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Wisconsin
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Ulcerative Colitis
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embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 4/27/2014 4:36 PM (GMT 0)
Seriously.... how can I not find more UC people in WI?? Most everyone I find with IBD has Crohns.
Where are people hiding?!
And any suggestions for finding them?
I would like to start a support group (Butt Buddies - thru Girls With Guts) but who would come?! Lol.
ugh.
Thanks for any tips!
iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16483
Posted 4/27/2014 4:39 PM (GMT 0)
Search the restrooms? Surely if someone has uc then you'll find them there...lol.
I see you also take remi. I meet other people with uc when I get my remicade infusion at my GI's office. And it is nice to talk to someone who truly gets it.
I've never seriously looked for a local support group, mostly it seems, those groups are in larger cities. And I don't want to drive an hour or more to Portland, Manchester, or Boston which are the biggest cities near me.
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 4/27/2014 5:22 PM (GMT 0)
There is a support group in Green Bay.. WI's third biggest city. Its only 30 mins away... but I work evenings.
I stare at everyone in the GI waiting room... its shared with dermatology so most young people are actually waiting for that.
I should post signs in the mall bathroom :P lol
Im going to talk to my GI and get my support group referred through them too.
Oih.
Ive only had 2 infusions... the first I was quite the spectacle... passed out, major panic attacks... almost vomiting... yeah, they kept me behind a curtain once that happened. And second time I was in a room by myself... they saod cuz the other room was full... but really i think they wanted to see how id react... lol.
it went great though, so hopefully ill be let back into the main room. There are only 4 chairs tho... so I dunno what my odds are that the others are on remicade and especially that they have UC :/
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 4/27/2014 5:25 PM (GMT 0)
My infusion is at hospital outpatient. Not GI office, btw.
Red_34
Elite Member
Joined : Apr 2004
Posts : 23581
Posted 4/27/2014 5:42 PM (GMT 0)
You can go to the CCFA website and find your local chapter. Sometimes by going to the CCFA sponsored events you will meet up with someone who has UC.
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 4/27/2014 6:04 PM (GMT 0)
All the CCFA support group people in Green Bay have crohns :/ i havent gone to a meeting yet because I work evenings. But am friends with a few on Facebook now.
I just wish the people I found through Healingwell didnt live so far away.
even if i had the $ to fly and visit friends... I dont have the time off work cuz my UC already used it all up, lol.
TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 4/27/2014 9:35 PM (GMT 0)
always remember the 6 P's !
I mean really, who moves to Wisconsin anyway ;-)
Sunny13
Veteran Member
Joined : Feb 2014
Posts : 1120
Posted 4/27/2014 11:08 PM (GMT 0)
Hey--some of us are just born here (had no choice) but we love it anyway!!
tap
Regular Member
Joined : May 2008
Posts : 476
Posted 4/28/2014 1:23 PM (GMT 0)
soystud said...
I mean really, who moves to Wisconsin anyway ;-)
I just moved back to Wisconsin last fall. Apparently this disease is not limited to just the disruption on one's guts.
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 4/29/2014 2:44 AM (GMT 0)
Sunny.... tap.... you guys are in Wisconsin? Where about
s??
Sunny13
Veteran Member
Joined : Feb 2014
Posts : 1120
Posted 4/29/2014 3:03 AM (GMT 0)
Katie--
Milwaukee area. You?
However, before you get your hopes up for a possible support group, I should tell you I am not dx with UC. My dx is still a bit of a mystery, and I'm undergoing tests at Froedtert to figure out what the heck is going on. I post on a couple GI forums as I can relate to different pieces of the different diseases. I try to include that info when I post, so I'm not deceiving or misleading anyone. Hope you aren't mad.
Btw, honestly, do you think people are irritated that I post on here and am not dx with UC? My goal is to learn about
things like symptom management, meds, other treatments; and to offer support to people where I can. The last thing I want to do is piss people off or be a bother.
Ok, now that I have gotten totally off track and rambled on, I'll get going.
tap
Regular Member
Joined : May 2008
Posts : 476
Posted 4/29/2014 1:37 PM (GMT 0)
I'm over in the west central area. Google shows me as being about
4 hours almost directly west of Green Bay. I was also born and raised near where I'm at now although we are much closer to where my wife grew up.
Good luck in your support group quest.
embersglow1
Veteran Member
Joined : Nov 2013
Posts : 1612
Posted 4/30/2014 6:55 AM (GMT 0)
I live in Appleton. Four hours west of GB? Thats practically in MN :D
I think its okay to post when you are not sure of your diagnosis yet.
information is good! Knowledge is power! :)
Handicrapped
New Member
Joined : Mar 2014
Posts : 2
Posted 6/24/2014 7:26 AM (GMT 0)
I live in Milwaukee. So does my UC.
TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 6/24/2014 11:32 AM (GMT 0)
LOL !
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