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How many times did the Katie poop her pants...

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Ulcerative Colitis
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Posted 4/11/2014 1:57 AM (GMT 0)
I'm not sure... were we having a "How Many Accidents Can You Have In One Day?" competition that I was not aware of... but apparently my bowels got the memo?

I just put on my 7th diaper of the day.
And had three calls so close that I was cleaning poop off the toilet seat... like 3/4 of the toilet seat.

I might have to go against the dietician on this one... just like I told her.
These nutrition drinks do not agree with me. Wether its Boost, Ensure, Carnation Instant Breakfast... I really think its all the chemicals and junk in those drinks that is doing me in so bad.

I told her I couldn't stomach them but she told me to try. I need the nutrients. I'm too close to too malnourished. Well I've tried.
And Tuesday was okay and wednesday was not horrible but Today I crapped my pants 4 times before noon! Twice in my own driveway!

And wednesday night there was an hour that I went 5 times. Two diarrhea, one semi-squiggle/puck shaped poo that sorta kept its form when flushing, and then two more urgent diarrhea.

And I'm getting like NO warning with the poops today or last night. Not even a tummy grumble.
My first couple days out of the hospital I was all gas and grumbles and pain... but frequency an urgency were down.

Now I'm no warning... just crapping my pants. Frequency is still less than before hospital trip.
I am assuming the Remicade has decreased the frequency a little.
I think my increased "energy" and "feeling good" that I have a bit more than before is still from the fluids and potassium all weekend. But at this rate with these symptoms... I'll be dehydrated and all tired again. I also have been sleeping like 12 hours a night so that might be a good reason why I have some energy too.

Sorry to ramble... I'm just really frustrated. And really upset.
UC kicked my butt today. I tried to kick back... but I just ended up looking like a toddler on the floor of a toy store... all tears and screams and nothing to show for it.
Posted 4/11/2014 3:21 AM (GMT 0)
When do you go for your next loading dose? I think it's good that frequency is reduced. We all deal with urgency and looseness for quite some time while healing. If you're going less and yuo're starting to see some form, that's a good sign! I haven't had anything remain formed through a flush in a while. It's worrisome.
Posted 4/11/2014 3:44 AM (GMT 0)
Yeah my frequency is down... a couple bowel movements.
So instead of 12-18 a day its more like 8-14.

The puck like squiggles were the closest thing to formed ive had since I had squiggles a few months ago... I think in December I posted or maybe January.

But otherwise its just a jetstream of "water"
and my accidents seriously all look like refried beans in my Depends. Watery refried beans. But that color exactly.

Despite whatever im eating. Which isnt much, but keeping it mostly to all natural meat. Yogurt. And some jello.

Im def stopping the drinks. They are yummy and i would like them to give me nutrients... but I really think they are making things worse.

But then im not really eating either... again. Bad Katie.
im going to have such an eating disorder because of this disease...
Posted 4/11/2014 3:46 AM (GMT 0)
Next Remicade is the 21st.
And ill prolly get a bag of fluids w/potassium beforehand as well.
my GI said until I start show in improvement ill get fluids with my infusions. Which is nice!

Just hope things start getting better.
Posted 4/11/2014 3:47 AM (GMT 0)
I pooped in my shoe yesterday & I thought of you! Then I pooped all over the floor.
I'm in the hospital & just pooped in front of my nurse who's with me in the bathroom. Up until now my dog is the only one who sees me poop! First time for everything!

Crossing my fingers that remi helps u girl!
Posted 4/11/2014 4:17 AM (GMT 0)
I can't imagine those drinks being the best thing for you either, they are loaded with crap. I just feel like anything makes me sick when I am flaring. I stop eating 90% of the time when I am flaring. I have to otherwise I spend the entire day on the toilet and it's not productive. My deal is kind of like refried beans too but not that light in color. Mine always require 2 flushes. I wish they were formed and normal. I am not going too often which is good but it would be better if it were less urgent and more formed. A girl can dream. :) Let's just hope you keep seeing improvement.
Posted 4/11/2014 4:28 PM (GMT 0)
Sounds like the Uceris isn't helping much nssg??
Maybe it's time for you to up the meds too :/

Us girls need to quit dreaming... and actually get some darn relief!

