I have to go. Which I assume is like normal people, haha. But can hold it for a long time if need be now. Specially when out. Heck I held it off for about 5 hours the other day. Never done that before.
Once or twice per day - not always perfect but generally better than ever before. Pretty much always formed now. Depends a little on what I eat it seams though. To much of certain things and it loosens. Or to much probiotics cause the same.

Again: I have Crohn's Colitis so it may be effecting me differently than UC.

Not 100% but close. I'm going to continue this for a longer term with my Gi monitoring bloodwork weekly (blood work is fine so far and no liver issues or anything). Another few weeks at least. My approach is to treat this as a bacterial infection via long term antibiotics ( or similar to what they call triple antibiotic therapy) and see what success I get out if it. Either I myself (by noticing discomfort or dramatic worsening of symptoms or better yet full relief of symptoms) or my Gi via blood work and monitoring will know when to stop.

So WOO/Thyme Oil Capsule - 3 per day
Reuteri (via Primadophilis Reuteri Brand) 2-3 times per day specially just before going to sleep.
All organic and no preservative diet as best I can

Added over the last week:
Renew Life Ultimate Flora 100 Billion - Specifically for the Planaterum (iffy on the bifo but seems to be ok) before going to sleep.
Normal Yogurt (Plain Balkan Style) and Kefir Milk
Cinnamon Oil and Cinnamon/Clove Tea once per day - Similar to traditional triple Antibiotic therapy
Small glass or 1 cup (250ml) of 100% not from concentrate Cranberry juice in am and pm - (blocks bacterial adhesion supposedly)
I think that's it really.

Current Meds: Tapering on pred and at 25mg/daily now and Imuran 150 mg/daily

See how the next week or so goes I guess.... Usually things start to get bad when I get down to 20mg Pred. (pred dependent)

Post Edited (Canada Mark) : 11/14/2013 9:26:18 AM (GMT-7)

Posted 11/15/2013 1:16 AM (GMT 0)
Hi guys, I posted this on the other post about WOO "Oregano oil, zero meds…" I would love to hear from others who may have had the same experience I am having. Please note I decided not to take the WOO yesterday and today and am still experiencing the bloody tissue throughout the day. This is worse than it was before taking the WOO and the reuteri so Im worried thatI may have taken a step backealing :(

"So today is day 3 of WOO and reuteri. Im not sure how/if I am reacting badly to it. The first day I took only a couple of drops of WOO in a small glass of water before bed, no reuteri (believe it or not, it totally slipped my mind), day 2, I increased abit to four drops and took the reuteri. The first day I took the reuteri I felt bait of nausea but Im not really sure if it was that, or if it something I ate.. Day 3, I took 6 drops of WOO and the probiotic. All 3 days that Ive taken woo, Ive had some increased bleeding (still only one bm per day though and thats how Ive always been). I have been abit constipated though so Im hoping that's what caused more of the bleeding. Also, just earlier about an hour after taking the probiotic, I felt some urgency (which is rare unless I eat something really bad for me) so I go to the washroom and nothing but watery tissue (a little bit of pink) comes out. Ive never had just watery tissue come out.

Anybody experience or know what could be happening?? Should i stop the WOO and the Primadolphilus Reuteri for a few days and see how things go from there?"

I should add too that I am not on meds but I'm thinking about "caving" and going back on the salofalk suppository, and am on a few natural supplements; L glutamine, renew life's 50 billion probiotic, great lakes gelatine, chia seeds, astaxanthin, and omega 3 tabs. In the past, the Lglutamine has helped to reduce the bleeding and the tissue so have been taking it more throughout the day to try and "heal" my colon to what it was before I took the woo and the reuteri.

Post Edited (Maria2007) : 11/14/2013 6:31:32 PM (GMT-7)

Posted 11/15/2013 1:12 PM (GMT 0)
Sometimes it takes the body a while to adjust to different probiotics I started the Reuteri a couple of weeks before the WOO so I could gauge how my body responded to each thing.

As far as updates go, I had a pink spot in some clear mucus yesterday and today. Waiting to see what happens. I went up to 5 drops last night and will stay at a total of 10 drops a day for the next few days. 1-2 formed BM's in the morning.
Posted 11/15/2013 1:20 PM (GMT 0)
Tanks momto2boys. I haven't taken the reuteri or the woo in a few days because the bleeding and the tissue has been really bad. Im worried that if I keep up with it, Ill end up in the hospital :( I just don't know how to deal with this disease anymore, Ive been crying for days because I feel like Im back to square 1, trying to figure out what to do about all of this, I feel so hopeless today :'(
Posted 11/15/2013 2:13 PM (GMT 0)
Maria

I suggest you do use suppositories along with woo although getting some mesalamine enemas would be even better. That's not "caving", use everything available that helps and doesn't hurt you.

