LDN is working! :)

I started ldn just over two weeks and although I saw some improvements almost immediately, I have remained skeptical until the past few days things are really rapidly improving! I'm so happy, it's about freaking time something worked for me! The past couple days I've gone only twice in the morning, with just the tiniest tinge of blood on the tp. Nothing in the evening or overnight. Things aren't perfectly formed yet (solid but soft still, 5 on the Bristol stool chart) and there is that tiny bit of bold when I look for it, but such a HUGE improvement! I feel like I might actually finally go into remission this lifetime!

Thanks Levi, I hope so too! It's definitely something that helps quite a few people I'd recommend it. The only thing is it does seem to work best with diet mods. I've already been on scd/paleo for several months (gluten, dairy, grain free) which has helped but not enough as I was still going 5-8 times/day and bleeding all the time. One theory I read is that gluten and caseine react with the opioid receptors in our brains, and since naltrexone works as an opiod antagonist, this can interfere with it especially at such low doses. Alcohol also would keep it from working for the same reason, (and heroin and other opiates, of course, not that many of us are heroin users lol) But if you are willing to make the necessary changes, it appears to be really very effective. I had no problems with any of the changes necessary because I made them long ago already.
Oh and another bonus, my psoriasis is clearing! So happy my doctor decided to let me try ldn, I could kiss her! :)

Sweeeeeeeeeet.

Do yourself a favour, please don't stop taking the medication for a long while. I did the 'reboot' about a week ago when I was severely stressed and I'm currently in a bump in the road. Regretting it now.

Sibby what do you mean by you did the "reboot"? Why did you stop taking it? I'm sorry you're having some troubles now. Have you restarted the LDN?

Franny, I'm sorry it didn't work as well for you. Some people it works for and not others, like so many things with this disease. Just out of curiosity why did you stay on it so long if it didn't work? Hope you get out of your flare soon.

Thanks Gary, this was my last step before moving up the medication list and I'm soooo happy it's working for me! :)

Post Edited (laughingduck) : 3/11/2014 5:58:22 PM (GMT-6)

Some people go off of LDN temporarily, give a week or even longer, then restart it up again. Supposedly, it's meant to boost the medication in the system? I thought it would be a good idea.

But being very stressed and not on medication = BAD. So advert just in case.

Thanks poopintom and hateuc!

Sibby- interesting, thanks for sharing. I hope it kicks back in again for you soon. Does it stop working if you don't "reboot"? Is this the first time you've gone off?

Glad LDN is working for you laughingduck. I started transdermal LDN 3 weeks ago as well and unfortunately I can't make heads or tails if its working well or not.

I'm in a very stressful situation with grad school right now, and for a few months i'll be doing great, and then for two straight weeks i'm in agony and miraculously, i'll be better with aid of supplements.

The only difference i'm noticing about my bowel habits this time, is that typically after a week of being in remission, my bowels will start to become less formed or inconsistent on and off, but i've been doing terrific lately. So thankful and appreciative to all and everything benefitting me in my life right now.

I would recommend LDN to anyone else based on the results others have shared, and the minimal/no side effects you experience on this medicine.

I have dreams sometimes, and maybe a day or two out of any given week they are a little tiring (as dreams can be during sleep), but telling my body to relax before bed helps.

Alcohol? Time well tell with me... I really like to go out with my friends, and i'm going to do my best to either sober up before coming home, and cutting back, as well as abstaining during the nights out (per the Pharmacists advice).

Hi Laughingduck, stayed on it so long trying different amounts - did 2,3 and 4mls. Just wondering whether to try it sublingually as some have had success with that. Also really wanted it to help as has no real side effects and some people have waited a year for results. Any opinions?

Have been gluten free all the time on ldn. No haven't tried the transdermal so perhaps this is the way to go. Will see if we can get it in the UK. Thanks for advice. Sometimes I think th uc is resistant to everything! Good luck

Just got the flu last friday, and still dealing with heavy fevers. Haven't had a flu for 10 years, until now. I've been on LDN for about 3 weeks now, I wonder if the flu is in response to that,

or due to the fact that I push myself hard during regular school quarters that when it comes time for a break, i typically end up sick with a cold. Has anyone else experienced a flu weeks/months after starting LDN?

Stereo,

Sorry you have the flu!
Feel better soon - double up on your probiotics.

It is not uncommon to get the flu or a cold when starting LDN, but it usually happens within the first 72 hours as your immune sytem gets geared up.
I don't believe this would happen at week 3.

IMO, you've caught the flu, regardless of LDN.
And btw, from what I understand it is going around.

I do hope you start to feel better soon!