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Experience with humira

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Ulcerative Colitis
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Posted 1/7/2014 5:02 PM (GMT 0)
Hi everyone! I should be starting humira at the end of the week!
I wanted to know what people expirienced while or on it?
Before i have been on remicade and i was doing a lot of side effects which i seem to do with preaty much all the meds.
Now im on mezavant and 6mp

Thanks Viv
Posted 1/7/2014 7:56 PM (GMT 0)
I'm on Humira . Been on it a year and half. Was working good until the last 3 months. I take it weekly . After 3 days symptoms start coming back. I'm at the high dose right now. Looking into trying Simponi . Trying to get approved. I think they all lose there effectiveness after a while. I was one of the few that it helped . I was on it before it was FDA approved for UC. I guess it's time to move onto something new.
Had muscle aches and headaches from time to time. Otherwise the injections sting a bit. Not that bad. Only lasts a few seconds. I think it's worth trying.
Posted 1/7/2014 8:04 PM (GMT 0)
Hey Viv, just noticed your a Massage Therapist. Me too!!!!! Hard doing those early appointments these days. My clients must think I'm crazy. I never begin until 10. Start to have an anxiety attack when they want 8am lol.
Glad I work for myself these days!
Faith
Posted 1/7/2014 8:09 PM (GMT 0)
Hi Faith! Ya i am! But i havent worked for orver a year! I had too much pain in my joints hands and feet! I cant do it :(. At least i was still at the back for 20 hrs a week so i have this still in!
Posted 1/7/2014 8:19 PM (GMT 0)
Hope the Humira helps you. I think the every two weeks is useless. I think people with UC benefit with the weekly injections. I would look into that if I was you. Saw a huge improvement when I started on weekly.
Posted 1/7/2014 8:32 PM (GMT 0)
Well, I've been on it just over 3 years now, biweekly. And it does help, definitely. I usually start to get symptomatic around day 11, then it can be sort of rough until the next shot. For me Remicade was basically useless, even at the highest dose & the most frequency. It's not healing anything, my scopes still show active disease. But it does make life more livable! I hope it works well for you. My GI & I have talked about bumping it up to weekly, but neither of us really want to unless it's 100% necessary. I hate to run out of options too soon, you know?!?!?!
Posted 1/8/2014 4:28 PM (GMT 0)
Thanks Eva! Ya the options seem to be slimming down fast. I dont even know where ill go if this dosent work of if i get too many side effects. :( but after 2 years of trying to find something i dont have much hope left !! I hope it continues for you :)
Posted 1/8/2014 4:56 PM (GMT 0)
I was on humira for 8 weeks and felt great, until this past weekend.my wife and I caught a virus and now I'm in really bad shape UC wise even though the virus has passed.

Hope you have long term success with it though, good luck!
Posted 1/8/2014 7:53 PM (GMT 0)
Been on it for a year now. If I go to every week, I get awfully bloated and uncomfortable. Seems to help me. My only complaint is that I think it affects my eyesight...but that may just be me getting older. Also, I get some wierd joint pain in one of my hips. Could be totally unrelated. Other than that, and the stinging when I take the shot, I have no complaints.
Posted 1/8/2014 8:10 PM (GMT 0)
I used it for a year......worked pretty well initially, then gradually lost effectiveness. Tried Simponi last month. Did the 3 load doses, and my BP went up and wouldn't come down, so I'm not going to use it anymore. I think the biologics aren't worth bothering with. They're short term and unsustainable, and the risk of infection, and the subsequent round of antibiotics just makes the problem worse.
Posted 1/8/2014 8:20 PM (GMT 0)
So what is your plan now swollencolon? :(
Posted 1/9/2014 12:28 AM (GMT 0)
oh yeah, and I now have really high cholesterol. only 5-7% of people get this side effect, I guess I am one of the lucky ones.
Posted 1/10/2014 5:13 PM (GMT 0)
Since I had to use antibiotics a couple of times last year, and my diet wasn't what it needed to be, I'm going back to the SCD to hopefully get sorted out. I had pretty decent success with it about 3 years ago and I wasn't that strict with it then. I'm doing it right this time, and using VSL-3 daily.....and luckily I get no side effects from prednisone. I think I've had a mental switch concerning dietary restrictions, so doing the SCD in a strict fashion is now a welcome challenge instead of an unwanted burden.
Posted 1/10/2014 6:15 PM (GMT 0)
I've Used Humira for the past eight months, first couple of weeks was good then went to every two weeks and not so great. They put me back to every week and there was no change. I'm still on it but looking towards surgery now.It did give me my energy back though, remicade seemed to suck me dry of that. Do not take your Humira if you have a cold though check with your doctor. They never told me that and i found out the hard way
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