2nd remicade infusion nothing new to report really:(

I had my second infusion on Monday, now it's Friday. maybe my trips to the bathroom are down but I still have bloody, ribbon like stool. I thought I would see some great improvement by now, I go back in 6 weeks.
Sometimes I go to the bathroom and it's watery and faint blood color too. I can say yes it's helping a little that's all I will give it. I wish it was more drastic . Bummer dude.

Very a little discouraged :(

I had my third a little over a week ago. I too have the ribbon like bloody stool. However, for me that is slowly going away to a more formed stool. I just developed a blood clot and was put on blood thinners and hope I don't go backwards. I think you will see improvements in the next couple weeks.

Greg 

I just had my 5th one the day after Christmas. I didn't notice improvement until the 4th infusion. After that my bathroom trips were down to about 4-5 a day, and now I'm down to about 1-3 a day.

I never made it to the "every eight weeks" though. I started getting worse around the 6th week, so my GI decided to put on it every 6 weeks instead and I've seen an improvement. My stools are still thin, but unfortunately that may be the new normal. Still, I'll take thin stools twice a day instead of liquid 5+ times a day!

Yes, I think there are miracles.  Started remicade last April.  The latest colonoscopy (last month) and pathothogy results show significant improvement - the word remission wasn't used, but it sounds good.  Still dealing with other issues that cause problems such as hemmies, constipation and supposedly IBS.    Wednesday's remicade infusion left me very very tired out, but had a normal looking bm today. 

Give it time.

boo, i still think there is hope.

There is still hope. It took me like 10 months or more to be feeling decent on Remi. I still remember my first real date with my fiancee which was nine months after I began Remicade. I told her I did not want to go out to eat because I thought it may bother how I was feeling (I was worried about urgency after eating). So... sometimes it takes a while!

After my initial dose the only thing I noticed was less blood. Everything else was still a struggle.

After 2-3 months the GI doc did a scope and said things looked pretty good though, so I don't know how much was from what exactly.

The infusion nurse told me when I began infusions that sometimes it takes 6 months or more before a person really is healed... depending on how bad they were.

Having been through what you're going through I would definitely say to still have plenty of hope and faith.

Post Edited (Thoreau) : 1/11/2014 8:01:57 AM (GMT-7)

Treatment is discontinued for Crohn's patients if no response is seen after 2 doses. Any response beyond that could probably be considered the placebo effect.

Some people take a while to see results on the biologics. If she's only been on them for 2-3 weeks then there is plenty of time to see what happens still.

I expected some sort of miracle when I started Remi, but that did not happen in the least! Still... here I am almost two years after starting, in complete remission.

I've been on it for fifteen months, and I still don't think it does anything.