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Colonoscopy done today need advice on meds

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Ulcerative Colitis
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Posted 11/21/2013 12:18 AM (GMT 0)
My daughter had her colonoscopy today and it showed internal hemorrhoids and mild on severity of left sided UC. Inflammation noted in the transverse colon. Her Dr prescribed her Rowasa enema to start tonight and Apriso every morning.

My only concern is that she took Asacol when she was first diagnosed and after 2 months of taking it she got pancreatitis. Also right before her colonoscopy today she was taking Canasa and there was no improvement, she seemed to have only gotten worse.

Has anyone had success with Rowasa and Apriso, though asacol may have caused them pancreatitis and no success with canasa?
Posted 11/21/2013 12:37 AM (GMT 0)
Hi,

Sorry about your daughters diagnosis.  I can understand why Canasa didn't help....it would not reach far enough to get rid of all inflammation....the Rowasa would be a better choice as it would reach further up.  I would be cautious about using the asa meds after she had Pancreatitis using Asacol.  They all have the same active ingredient (Rowasa included).  I assume the Dr. knows about what happened last time (if it is not the same Dr.)  I wonder if Colozol would be a better choice.  I do like the idea of treating from both ends, but I would watch carefully for any signs of Pancreatitis. 

There are also choices of steroid enemas and foams if the asa component is a problem.  As far as oral meds though, the choices get more serious once you can't take asa's. 

Pls keep us posted on your daughters condition.  Also does she take high potency probiotics?

B

**Oh I see that she is already on 6mp.  I wonder what some of the veteran members will recommend with this.  I assume she is in the theraputic range??*

Posted 11/21/2013 12:57 AM (GMT 0)
Yes I started her on probiotics. I had no clue on what kind to buy, but with the help of the sales lady from sunflower shop I bought her garden of life brand RAW probiotics for women. Also the 6mp is 50mg. She takes one everyday. I wish she didn't have to take it anymore, she seems to get sick so easily .
Posted 11/21/2013 2:44 AM (GMT 0)
I was under the impression that Colazal was also a 5-asa ...
Posted 11/21/2013 3:08 AM (GMT 0)
My understanding is that it is similar but slightly different as it is a balsalazide. Some people who can't tolerate the other Asa's can tolerate Colozol.
Posted 11/21/2013 1:42 PM (GMT 0)
I could not tolerate colizal after a year or so.

I am now on Apriso and it took at least a month to acclimate to my body.

I also use cortenema, every other day and don't use the whole bottle.

Things have quited down (knock wood).

Good luck to your daughter and you
Posted 11/21/2013 8:13 PM (GMT 0)
Vernz,

Welcome to the forum.
Sorry about your daughter's diagnosis.


As a newbie to the forum, I think it's important for you to know that you have options, which your doc probably won't tell you about. So let me share with you what's worked for me.

Some meds work for some and not for others.

For me, the traditional meds failed me and the mesalamines I became intolerant of.
And when the doc gave me a choice of surgery or remicade, I balked and had to find my own way.

He also told me diet has nothing to do with UC, but I found that it has a great deal to do with exacerbating its symptoms!

I found that by doing these things it helped control my symptoms by 75%:
1) adequate high intake of vitamin d3 ( need to get your levels checked first)
2) probiotics are key, are you on any?
3) slippery elm powder to coate the intestinal tract helped greatly
4) l-glutamine amino acid powder for long term colonic repair
5) food combining
6) diet modification as in gluten and dairy free, Paleo diet
7) rectal meds help lots of folks out

Despite the decrease in symptoms, I was still BLEEDING very heavily at every BM. The Last 25% was taken care of by LDN, low dose naltrexone, which put me in remission. Within a week of starting LDN, the heavy bleeding ( too many times to count with blood clots and mucuous) which I had had for 1 1/2 years straight, went down to ZERO. And that is all thanks to LDN!

If any of this interests you, there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

IMO, it isn't one size fits all, and you have to find what works for you, and it may be a combination of things like diet, meds, supplements, etc...

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.
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