If woo makes you feel worse then either stop it or cut back and increase gradually.
I didn't use reuterii to start but when I did it caused me gas. I didn't stop it but cut it back to a gradual phase-in. Listen to your gut it will tell you what to do. Not all symptoms are immediate signals but you'll be able to figure it out.
Posted 11/16/2013 3:31 PM (GMT 0)
@Maria - You could try staying away from the Renew Life 50 Billion. That might help. Only reason I suggest is that normally I can tolerate them just fine. When I add the Reuteri things don;t work so well. When I remove the Renew Life 50 Billion things work quite well again.

I think it's the Bifo bacteria in them. Or at least for me. There's something about this particular combination.

Took me a while to figure this out via trial and error and when I think back I noticed this same type of thing with home made SCD probiotic yogurt and the 50 billion stuff.

---------------
Quick update:

My fistula that seemed to go away, or close up on the AA treatment for the first time in like 10 years opened up the other day again. Was depressing. The only changes I made just prior to this was adding Renew Life (which normally I'm fine with) and added a lot of resistant starch (which I also can normally tolerate in moderation). But in combo with the WOO/Reuteri this seemed to be a killer.. I dropped the 50 Billion, cut the resistant starch foods, Upped the Reuteri to 3 capsules per day and in two days it seems to have closed again and I feel much better.

So I will stick with the same plan less the Renew Life Products - Again the Bifo I think is my issue. Or more so the Bifo/Resistant Starch combo.
Posted 11/16/2013 3:35 PM (GMT 0)
@mom - How did you find just the Reuteri on it's own for the few weeks that you did this without the WOO? Do you think it made a difference at all?
Posted 11/16/2013 3:55 PM (GMT 0)
I decided to stop the woo and the reuteri completely for now and went back on the salofalk suppository. I was doing so well and felt like I was so close to remission, but after this combo, I think maybe it was just too much for my body to handle at once and so Im back to the same amount (if not more) bleeding and a crazy amount of tissue. Yesterday I ate mainly bone broth (with some meat, and some veggies that I know I tolerate well), homemade coconut milk ice cream that I make myself and a couple of boiled eggs. The thing with my condition is that although most people with UC seem to suffer from diarrhea, I suffer from constipation and by taking in mostly liquids throughout the day, my bm will have a better/softer consistency the next day so I think its a matter of having my colon not work so hard at pushing out the bm. When I didn't know much about diet during my original diagnosis (mistaken diagnosis based on the bleeding) was haemorrhoids (I had just had a baby then so it was an automatic assumption based on what my doctor thought), I was requested to go on a high fiber diet. The bleeding was still there, but it wasn't nearly as bad and then once I received the correct diagnosis (UP) I remained on the high fiber diet along with the salofalk suppository and went into remission for a few months.

Im thinking ill stick to what Im doing now, see how I do and once things get better, if the bleeding is still there, Ill consider starting the reuteri and stopping the renew life probiotic but slowly with the woo.
Posted 11/16/2013 5:32 PM (GMT 0)
Good luck, Maria!
@Mark- I did pretty well on the reuteri, I started with the pearls, one a day and them after two weeks switched to 2 a day until I ran out and switched to the capsules. I think it helped me a lot. Now I take two capsules of the reuteri and 100 billion garden of life probiotic. I had no bleeding at all today and just clear mucus again. I upped the woo to 5 drops twice a day yesterday.
Posted 11/16/2013 5:32 PM (GMT 0)
Good luck, Maria!
@Mark- I did pretty well on the reuteri, I started with the pearls, one a day and them after two weeks switched to 2 a day until I ran out and switched to the capsules. I think it helped me a lot. Now I take two capsules of the reuteri and 100 billion garden of life probiotic. I had no bleeding at all today and just clear mucus again. I upped the woo to 5 drops twice a day yesterday.
Posted 11/16/2013 6:05 PM (GMT 0)
Are you guys using the drops or the capsules? Are the capsules effective?
Posted 11/16/2013 7:07 PM (GMT 0)
I take capsules - but they are slightly different:

Brand: Health First Orega Supreme
Contents per Gel Cap: WOO/Thyme Oil
Thyme (Thymus Vulgarus) - 63% Carvacrol 26mg
Oregano (Origanum Vulgare)- 80% Carvacrol 40mg

I have drops but these are easier and no taste in the mouth etc.
Posted 11/16/2013 7:08 PM (GMT 0)
I am using the drops, 80-85% carvacrol mixed with water and taken with breakfast and dinner.
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