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Ulcerative Colitis
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Posted 1/30/2014 12:12 AM (GMT 0)
Join and rant away hateuc! What symptoms do you have? I'm sure you've played around with diet at some point over the years? Anything help?

Garylouisville that's scary about your spleen. Tbh I hardly even know what the spleen does, is it just to purify the blood? Could it be the reason you go 4-8 times per day? Do you stick to any sort of diet?
Posted 1/30/2014 3:03 AM (GMT 0)
The spleen does help filter out impurities in the blood. It is also a major player of the immune system. Without a spleen people have to watch out more for infections and getting sick in general. There are a few instances such as E.Coli, West Nile virus, Swine flu, pneumonia, and other things which a normal person may fight off whereas I could be dead in a matter of days. That's one reason I'm not too keen on taking meds that weaken the immune system. Fortunately, my UC is not bad enough that I need to take them. Had my spleen out in 1990, got UC in 2010 so I don't believe there is a connection there, although anything is possible. I don't follow any particular diet but I do watch some things I eat and take the digestive enzyme DAO, which allows me to eat things which would normally cause me problems.
Posted 1/30/2014 11:15 AM (GMT 0)
Do you recognize the symptoms before you reach a flaring condition? I do not know if it is possible for everybody with UC, but I get a weak pain in my guts as a warning sign before anything has been coming out.

If this is the case for you, and as you are improving, you could probably try to lower the doses of those medicines you can not stand well or quit with them completely. Do this only if you are sure you recognize a flare coming as you surely do not want another 3 years of flare. You know best if this is safe for you and only you can decide if this is something that would work for you. I am writing this as I also quit my medicines as my body did not work well with them. I found better solution for myself in "food combining" and I have been medicine free several years.
Posted 1/30/2014 2:55 PM (GMT 0)
Scary stuff garylouisville, I'd be hesitant to try immunosuppressants if I were you too!

Engblom I do recognize the warning signs, I get a pain to the right of my belly button. I tried med-free recently and got the pain so started up a lower dose of the sulfasalazine. The bleeding did stop the week I was med-free, but urgency and consistency and pain got worse. Now I am back at 3-5 bm/day, some loose some soft formed.
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