HealingWell
Search Close Search
☰

FT Via Colonoscopy

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/27/2014 4:51 AM (GMT 0)
I've been wondering about this too, it's the only avenue i have not explored so far. And dr borody (the pioneer of FTs) is in australia, about an hour on the plane. Big difference from travelling to USA to see a doc there.

My only issues with this protocol are:
1) finding healthy donor stool. My husband gets constipation and gassiness and im not sure i want that, Lol
And nearly all my immediate family have some gut issues, not IBD. But either IBS or constipation.
2) how to survive the antibiotics before the transplant. After just two days on amoxi, or roxithromycin of keflex i start to get D with blood.
3) are the results "guaranteed"? Or is it possible to get worse?
4) i noticed some people need maintenance FT, like every few months. Or are results permanent?
Posted 4/28/2014 2:33 PM (GMT 0)
A friendly bump for jasherlynch!

ConquerUC - I don't believe some folks who were cured 100% from UC used any antibiotics. Michael Hurst and UC_hater both did not as far as I know. I know Brody has it in his protocol somewhere, but I believe dietary changes prior to the transplant fix some of the flora issues.

Post Edited (Guardian7) : 4/28/2014 9:45:31 AM (GMT-6)

Posted 5/1/2014 7:14 AM (GMT 0)
Great thread Jasherylynch! Please please keep us updated. I'm just getting ready for first DIY fts at home and your story made me realise that if it fails I'll have to work harder on finding a GI that will be willing to do it colonoscopically. I might need to fly abroad.

Yes 5-asa can be very bad. After taking it for 3 month only I was in hospital with a severe liver infection (bilirubin 14.5). Luckily I stopped it as soon as I saw the dark urine and after a few days I went to the hospital. To begin with the consultant insisted it had nothing to do with the drugs. They did all the tests and could find nothing. Thus they concluded that it was an autoimmune disease and told to start taking steroids. I remember they brougth the pill to my bed in the morning and I asked to wait and see the result of the blood test from the evening. It went down to 8.5 (after stopping the 5 asa bilirubin kept going up for another few days). I was discharged from hospital gradually the bilirubin went back to normal! I went to see the consultant again probably a few weeks afterwards. He made a joke about it and said I was luck. Never apologized for his mistake.

Anyway, for everyone who is interested I daily report my progress with the fts.

Sharron
Posted 5/1/2014 7:26 AM (GMT 0)

sharron19 said...
Great thread Jasherylynch! Please please keep us updated. I'm just getting ready for first DIY fts at home and your story made me realise that if it fails I'll have to work harder on finding a GI that will be willing to do it colonoscopically. I might need to fly abroad.

Yes 5-asa can be very bad. After taking it for 3 month only I was in hospital with a severe liver infection (bilirubin 14.5). Luckily I stopped it as soon as I saw the dark urine and after a few days I went to the hospital. To begin with the consultant insisted it had nothing to do with the drugs. They did all the tests and could find nothing. Thus they concluded that it was an autoimmune disease and told to start taking steroids. I remember they brougth the pill to my bed in the morning and I asked to wait and see the result of the blood test from the evening. It went down to 8.5 (after stopping the 5 asa bilirubin kept going up for another few days). I was discharged from hospital gradually the bilirubin went back to normal! I went to see the consultant again probably a few weeks afterwards. He made a joke about it and said I was luck. Never apologized for his mistake.

Anyway, for everyone who is interested I daily report my progress with the fts.

Sharron

Pretty sad that your doctor also didn't man up and apologize. When I suffered a severe reaction to a drug, my doctor did the same and blamed it on everything else but the drug - anxiety, depression, other drugs, etc. I have to give her credit because it was some really creative shiiite. Do they recite this stuff in the mirror or something?

FTs will only get approved when the medical complex and doctors realize how futile they are in treating most modern, degenerative diseases. They can't help but shun anything that goes beyond the prescription pad. Wouldn't you feel useless if all you were trained to do is see a patient for 5 minutes and not write a prescription for something?
Posted 5/4/2014 12:55 AM (GMT 0)
jasherlynch

Thanks for sharing your experience. Did you take antibiotics the week before the fecal transplant?
Posted 5/4/2014 4:37 AM (GMT 0)
jasherlynch seems to be long and gone, at least for a week now. we have questions! entertain us!

no uc = no problem.
Posted 5/6/2014 9:01 PM (GMT 0)
Good for you jasherlynch; for being your own advocate and not allowing the doctors to dictate your treatment, which didn't seem to be working. My son had a FT via Colonoscopy in July 2013. After that, he had a series of 4 enema transplants. He was off all med's and in complete REMISSION for the first time ever! That lasted until he contracted a sinus infection and took a 3 days course of Antibiotics. Within days of taking the Antibiotics, all of his UC symptoms returned. We are now doing Prednisone to get the inflammation under control and will be doing FT's very soon. By the way, his remission lasted for over 8 months!! That's something he was never able to achieve with medication!
Posted 5/13/2014 11:12 PM (GMT 0)
Congrats jasherlynch and thank you so much for sharing your story. I was also frustrated with some of the doctors I was dealing with. The surgeon at Mayo Clinic in Jacksonville told me I was crazy for canceling surgery. I will say that there are some supportive doctors out there too that I spoke to including Dr. Kelly and Dr. Brandt.

Even my GI who referred me for surgery thought I was a little less crazy after realizing that I had been in touch with other doctors before taking the plunge to do it myself. However he was at a loss to explain the changes from the colonoscopy he did about 2 months after I finished the fecal transplants, since Ulcerative Colitis is not supposed to be an illness where you can be cured!
Posted 5/13/2014 11:59 PM (GMT 0)

FecalTransplantForUC said...
Congrats jasherlynch and thank you so much for sharing your story. I was also frustrated with some of the doctors I was dealing with. The surgeon at Mayo Clinic in Jacksonville told me I was crazy for canceling surgery. I will say that there are some supportive doctors out there too that I spoke to including Dr. Kelly and Dr. Brandt.

Even my GI who referred me for surgery thought I was a little less crazy after realizing that I had been in touch with other doctors before taking the plunge to do it myself. However he was at a loss to explain the changes from the colonoscopy he did about 2 months after I finished the fecal transplants, since Ulcerative Colitis is not supposed to be an illness where you can be cured!

You're god d*mn right. More power to ya for proving those white coat clowns wrong, pal.
Posted 5/14/2014 12:05 AM (GMT 0)

herbgarden said...
Good for you jasherlynch; for being your own advocate and not allowing the doctors to dictate your treatment, which didn't seem to be working. My son had a FT via Colonoscopy in July 2013. After that, he had a series of 4 enema transplants. He was off all med's and in complete REMISSION for the first time ever! That lasted until he contracted a sinus infection and took a 3 days course of Antibiotics. Within days of taking the Antibiotics, all of his UC symptoms returned. We are now doing Prednisone to get the inflammation under control and will be doing FT's very soon. By the way, his remission lasted for over 8 months!! That's something he was never able to achieve with medication!

Antibiotics for sinus issues are notorious for causing colitis in folks. That's just a hard trade-off to make. Here's what the data says for using antibiotics to treat sinus problems:

94% saw no benefit
6% were helped by faster resolution of symptoms
12% were harmed by medication side effects

I would err on the side of caution if they do this again. There is a strong potential for causing unintended complications with this mode of treatment.

Ginger, turmeric and honey clears most sinus issues within days and does NOT cause ulcerative colitis.

Post Edited (Guardian7) : 5/13/2014 6:08:21 PM (GMT-6)

✚ New Topic ✚ Reply
12