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Advice needed. I dont have UC, but the love of my life does and I dont know how to help him..
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tigerlady0810
New Member
Joined : May 2014
Posts : 4
Posted 5/8/2014 4:40 PM (GMT 0)
I don't have UC, but the love of my life does. He's in the hopsital at the moment being treated for pain and inflamation. He was on remicade for a long while and it was helping, but they stopped him cold turkey for no good reason. He was doing really well for a while without it, but now not so much. I want to help him, but I'm not a doctor, so there's not mucht that I can do that I know of. He doesn't have the best nutrition habbits, and Im in school to be a nutritonist, so i figure I can help him with his diet at least. I'm only just finsihing my first year of college so I dont have much knowledge yet. He is the pickiest eater in the universe. He refuses to eat ALL veggitables accpet for green beans. And no fruit at all ever, accapt chocolate covered acai berries and V8. If anyone could tell me a list of foods to avoid or that may help him feel better it would be much appreicated. and anyother advice s far as helping him in general I would appreciate. He's only 20, and has alot of potential. He wants to become a video game designer as well as a world renouned Parkourist (tracuer). He is bed ridden atm and wishes he could be out doing what he loves right now. I want to help him get to where he wants in life, but dont know where to begin.
Marauder93
Veteran Member
Joined : Feb 2014
Posts : 1185
Posted 5/8/2014 5:00 PM (GMT 0)
Im so sorry to hear about
your situation. Your boyfriend sounds like hes in a very similar situation as myself; young, picky eater, not much working for him, so I can definitely empathize with the two of you.
Diet is a very tricky thing with UC. What works for one person may not work for others. For instance, one of my friends with UC is only really able to tolerate fast food, while most types of healthy food make her sick. The best thing he can do to determine what is good and what is bad for him (with regard to symptoms at least), is to do various elimination diets. Add/remove one specific food from his diet for a week or two and see if you notice a difference in symptoms. This works best if he keeps track of exactly how many BMs he is having a day. Its great that he has a gf studying nutrition, hopefully you can help to modify his diet so that he can get the nutrients he needs while taking the foods he can tolerate. As for the whole vegetable/fruit avoidance thing, its relatively common. I find that eating any sorts of fruits and vegetables makes my symptoms much worse so I have to avoid them 99% of the time as well. I think the best thing to do is to first find out what foods he can tolerate, and then figure out a diet that lets him get the proper nutrients.
What Im really curious about
is why did they take him off Remicade if it was working for him? Was it a cost/insurance thing? Its dangerous to take someone off of it because coming off and going back on increases the chances of developing antibodies to the drug, which is bad. Would you mind telling us a little bit more about
his history? We may be able to give you a little bit better advice with a little more information! : )
imagardener2
Veteran Member
Joined : Jan 2010
Posts : 5896
Posted 5/8/2014 5:05 PM (GMT 0)
1. Give him this website address and he can surf through it without anyone knowing who he is. Just gather information.
2. Although I achieved remission through diet modification it took me a loooong time to figure it out. Not everyone gets improvement through diet. When he has no other choice but to try diet it will be up to him (you can support his decision but don't force it). Most doctors don't suggest diet helps so don't expect that.
3. My non-UC spouse doesn't eat many veggies except for green beans haha. My gut loves them so they are frequently on the dinner table.
4. My gut dislikes fruit (causes multiple BM's, gas and other bad symptoms) so no fruit is not a bad thing. He can get vitamins from other sources. Surprisingly meat has a lot of vitamins.
5. Here's some ideas to start with:
Rectal enemas--Rowasa (brand name) melamine enemas also available as generic. Treat the inflammation right where it starts in the butt. He'll need to get over embarrassment and use one every night. Real men use enemas to get better.
Probiotics-these are the good bacteria his gut needs. VSL#3 is the strongest, available online directly from the maker. Expensive but stronger than anything you can buy in the local stores.
The "sachets" can be mixed with water and drunk daily. The pills are't as strong so he'll need to take more of them.
Eliminate bread, pasta and other forms of gluten for 30 days. See if his symptoms get better.
Next is to do the same with dairy, eliminate, see if there's improvement.
Forget getting "allergy" testing because it's not an allergy. It's a wounded gut not able to process foods like a healthy gut.
