Posted 2/22/2014 8:45 PM (GMT 0)
Hi guys, I'm new to this forum, I normally keep quiet and struggle to reach out so me being here says that I'm really struggling :(
Firstly, I live in Victoria, Australia, have had UC for approx. 10 years, I have had a few flare ups in the time, mostly controlled by pred but once requiring a couple nights in hospital... I take Imuran 100mg (but may have to increase)... What brings me here now? Normally my flares are consistent of bloody D and frequency, this time constipation for months, stools ranged from formed large amounts to tiny pebbles all with se blood, but always plenty of blood when cleaning.
Currently I am in hospital following 3 months of oral pred treatment that did not help. It is now day 5 of hospital, day 5 of 6 hourly cortisone doses through IV with not much response, sigmoid scope showed severe ulceration. Last night I was started on rectal meds (some form of large tablet and an enema) also started 3x Balsalside tablets with each meal. After sleeping for a few hours with the enema I had a large movement with barely any blood (which was a great deal of relief to me but short lived as I had another 3 movements in the next 3 hours of blood and unformed stool... Don't know what to make of it)
Docs here say diet/supplements have NOTHING to do with UC symptoms which I find outrageous and encourage me to eat "whatever I like" (which I don't, but honestly no idea what to avoid and what to have)
I am desperate for ANY improvement so that I can get home and maintain my own treatment. The HARDEST part about this is not symptoms... I am a single father to my 6 year old daughter, she is a very sensitive child and it has just been me and her for the last 4 years of her life. I am her rock, her everything and she cries everytime I see her, every time I speak to her and every time a visit is over because she doesn't understand why daddy can't come home, why she can't be home in her own environment. It's breaking my heart and I need to get home...