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Ulcerative Colitis
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Posted 4/29/2014 4:57 PM (GMT 0)
Hi, I have just been diagnosed with UC (in hospital for a week 3 weeks ago). I was on antibiotics throughout and finished those a week after leaving hospital. I have also been on prednisolone decreasing by 5mg (?) a week. I have been doing well, minus the swollen face! lol. However this week i have started having a few stomach pains and looser BM than i have had since being discharged. Is this normal or is it another flare? I have been keeping off dairy as i found this does help me but, with it being easter i did indulge in a little bit of chocolate :) So not sure if its just that
rolleyes
Posted 4/29/2014 5:39 PM (GMT 0)
Prednisolone is not a cure. It only works while you take it and you will fall right back into the same ole same ole after tapering down or off. Did you have C-Diff? Why were you taking antibiotics? Are you on any other meds? The normal course for UC is to take both prednisolone and some kind of a maintenance med (not antibiotics) so that after tapering down on the pred the maintenance med will hopefully keep you in remission and you take that med forever because you can't take pred long term. You don't appear to be on any kind of maintenance med at all. What country are you in? So far your treatment plan sounds stupid.
Posted 4/29/2014 5:57 PM (GMT 0)
In addition to what Gary has said, I find chocolate makes me hurt.
Posted 4/29/2014 6:21 PM (GMT 0)
Yeah. Chocolate is usually not our friend. I've been doing a little worse since Easter. The bunny has given me a temporary chocolate candy habit that I have been finding hard to kick. Usually I'm not that big on candy. Other chocolate doesn't seem to bother me but candy does and it's not the caffine and it's not the lactose. It must be the histamines as I am histamine intolerant. I take DAO for that at meals but I don't usually eat chocolate candy for meals.
Posted 4/29/2014 8:15 PM (GMT 0)
The only med they gave me to keep taking is calaichew, i am supposed to go to clinic soon but haven't had a date yet (typical right!). I am in the UK and i am on so many meds i couldn't list them all as i have ankylosing spondylitis (had it for the past 6 yrs) and i am a diabetic. They gave me antibiotics, steroids and lots of fluid when i was in hospital as i was very poorly. I had symptoms for about 2 months before they sent me straight from the dr's to A&E, so you guys prob know what that looks and feels like!

I do not have C-diff and, i am guessing they will give me another tab to take daily but as i said i haven't been seen in clinic yet, so just carrying on with the steriod until i have finished the course (should be about 4 weeks). I just wasn't sure if this is normal for a flare up, feeling bad, feeling better then having a couple of days or so where it feels like there is another flare coming. As i say i was only diagnosed 3 weeks ago and this is my first flare up so i have no idea what or how i should be feeling!
Posted 4/29/2014 8:46 PM (GMT 0)
It would be helpful to know what meds you're on for the ankylosing spondylitis. I bet your DRs hope that one med will cover both your AS and your UC (these two conditions often come together).

If your symptoms are increasing as you taper the pred, stop tapering and call the clinic.
Posted 4/30/2014 7:56 AM (GMT 0)
I am on a few different meds but for my AS i am on Arcoxia 120mg, Amatriptaline 30mg and tramadol 100mg. I have Co-Dydomol (8 a day) as a back up if i need it but, i try not to take it unless i am really bad.

Then the rest of the diabetic ones, i swear i must rattle!
Posted 4/30/2014 10:29 AM (GMT 0)
Newbie...My loved one has this, took four years to realise what to do to combat this..here it is..Look at UC like its a monster from the dark side of the moon, accept you got it and really want to be rid of it...we finally did this and now have got an 80 percvent reduction so far.We are convinced that UC might be directly related to the vast quantity of chemicals put in or on food from the time it is grown on the farm till it reaches the dinner table..it all goes into the gut system. Our gut system is supposed to be placid easy going and alkaline and very capable of handling the vast array of bugs parasites and germs going through it but it slowly goes down hill and struggles to do its job because of the huge amount of acidic foods going in. Eat only good foods no garbage foods,find these by reading what other UC sufferers eat,find what suits you, a good probiotic no junk food at all
Posted 4/30/2014 10:47 AM (GMT 0)
Newbie....To continue...Do what we did and read these UC sites...find out what food suits you..we started to win against the monster when we did this..go gluten free wheaten free acidic food free..get a book or nutririon diet hand out and see what its like..perhaps like us you will suddenly realise how much acidic foods we really eat and what is really in modern food. The planet is now trying to feed &and a half billion people and to do this the food radically changed to long life it..unfortunately the gut sffers...look at what you eat..now change immediately get Omega three food as an example We use a really good probiotic and eat only healthy food and it works.We found all of this on UC sites..look on the web now and find the food and fruit that suits you all UC people are a bit different..get a nutrition guide ..never eat crap foods again...the body wins..the bug looses
Posted 4/30/2014 5:05 PM (GMT 0)
Thank you for your replies, i do eat quite well being diabetic i can't have much junk food. Not gonna lie i do have some but not a lot :) I can't seem to handle fruit or much veg atm, peas seem to be ok and potatoes with no skin, carrots are ok but nothing else so far.

