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Ulcerative Colitis
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Posted 2/19/2014 11:24 PM (GMT 0)
Maybe! You guys could give me some advice..


Have had uc for 14 yrs now have posted before about how I notice my symptoms changing.

What really annoys me as all my doctors don't believe I'm having issues at present with my uc because I'm not loosing weight and my crp levels are fine..

Here are my symptoms..

Right sided pain lower right up to my rib been having that since December tummy very sore when they touch it.

Constipation
Mucous that looks like it has blood in it coz its pinky brown

Stool has what looks like blood on it sometimes a darker maroon blood then other times a brighter blood.
Feel fatigued at present..

What concerns me is the doctors did this last year ignored me and I ended up on the verge of toxic megacolon..

Has anyone else had a flare and their bloods been normal and their crp NOT rise or not loose weight..

I am worried that they will get me to the same point again :(

I'm on pentasa 2 grams a day( they reduced this in dec from 4 grams even though I was having a tender tummy) they said it was ibs.
Azathioprine 150 mg a day
Vitamin d 4000 iu a day
This is all for my uc

HELP! PLEASE!
Posted 2/19/2014 11:51 PM (GMT 0)
Many people don't lose weight with UC. That's terrible your doctors are dismissing you. Time to move on and get a new GI doctor. One who listens to you. Get away from this group of docs. Sorry you are dealing with this.
Posted 2/19/2014 11:55 PM (GMT 0)
No pains and no weight loss for me either. I also vote for a new doc.
Posted 2/20/2014 12:15 AM (GMT 0)
Me three, no weight loss for many years, no pain (except mental) but did have bleeding that wasn't taken seriously it until I was seriously anemic.

You sound like you're Canadian or British so maybe you have fewer choices about changing your GI. My suggestion (besides getting another opinion and GI) is to cut out fiber from your diet, supplement with a fiber pill in small quantity.

Can you get a stool test done on your own to see if you have blood in stool or convince your family doc to order it?

My experience with US GI's is that we UC'ers have to manage our UC personally and use doctors for prescriptions. Can you insist on a higher dosage of your RX? Remind him of your toxic megacolon and the desire not to repeat that (which would not reflect well on your GI).

I also think you should be using a mesalamine enema nightly, not just a suppository.

Popping back to add this from someone elses post, it might help your constipation:
www.lepicol.com/lepicol-info/285/what-is-lepicol
Sounds like it's a UK product.
Or... you could use psyllium seed or husk, probiotics and digestive enzymes, all of which have been discussed here positively.

Post Edited (imagardener2) : 2/19/2014 5:31:31 PM (GMT-7)

Posted 2/20/2014 12:25 AM (GMT 0)
It does sound like you need a new doctor!..I have not lost weight too!
Posted 2/20/2014 1:09 AM (GMT 0)
I never lose weight even through my worst flares. Any bleeding that isn't from a hemmie or fissure needs to be addressed. Time for a new GI it sounds like.
Posted 2/20/2014 1:41 AM (GMT 0)
So your doc RX you meds for your UC and he's not taking your issues seriously? Time to find a new doc, he should at least play around with your meds to help you get better...
Posted 2/20/2014 1:58 AM (GMT 0)
maybe it is IBS
Posted 2/20/2014 10:50 AM (GMT 0)
Thank you all for your replies

I am located in australia and I am over 450 kilometres from another doctor :(

I have had a blood occulant test last week and had a phone call today that I need to go and see them for results.
So I am guessing there is blood in my stool which I pretty much knew any way.

It is good to hear that other uc people DON'T loose weight either... I started to think it was all in my head coz the doctors kept saying you don't have diarreha and you arn't loosing weight and your crp level in your blood is fine... I would come home and just wanna cry coz no one was listening to me..
Am so glad we have this forum because now I know others don't loo weight either..
Time to get tough with the drs I think..
Am so greatful for your responses :)
Posted 2/20/2014 4:24 PM (GMT 0)
not every UC loses weight. but most do have elevated crp when inflammation is active.

if you are bleeding (and not from hemorrhoid) this is some evidence of UC versus IBS.

if there is bleeding, getting scoped to see if biopsies show UC cell damage pattern would be important.
Posted 2/24/2014 12:42 AM (GMT 0)
Hi everyone just a bit of an up date.

Went to drs today the stool test came back showing blood.
My crp is fine at 0.7
My temp is 37.2
Have right hand side pain at ceacum area
Still constipated.


Am off for a ct scan tomorrow to see what is happening as
They still don't think it's my uc. :/
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