Severe UC Flare - Help!

izzie29

New Member

Joined : Jan 2014

Posts : 14

Posted 1/31/2014 4:15 AM (GMT 0)

Hello,
I am currently in the hospital, on 60mg of liquid prednisone, TPN, and Humira and getting worse. Has anyone tried Cyclosporine?

Lodi

Veteran Member

Joined : May 2012

Posts : 686

Posted 1/31/2014 4:40 AM (GMT 0)

I can't help you with your question I haven't tried that drug but I'm sorry to hear you're getting worse.

I ended up in the hospital last year because of my UC and was pretty scared.

I made a turn around with fluids, IV prednisone, an antibiotic (or two) and a blood transfusion but it took a few days. Here in Canada we generally don't get to ask for or dictate which drugs to use. I hope you have a competent doctor to get you through this.

Good luck and keep us posted on what's going on.

e_dawn

Regular Member

Joined : Dec 2013

Posts : 101

Posted 1/31/2014 4:56 AM (GMT 0)

Sorry to hear you're not doing well. I've never used cyclosporine but just wanted you to know I'm rooting for you to feel better soon.

izzie29

New Member

Joined : Jan 2014

Posts : 14

Posted 1/31/2014 7:58 AM (GMT 0)

Thank you for the support!

DBwithUC

Veteran Member

Joined : Feb 2011

Posts : 4545

Posted 1/31/2014 5:02 PM (GMT 0)

I read it is an immuno suppressant developed to prevent transplant rejection, and is used when there is no response to IV steroids.

so it may depend on what you mean by "getting worse"

garylouisville

Veteran Member

Joined : Aug 2012

Posts : 9088

Posted 1/31/2014 5:05 PM (GMT 0)

Did they check you for c-diff?

notsosicklygirl

Forum Moderator

Joined : Dec 2008

Posts : 17890

Posted 1/31/2014 5:11 PM (GMT 0)

You may want to do a search for cyclosporine, we have other members who have been given it in the hospital. How are you doing today?

izzie29

New Member

Joined : Jan 2014

Posts : 14

Posted 1/31/2014 5:12 PM (GMT 0)

Yes, I do not have c-diff, I have lost 20 pounds in 10 days at the hospital and I am not responding to the steroids. I read that cyclosporin is used for severe UC. I was just wondering if anyone has tried it for UC?

izzie29

New Member

Joined : Jan 2014

Posts : 14

Posted 1/31/2014 5:13 PM (GMT 0)

I am getting worse everyday.

izzie29

New Member

Joined : Jan 2014

Posts : 14

Posted 1/31/2014 5:19 PM (GMT 0)

Thank you for response notsosicklygirl, do you know the side effects of cyclosporine?

LaurieD

Regular Member

Joined : Jan 2014

Posts : 56

Posted 2/1/2014 2:58 PM (GMT 0)

I am on Remicade and my infusion nurse told me that she has seen a lot of people respond to remicade that hadn't responded to humira. Was there any talk of remicade for you?

franny19

Regular Member

Joined : Mar 2012

Posts : 265

Posted 2/2/2014 12:11 AM (GMT 0)

My son was very ill like you and nothing was working so they tried him on iv ciclosporine. It took a few days but it did kick in and save his bowel. Took it for 3 months then stopped as kidney function was suffering. Took azathiapriin during this time to let it build up. Then started remicade which worked for about 5 months then stopped. Good luck - hope you are better soon.

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