I have completely changed my diet as much as i can, not too much fiber and no more whole grains. Seems to be doing me good and, the pains i had have virtually gone so hopefully it was just a blip!
Posted 4/30/2014 9:25 PM (GMT 0)
Newbie...quite sorry...forgot to tell you ...no sugars...Have read above that is how to do it...monitor all you eat and get rid of all things which affectyou badly...the bug loves chemicals sugars irradiated food starched food all manner of slop and garbage additives genetic modifications acids. Try getting on the web and looking at the food...we looked up those little cracker biscuits...they are not even food....other products the body does not recognize as food at all...You need a very good juicer to grind up fruit so no pth or skin..eg pineapple apple and watermelon juiced suits loved one but half glass at a time only, rice and fish, if a well time small meat piece thoroughly chewed with light salad. Again all UC people are different some really good reactions some really bad.The bug hates good eating and really hates you to exercise so lved one really exercises well
Posted 4/30/2014 9:49 PM (GMT 0)
Newbie another tip on food eating..loved one found a Tyland food place while visiting friends and UC stopped immediately when eating this type of food...same happened when on overseas holiday. Beats me why Ty food great but definitely no curry..no Ty food where we live unfortunately. The probiotic we use is called VSL 3 buy it on the net Alovera is really great Never never just sit in your room the bug loves this..go out into the sun and enjoy the day you get the wonderful vitamin D and feel good the bug hates this We thank our lucky stars we found such a common sense approach to this ailment and it works.Loved one thinks when the gut got so bad the bad bug got in and kicked out all the good bugs so now we are reversing the process and the bad bug does not like it one little bit because its days are numbered..so much to tell you but no space..use web to find foods and experiences of Uc people..when you win never go back the other way again
Posted 5/6/2014 1:55 PM (GMT 0)
Thank you for all the information linc, unfortunately i can not do the fruit thing as being a diabetic the natural sugars in fruit really mess my BS up! lol I do eat well so i am not too worried about that now.

I have started feeling a bit worse today so i have spoken to my Dr and, he thinks it might be an idea to up my predis again for a couple of weeks but, wants to see me tonight to rule out any infection.

Hopefully i will start to feel better soon, its been a confusing few weeks! Not knowing if its normal, caused by the stress i have had or food. turn
Posted 5/6/2014 2:47 PM (GMT 0)
Prednisone is bound to make your sugars harder to control. I hope you are managing alright. The first few months can be hard as everyone tries to figure out the right treatment.
Posted 5/6/2014 6:24 PM (GMT 0)
Oh they go crazy high! but i manage to get them down most of the time. Doctor has put my pred back up from tomorrow so fingers crossed smilewinkgrin
Posted 5/7/2014 3:57 AM (GMT 0)
Vicky...get a book on nutrition from library..lok up site on web for food and diabetic then look up uc food on web to cross refence both. see what might suit both but above all see what does not...always convinced its the food that damages the gut system from reading hundreds of uc experiences. Many times you will see uc people vastly improve from changing food like my loved one..its amazing..once said only marriage ever would be to the dunny...but now old life returned..happy as..I always said you must fight with all your might and good will come..never never give up..treat it like a bug so you can really beat up on the bug..but really wished went the food way years ago sort of like watching a dog chase its tail to catch the tail it only has to stop and look..uc is about the same.
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