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Feel worse after starting scd diet
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Ulcerative Colitis
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Kanale27
New Member
Joined : Feb 2014
Posts : 19
Posted 2/9/2014 2:32 AM (GMT 0)
I'm 25 and was diagnosed with ulcerative proctitis about
10 months ago. Since then I have had 2 flare ups the first which was put into remission for about
5 months with Canasa and was completly off medication for 3 months now I have had the 2nd flare up for about
a month now. Canasa and quart enema does nothing for the blood. I find it weird that this flare started 3 days after I quit smoking. I asked the doctor And she said it has nothing to do with it. I drank heavily about
5 days ago ( I hardly ever drink)and since then I have had bad diarrhea and completely stopped drinking all together. I am starting to try the scd diet now and I am on day three and still have diarrhea Should I continue with the diet?? I've also started loosing weight and feeling really awful. Is it normal to have this kind of response. Was it from the drinking?? Please help!!!
toomuchpoopin
Veteran Member
Joined : Dec 2013
Posts : 1216
Posted 2/9/2014 2:49 AM (GMT 0)
Could be a die off effect...if your previous diet was high in sugars etc.
Coffeencake
Regular Member
Joined : Nov 2013
Posts : 452
Posted 2/9/2014 2:51 AM (GMT 0)
What is a die off effect?
toomuchpoopin
Veteran Member
Joined : Dec 2013
Posts : 1216
Posted 2/9/2014 2:56 AM (GMT 0)
Die off of bacterial/yeast over growth. Meaning once you stop feeding it all the junky sugars/cards/yeast it thrives on it dies off, and sometimes quickly. I've heard it can cause a worsening of cramps/diarrhea/brain fog/fatigue etc. happens on paleo to a lot of people, mainly those with a very processed diet to begin with.
Kanale27
New Member
Joined : Feb 2014
Posts : 19
Posted 2/9/2014 3:07 AM (GMT 0)
How long does this last? I've read 3-7 days. Should I be concerned after a week??
garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 2/9/2014 3:19 AM (GMT 0)
Did you come down with UC while you were still smoking? Many people come down with UC after quitting smoking so obviously you could start flaring after quitting also. This is common knowledge. Your doctor should know that. Drinking can definitely be bad for UC so if you can totally quit you should. SCD diet can help someone but there is no guarantee that it will help everyone. Many won't be helped and some do get worse.
Kanale27
New Member
Joined : Feb 2014
Posts : 19
Posted 2/9/2014 3:21 AM (GMT 0)
I had was diagnosed with uc while I was smoking and then had a flare 3 days after I quit.
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 2/9/2014 3:36 AM (GMT 0)
I never had any success with SCD diet and i was not able to keep weight on while doing it. The SCD diet is great if it works for you, but it doesn't work for everyone, it doesn't even work for many UCers as far as I can tell. It's probably something that would be more useful if you were in remission and trying to maintain vs using it to try to get into remission. I stopped the diet after a couple months, i never saw any improvement from it.
I think the quitting smoking could be the trigger too. very strange your GI didn't mention that it was a possibility.
I was in a similar situation when I was diagnosed. I had proctitis and I was treating with Canasa, everything was great for months or a year even. Then eventually the blood returned and slowly but surely, I got sicker and sicker and Canasa did nothing for the symptoms. Eventually i started oral Asacol and I did pretty well on that.
Kanale27
New Member
Joined : Feb 2014
Posts : 19
Posted 2/9/2014 3:46 AM (GMT 0)
I'm wondering if people with proctitis handle the diet differently then people with colitis since the problem is only in the distal rectum. Any thoughts??
sean88
Regular Member
Joined : Jul 2012
Posts : 210
Posted 2/9/2014 1:36 PM (GMT 0)
Can't tell much after 3 days. For me I saw reduction in frequency right away but D didn't subside for about
6 weeks. I'd try SCD for at least 2 months before giving up. Also, ready the BTVC book so you get the intro and transition to more foods right. I messed it up the first time I tried.
garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 2/9/2014 2:03 PM (GMT 0)
Kanale: I was diagnosed with pancolitis and the meds and the rest of my treatment plan have put the "pancolitis" into remission, leaving me with proctitus. I never did SCD. I'm not sure how that relates to your question but I am sure many others have been in my boat.
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 2/9/2014 3:32 PM (GMT 0)
First thing I noticed about
your post was that you said you were completely off meds? No maintenance meds??
That could be a huge part of your problem right there! Especially when adding a night of heavy drinking (most UC does NOT like alcohol... mine hates it) and then quitting smoking (my first flare was after quitting.)
Maintenance meds are really important in keeping your UC under control. When UC rears its ugly head for another flare, its usually harder to treat and get under control.
I am surprised you were not advised to continue the Canasa... or SOMETHING at a maintenance dose....
(As for SCD... diets have done nothing for my UC, sadly.)
Kanale27
New Member
Joined : Feb 2014
Posts : 19
Posted 2/9/2014 4:00 PM (GMT 0)
I am still on meda they had me try quart enemas and those didn't work. I am now on Canasa twice a day but it does nothing. I was only off meds when I was in remission.
TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 2/9/2014 4:08 PM (GMT 0)
"I was only off meds when I was in remission."
you are in deep doo-doo ! the forever med police are gonna kick your butt ;-) you've been warned
Bobella
Regular Member
Joined : Oct 2009
Posts : 61
Posted 2/9/2014 4:15 PM (GMT 0)
Honestly my guess would be not smoking us what kicked off your flare. I started smoking two years ago after reading about
it being beneficial to UC patients.
