those who are in remission.....

To attain remission is difficult sometime..and to maintain it is even more difficult. And challenging task.....For all those who are in remission/semi-remission...plz share your maintanance dosage..diet, no. Of bm's/day....how you attained remission...it will b really informative and helpful to others...

Naina, I personally think that gaining remission is harder than maintaining it. Once you gain remission you already found what works for you. The key is to keep doing what you're doing.

I got there by taking Uceris, Imuran (150 mg) and the spinach & seedflower seeds diet.

Currently I eat everything I want but I'm avoiding milk products. I'm on Imuran 150 mg. I have a bm every 2nd day. When I notice more mucus, I add Apriso and Cortenemas.

Colitis32, remission is an absence of uc symptoms. So, yes one would not suffer from urgency and the like.

And you are completely right that how long it takes varies quite wildly.

Ok so two days back i was asked to choose between cyclosporin and surgery..and yes miracle happened..my sigmoidoscopy showed no active collites...i couldnt believe my ears..i hadnt slept the night before sigmiodoscopy.. i searched about surgeries all night..i eat dairy gree..sugar free..fibre free diet..i even avoid preservatives and processed food...it was vonfermed by docs that i have ibs as well...but thank GOd im in remission as far as my uc is concerned..all those who are suffering..have faith ..miracles happen..and never loose hope..and pray to your almighty as he can turn your darkest hour into your brightest hour...lots of prayers to all of you...

Yay! naina!

Naina pretty much hit my nail on the head.

How did I get to remission? God. In absence of the protocol it was God's voice in my heart saying that "this life of sickness is not the one I have planned for you."

Knowing that at my core, that this illness did not define me and that it was being used as a tool to keep me and others from our own power... well, that made it a mission. My remission would have never been possible if I hadnt been listening for His voice.


Id been in remission but scared and we had a friend come to visit us that runs a large international ministry. I was making dinner for them and my husband requested I make a blue berry pie for our friend. That meant I had to make one for our family too that was dairy, gluten and sugar free and again, something would divide us there would be clean and unclean for my family on our table... and Id had enough. Right there our friend and his family and our family prayed. We prayed for healing we prayed I could eat gluten without feeling like I had a flu for 3 days. We prayed my youngest who would also react would not.. that she could go to a birthday party and just be normal.

And I made a blueberry pie with the flakiest crust of wheat and butter just like my Mother in law taught me. And I knew God had it. So I ate a piece of that pie and fed it to my kids... and none of us had a tummy ache.. we had a wonderful night with our friends. I stopped being afraid of food that day.

Its now been 9 months since that happened and I stay away from dairy and wheat for the most part, but I also eat it too. If I want a Rueben, I get one. If I want some cheesecake, I get it. Id never been able to eat dairy without problems in my life. Ive always been lactose intolerant.

So if you ask me how I got well, that is my most honest and heartfelt answer.

The other part of this answer is that through God he led me to people that helped. Like my doctor. Through a very integrative doctor I was able to find out alot of my complicating factors. I found out about MTHFR which lead to learning about epigenetics and I also found out about a few different pathogens that had gotten root in my body. Knowing the players involved help us actually treat the issue.

I cant tell you how transformational this last year has been.

Remicade + 6MP. 1 BM/day, totally normal. No diet changes (very little alcohol, though, because of the 6MP).

I appreciate that you all are keeping this thread going. :)

Definitely hard to go into remission than to keep it, for me.


While on Imuran, I would go every day or every other day. I lowered my wheat and gluten intake, dairy and red meat.

On LDN and Paleo diet, I can go every other day or every two days. Since cutting out some of the fiber from my diet (from bm issues), I go a bit differently now. Fiber supplements don't help, they usually cause issues also.
I eat fruits, veggies, chicken. Completely cut out dairy, wheat, gluten, red meat, certain produce that bugs me.

I did the WOO but added thyme oil, eventually cinnamon oil as well and Imuran of all things and played with the dose amounts till things totally clicked - The WOO thread is on here, I'll dig out the link and post if it you'd like. I have also stayed on this same treatment for 6 months now not just a short few weeks then stopping as some others have done.

Thread is: cautiously optimistic about Wild Oregano Oil (85% Carvacrol) Part II & Part 1
Edit: www.healingwell.com/community/default.aspx?f=38&m=2902715

Pretty much just 1 bowel movement per day now sometimes two - always formed (or 99.5% of the time), no blood, no mucus anymore.

Post Edited (Canada Mark) : 4/14/2014 6:51:22 PM (GMT-6)

Gluten never made any difference for me...i had left gluten before but then i added ot back..but everyone is different...i dont eat beef/goat meat...although eat chicken,fish..veggies are a big no for me..amoung veggies i take guard,carrot that too cooked...i add turmeric to every food i cook...home made yogurt i take a lot as it gives useful bacteria..boiled egg/day to get protein..

@PathogenKiller - I loved your answer! I wholeheartedly agree that God is the reason I am also in remission!

I was dx'd with UC in 2001. While the meds helped tremendously, I never really was symptom free. Then two years ago, I experienced another major flare. We upped my does of Asacol to the max dose of Asacol Hd. Since then, I have switched to Apriso once a day.

I really believe the reason I am doing so well is because an evangelist friend of ours prayed over me last fall. I have not experienced any symptoms since then! I know that is only because God touched me. :)

My dr and perseverance is how I found remission. Knock wood it holds cause you never know with this silly illness.

I take 4 Apriso a day and maybe once a week a steriod enema if I feel like I might need it.

I can live like this. I haven't seen blood or mucous since last sept I think.

I are six grapes and I about died of the pain the next night. The day later the peels were evident! Those are the evil doers for me!

Knock wood!