Risk og trying SCD og Breaking the Vicius cycle?

I have been doing the diet for 8 months and I cannot confirm that. In fact it helped me to see which foods I was sensitive for.

I was on SCD for about a year. It initially put me in remission but after a later flare I was unable to achieve the same results. I have added in non SCD foods now and follow a modified version called IBD-AID and have recovered mostly from flare. Not sure if the improvements are diet related. Just if you decide to stop SCD do it by adding back one thing at a time. This is good practice in any case for UCers.

AID built on SCD by adding the idea of anti inflammatory diet. Also, Barbara adds her experience with IBD patients and also more recent findings in the literature. For example she found that her patients tolerate and do well on oatmeal so that is allowed where as it is not in SCD.

Thanks both !
Sean88: Can you guide me to where I can read more about this AID principle? I just bought (and received today) the "Breaking the Vicious Cycle" + a book about the FODMAP principle.

Andrina: I will definately try to keep more strict eyes on this if the effect comes that fast. I have not in my many years with this found a connection - and I thought we talked days of delay,
But I am tired of having this condition, even though I guess I should be grategul it is as mild for me as it is compared to others in here. It has been so much center of my attention and attitude since 1999.
(At least my anxiety about it has reduced the later years. I guess you start believe it will be relatively stable after all these years)

2 years ! Great for you !!
When you say remision, are you then still on drugs?
I am relatively certain I can be in "remision" for a period if I stay on 2 Mesasal (1 in the morning/1 in the evening. But I tend to be told to reduce to 1 when it looks good. An when I stop completely on them after about 2 weeks I tend to flare.

Hej Fruitgirl.
I think you are right.
I has just been so difficult for me to accept this condition, and have always wished for the cure instead of accepting it part of me. Therefore pursued to be med-free. But I think I might finally have reached the same conclusion you say. It's just I know people that suddenly are medfree without any problems and for no apparent reason?

But is changing doctors also give me different insructions.
- The first I had had me on Mesasal and monitoring me closely. When I had been fine for a while he took me of meds
- The second wanted me on Asacol pills permanently and then Mesasal when flaring (Asacol pills didn't seem to help much)
- My present doctor want me to anly take Mesasal when flaring and when no signs of CU to go med free. I have used him for a year or so and my medfree period is seldom more than a couple of weeks. So sometiing like 6 weeks on Mesasal and 2 weeks of. A bit stressful really.
Actually even when flaring he want to see me before I start on drugs. A 1½ week waiting following that concept have no given me the worst flare for years. thanks Doc !

Hej Quincy
Thanks for your advice.
I really appreciate it and I am sure you know more about this than me! But can I ask:
- Why would I use enemas and not just supps if the flare is only in the lowest 5-10 cm?
- Why are you so firm about that I should take oral 5ASA if I have been doing fine without thems?? I seem to be able to get rid of flare on 2 Mesasal supp per day (at least so far). It is when I drop to 1 Mesasal or sometimes even when I go off med that problems appear?

Shouldn't one take as little med as possible? Can't there be long term sideeffect from eating Asacol (5ASA) 2x3 pills a day or is it completely safe?

PS I agree with you about my doc. consider to change

I did see some "slime" (dont know the correct word in English )for a few days and went to be checked in the very low end. He could not see anything and said it was all normal. Therefore I should keep of drugs but was scheduled for a full colonscopy 2 weeks later. That is on Tuesday Dec 10th. But in the meantime I have now a obvious flare. I forced them to see me again 2 days ago where he could see the flare in the lower part,
Still in his opinion I should wait with the drugs til after the full colonscopy as he wants to see further up.
But in the end he said that okay, if i want to fight the flare already (almost signalling I a hysteric) I could start on the Mesasal now. WHICH I DID. I also have some asacol orals that I started eating again from today until the blood is gone.
What do you think of that little case Quincy?

Hmm I have never received any written report, only oral feedback from the Doc's doing the c-scope.
I have had several. Actually normally I get one each year just to check.
They have never found any signs of CU further up - neither from what they see and the test the have taken.
In the 14 years I have had one incident where the flare went about 40 cm up (that's when the Doc back then put me on oral Asacol) but that is probably about 7 years ago, and it was in connection with a bad Flu.
Other than that they have never seen any flare further up than approx 10 cm.