My New Years resolution this year was to quit smoking. By day 4, I started seeing blood and after 3 weeks of quitting, I was in a horrible flare. Pain, tenesmus and bloody diarrhea 15-20 times per day. I've started smoking again and I've been on 40mg prednisone for 2 weeks and 2 days and I'm down to about
8 bloody diarrhea bouts per day. I'm also on 6mp. I can tell my colon is trying to heal and I'm finally having some formed stools but there is still do much blood.
I wish I had never quit smoking because each time I flare, it's seems harder to get under control. I have high hopes that I can continue with 6mp and cigarettes once my colon heals from this misery. If not, my doc will want to start me on humira or cimzia. Colonoscopy this Wednesday!
garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 2/9/2014 4:41 PM (GMT 0)
It sucks when people regret quitting smoking due to this disease. I wonder what percentage of people actually came down with UC in the first place solely due to quitting smoking. This is the only disease I can think of off hand where having a destructive non-healthy vice actually helps. Can you imagine if the cure for cancer was to smoke? Doesn't make any sense.
Bobella
Regular Member
Joined : Oct 2009
Posts : 61
Posted 2/9/2014 4:56 PM (GMT 0)
I know, it's bananas. I'm currently weighing the pros and cons of what smoking will do to my lungs and heart vs what not smoking will do to my colon and quality of life. Smoking does help and if I'm having terrible spasms, a cigarette will calm things down in minutes. I do wonder though if smoking us what triggered my immune system to go haywire in the first place. Oh well, too late to change is as I'm already "broken."
It's interesting when my doctor gives thinly veiled hints to keep smoking like, "If you choose to stay a non-smoker, which I commend you for, we can explore biological medications." Uhhhh...did she just tell me to start smoking again? ;)
Once I'm back in remission, I'm going to try an e-cigarette. My husband has one but I swear it shocks my lips.
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 2/9/2014 4:58 PM (GMT 0)
I don't people "come down with UC because of smoking", I assume they would have it anyway with symptoms controlled to a point by smoking.
Remember that when people quit smoking, there are other factors involved, as well as there is while people are smoking. Some symptoms might not be noticed at all until they get more pronounced.
q
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 2/9/2014 5:02 PM (GMT 0)
Kanale...are you meaning cortenemas? because I can't imagine doing a quart's worth of an enema.
I'd suggest getting back to your GI and have him take a look with a rigid rectoscope.
My suggestion is to use an oral 5ASA mesalamine med in conjunction with a rectal mesalamine.
As far as doing nothing....what symptoms do you have exactly?
SCD, all you can do is try it, but I wouldn't have high expectations. Use it in conjunction with the appropriate meds.
Hope you feel better soon,
q
jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 2/9/2014 6:25 PM (GMT 0)
I'd bet my next Remicade infusion it was the stopping smoking. It's well-known both here and in the scientific community that smokers are less likely to have symptomatic UC and many people here have experienced what you have. That said, I would never go back to smoking in an attempt to control my UC. I can control my UC a lot better than the asthma I'd have if I smoked. I don't recommend others do this, either.
As far as diet, I tried them all and none helped me, but it's different for all of us. If I went on a diet and it made me feel worse, I'd go off it.
ByeByeUC
Veteran Member
Joined : Feb 2011
Posts : 4592
Posted 2/9/2014 6:30 PM (GMT 0)
I had awful results from the SCD diet. It left me worse off than I was and ended up in the hospital because I couldn't get the flare under control. The blood loss I had was crazy.
Having said that, I'm in agreement with some of the others that it was the quit smoking.
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 2/9/2014 7:48 PM (GMT 0)
I agree that, though quitting smoking helped my UC really rear its ugly head... I wont go back! I got asthma from smoking for 10 years and each winter I got chronic bronchitis. I havent had bronchitis even once this winter!
So ill stick with the non smoking! :) :)
As for "forever med police" .... where are they?! I expected more back up to fly in. Atleast stay on maintenance meds until you fully understand how your disease affects you and you have it under control... def not good to quit smoking while not on meds only a few months into remission...
*med police* where are you?!?!
TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 2/9/2014 8:46 PM (GMT 0)
and then you have this to worry about
:
<https://www.youtube.com/watch?v=ofsljUAUdlc>
Kanale27
New Member
Joined : Feb 2014
Posts : 19
Posted 2/9/2014 9:11 PM (GMT 0)
My doctor told me to go off my meds after I had a month with no bleeding. They had me wean off the Canasa take one every night for a month then one every other night for a few weeks then every 2nd night and so forth and it worked I had no blood for all that time and when I was done with all the Canasa it was fine. Until I stopped smoking. And yes I was talking about
a hydrocortizone enema. And that did nothing for my symptoms ( massive bleeding and cramping) other then give me really bad insomnia and not allow me to sleep for 5 days. Any who it's day 4 of the diet and already at 1 in the after noon is have had 6 bouts of dierreha where as yesterday I had five and that was throught the whole day. 😞
Coffeencake
Regular Member
Joined : Nov 2013
Posts : 452
Posted 2/9/2014 10:19 PM (GMT 0)
So, does anyone have UC that never smoked? I have never smoked. I'm curious because as I explained on another thread I was actually diagnosed as intermediate colitis (is it colitis or Crohn's?)
I'm not saying this is the deciding factor, just putting it out there.
My doc is a med police! I told him I tried weaning off asacol going from three a day to two a day and cramping started after three days of that, and he said,"Don't do that, don't mess with what is working!"
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