Rbart- I recently pooped in my shoe. Made it all the way down my leg and into my shoe!
But how are you pooping in shoes?! You shouldn't be in shoes... you should be in comfy hospital booties!
Posted 4/11/2014 4:37 PM (GMT 0)
Ugh, do not drink that stuff. It's full of sugar and will make your diarrhea a lot worse (or, more like HAS made it worse).

I wouldn't worry about nourishment right now, honestly. Try your best to stay hydrated and take in some food -- protein is the most important -- and keep your chin up. If you truly become malnourished you'll need TPN. With your bowel in the state it's in, drinking Ensure is not going to make the difference between nourished and malnourished.

Your body needs protein to heal the mucosal lining of the colon, so I'd probably recommend a diet of stuff like toast, plain chicken, scrambled eggs... Whatever you can tolerate with a bias towards protein. If you have access to your recent bloodwork, you'll probably see a low-ish serum albumin level, a sign that you need to take in extra protein (as well as heal your bowel... but I know you're working on that).
Posted 4/11/2014 5:26 PM (GMT 0)
I could share so many pooping myself stories! You're not alone. It was my "that's the last straw" to go forward with surgery. Oh and those ensure/boost drinks were the worst for me. Don't drink those if they are causing you grief.
Posted 4/11/2014 6:20 PM (GMT 0)
It was at that point in time, Scott felt that sushi was not exactly the best idea for lunch.....
Posted 4/12/2014 12:50 AM (GMT 0)
I think I have to wait till I am off uceris to figure out the next steps. I have been using my cortifoam again to try to get things calm but they are still not formed at all. I am not going a lot though so I am not in terrible shape like I was a month or 2 ago. I will be kind of disappointed if I did all this stuff and took uceris and I end up needing a biologic anyway. I will feel like I should have gone with my gut and gone that route in the beginning instead of wasting time with uceris. I am hopeful it will work though.
Posted 4/12/2014 6:25 AM (GMT 0)
Well... my thoughts on those drinks are: screw you!

I crapped 8 times today. 1 accident.

I didnt eat much... but enough.
I had Chobani yogurt, turkey burger with natural bacon and natural provolone chez (no bun) ... I also had a few bites of my birthday pudding pie I hadnt been able to enjoy yet. And only 1 poop at work in my 6 hr shift :O

Then I was naughty with some pizza and pooped my pants. But my accident and the three poops after were NOT WATER. They all had consistency.
And didnt absolutely dissolve upon flush.

I am amazed. And excited.
But trying not to get too hopeful.
Always afraid of being too hopeful.

Tomorrow I have a bridal shower and Bachelorette party to throw! Ive only been out of the hospital 5 days!
Luckily I have a helper and had everything pre-planned before I got super sick.
and I made all the food... so I know what I can eat... which is almost everything cuz its home-made :)

Super looking forward to next remicade infusion and NOT putting those nasty drinks in my body anymore.
the Carnation Instant Breakfast seemed to have less of an effect as the Boost.
but im not touching any of it.

Im thinking of going to a health food store and maybe getting some all natural protein powder. Because yes my albumin was very low and thats why the dietician was trying to get me to supplement with the drinks as well as diet.

But until then... im sticking with the Hormel all natural Bacon. Lol. Every meal! And eggs.
Chicken has really turned me off as of late. Sick of it. Thinking ill try a salmon recipe a friend shared with me.
Posted 4/12/2014 7:17 AM (GMT 0)
I can't handle sugar at all, and those drinks are loaded with it. If you can tolerate it, my husband made me a shake with just plain greek yogurt, cinnamon, and a spoon of peanut butter. I basically lived off those after I got out of the hospital until my stomach accepted some eggs in the morning. They don't taste great, but it'll give you what you need to have a little energy.
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