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Posted 1/21/2014 6:26 PM (GMT 0)
"Stop taking mesalamine and call your doctor at once if you have a serious side effect such as:

severe stomach pain, cramping, fever, headache, and bloody diarrhea."




Um... Didnt that pretty much describe the disease it is designed to treat? tongue

Sigh.
Posted 1/21/2014 7:26 PM (GMT 0)
LOL Yes, ironic isn't it? But I think those instructions are mainly directed to the people that have to take it for other types of colitis.
Posted 1/21/2014 8:05 PM (GMT 0)
Actually, I am healing now because I stopped taking mesalamine!! (Asacol)

I've been on Remicade since last summer, and started taking mesalamine about the same time. I felt way better, but the effects of the Remicade only lasted for about 2-3 weeks. Then I had an endoscopy that showed that my colon was healing, so obvs my poor health was a result of something other than the colitis. I stopped taking the mesalamine and sweet jeebus, how I felt better immediately! Now it's been 2.5 months since I had my last Remicade infusion, my urgency is gone and my BMs are pretty much healthy! It's AMAZING :)
Posted 1/21/2014 8:17 PM (GMT 0)

runawaybride3 said...
Actually, I am healing now because I stopped taking mesalamine!! (Asacol)

I've been on Remicade since last summer, and started taking mesalamine about the same time. I felt way better, but the effects of the Remicade only lasted for about 2-3 weeks. Then I had an endoscopy that showed that my colon was healing, so obvs my poor health was a result of something other than the colitis. I stopped taking the mesalamine and sweet jeebus, how I felt better immediately! Now it's been 2.5 months since I had my last Remicade infusion, my urgency is gone and my BMs are pretty much healthy! It's AMAZING :)

What sort of symptoms was the mesalamine causing? How long off it did you start to feel better? Ive just stopped taking mine in hopes I get better too!
Posted 1/21/2014 8:54 PM (GMT 0)
Nope, those are for everyone. I had all those when I started on Asacol. After three days I had them all x5. My stupid first GI changed me to balsalazide, which is fine, but then a few months later prescribed rowasa enemas. Duh, guy, if it made me sick orally, how much sicker do you think I'll be when it's applied directly to the area?
Posted 1/21/2014 9:29 PM (GMT 0)
Isnt balsalazde also a mesalamine?
Posted 1/22/2014 10:09 PM (GMT 0)

laughingduck said...

runawaybride3 said...
Actually, I am healing now because I stopped taking mesalamine!! (Asacol)

I've been on Remicade since last summer, and started taking mesalamine about the same time. I felt way better, but the effects of the Remicade only lasted for about 2-3 weeks. Then I had an endoscopy that showed that my colon was healing, so obvs my poor health was a result of something other than the colitis. I stopped taking the mesalamine and sweet jeebus, how I felt better immediately! Now it's been 2.5 months since I had my last Remicade infusion, my urgency is gone and my BMs are pretty much healthy! It's AMAZING :)

What sort of symptoms was the mesalamine causing? How long off it did you start to feel better? Ive just stopped taking mine in hopes I get better too!

A couple of weeks after my Remi infusions, I started having urgency with a delightful mix of D and C. AFter a couple of days off Asacol, I felt 100% better. Hope everything works out for you!
Posted 1/22/2014 10:53 PM (GMT 0)
Some drugs cause the very thing they are "designed" to protect against, though I can't, in fairness, say this for mesalamines.

I can't think of a better example of this than statin drugs, since they deplete the heart (and other organs) of the energy needed to function via coenzyme-q10 deficiency.

So, ironically, you have a greater chance of dying from a heart related incident when taking statin drugs.
Posted 1/23/2014 12:25 AM (GMT 0)
Yeah that freaks me out and confuses me....because things got worse when I first went on Lialda...better when I went to Asacol HD...and now worse on Lialda. Drugs are stupid....sucks that we need them...
Posted 1/23/2014 12:40 AM (GMT 0)
Like how prozac causes suicide.
Posted 1/23/2014 1:12 AM (GMT 0)
I can explain this a little:
I participated in the study for an asacol-type drug (before asacol was available), and had to note everything I experienced. Since I was in a bad flare, of course I had the UC symptoms. So they have to list these symptoms as possible side effects, when for me it was just the disease, not the drug.

I would not pay too much attention to what's listed as side effects for this reason and because of the power of suggestion. Just ask your doctor what to expect, in reality.

Sorry asacol didnt work for you, it saved my colon back in the 1980s!
Posted 1/23/2014 3:56 AM (GMT 0)
Haha that's funny stuff. I guess it would be better than the disease itself, even though your way of life may not improve.
Posted 1/23/2014 3:58 AM (GMT 0)

wifeofmars said...
Yeah that freaks me out and confuses me....because things got worse when I first went on Lialda...better when I went to Asacol HD...and now worse on Lialda. Drugs are stupid....sucks that we need them...

I was told that neither really had side effects. Did the Lialda not work, or did you have side effects?
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