Hi, this is my first time posting to any forum but have been reading some of your posts and think it's best to get advice and views from the experts-the actual people living it every day!
Anyway a little about
myself, I'm 35 and was diagnosed with ulcerative proctitis in dec 2011. Started on oral mesalizine and have been symptom free until now. For the past 10 days have had alternating diarrhoea and constipation, lots of blood etc. anyway they've increased my pentasa and started me on a foam asacol enema. Because of this flare and also because of pains across the top of abdo, mainly the right (no gallstones) I've dug out my old reports and have some questions.
1) prior to my diagnosis of up, I had an episode of pancreatitis. They thought at the time it was due to the omeprazole I was taking at the time but in hindsight I was wondering if it could have been an extra intestinal manifestation of my inflammatory bowel disease. Has anyone got any experience of this? I first started bleeding 2 weeks after I had pancreatitis.
2) following this episode of bleeding I had a flexi sig, which showed mild proctitis, also non-specific colitis at my splenic fixture, so I had a colonoscopy a couple of months later, by which time my symptoms had completely abated. This was macroscopically completely normal but showed microscopic inflammation at various parts of colon. As I had no symptoms at that time , they discharged me saying to come back if blood returned. All was well until 18months later in nov 2011 when I started bleeding heavily again and after another flexi sig was officially diagnosed with ulcerative proctitis. But in the notes it says endoscope did not go as far as the splenic fixture as the inflammation ended at 20cm so they did not feel it necessary. Now given the previous reports, I'm thinking they should have. I'm also thinking given my upper abdominal pains this may be more widespread then they thought. Any thoughts on this?
3) does anyone have any experience of proctitis spreading and what were the symptoms of this and how long after diagnosis?
I'm sorry for the long post and all the questions. Because I've been symptom free for so long, apart from taking my daily pentasa I'd sort of forgotten about
it but with the resurgence of the symptoms it's at the forefront of my mind again, wondering what will happen and how the disease will progress, although i know everyone is so different.
I hope this all makes sense and thank you in advance for your replies