Eliminating caffeine helps eliminate problems for some people (that includes chocolate).
Homemade chicken broth is a great way to heal an inflamed gut. Later you can add chicken and well cooked green beans.
Eliminate insoluble fiber (nuts, oatmeal, no whole wheat either, look up other sources) to make it easier on his digestive system.
Homemade smoothies with coconut milk and coconut oil along with whatever he'll drink can be healthy. Maybe protein powder without many chemicals.
Start asking for copies of his medical tests (blood tests, colonoscopies) and ask why Remicade was discontinued, write down the reason.
Good luck.
YellowJacket
Regular Member
Joined : Mar 2011
Posts : 80
Posted 5/8/2014 6:17 PM (GMT 0)
Hi there,
A strict diet goes a very long way in minimizing the effects of a flare.
Here are some guidelines that work for me when I flare:
- A diet that is very low in grains (carbs)
- Very sparing intake of insoluble fibers (nuts, uncooked veggies, fruits)
- Get rid of as many simple sugars as possible - sodas, candy, deserts
- I eat a lot of chicken (not fried), fish like salmon and tilapia, and *some* eggs
- I also eat well cooked veggies like Zucchini, squash, avocado, and egg plant that are easy to digest and are low in sulfur
- Rice also works for me so I eat it in small quantities
- As things calm down I might try adding in things like peanut butter and yogurt.
The diet part is probably one of the harder things about
UC, but it is the cheapest way to keep yourself healthy now and for the future.
Good luck!
garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 5/8/2014 6:46 PM (GMT 0)
First you've got to realize that it is unlikely that you can actually help him, even with diet. It sounds like he eats what he eats and even though you might have a small influence, you're not going to get him to change his diet much. As others have already said, everyone's case is different and sometimes it is the healthy things which make us worse. There's no guarantee that if you were able to get him to eat healthier that it would actually make a difference in his condition. It does in some but with others it does nothing. There had to have been a reason why the doctors stopped Remicade. He must have been on some other meds. Do you know which ones? Is he taking any probiotics? I really hate to say this but this is kind of like being an alcoholic. He has to want to help himself to get better. There is only so much you can do and, honestly, that is very little. There are really no foods which help UC, only foods which can make UC worse but those foods are different in everyone. It's all trial and error. Does he work or go to school and have insurance?
Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 3052
Posted 5/8/2014 6:47 PM (GMT 0)
As far as probiotics go......tell him to get a prescript
ion from his doctor for VSL#3 DS. VSL#3 is not covered by insurance but the DS is.
jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 5/8/2014 7:24 PM (GMT 0)
For some of us, it makes no difference what we eat. Some things (cruciform veggies for instance, or highly spiced/greasy food) will cause more pain when I'm flaring, but what I eat has never caused, worsened or improved a flare.
We're all different, and only he can determine what bothers his gut. Keeping a food diary is an excellent start.
Michelle816
Regular Member
Joined : Aug 2012
Posts : 120
Posted 5/8/2014 11:39 PM (GMT 0)
A resource you might find helpful concerning diet is www.againstallgrain.com. Wishing you both well.
Poppie
Veteran Member
Joined : Feb 2014
Posts : 2169
Posted 5/8/2014 11:56 PM (GMT 0)
Hi, unfortunately its true, that diet can have little effect on some people, he is really going to have to find out what works for him, its not as difficult as you would think, but it does take some effort, a journal for a couple of months would help, speaking for myself I knew quite quickly when something didn't work as I legged it to the toilet..fast!! but sometimes its the next day people have problems...My diet is nutritious and simple, I have found out what works for me, and I stick to it, the depressing news is that alcohol is not good for most people with UC, and I think that is hard, especially for someone your boyfriends age. I'm in remission at the moment, but if I take a tiny tiny glass of beer, its like everything turns to mush, no blood, but its nasty...my body will just not have it.
garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 5/9/2014 2:01 AM (GMT 0)
Might want to try a few DAO pills before drinking alcohol. You might be very surprised with the results. Alcohol is high in histamines and DAO digestive enzymes can help break down the histamines.
Poppie
Veteran Member
Joined : Feb 2014
Posts : 2169
Posted 5/9/2014 3:42 AM (GMT 0)
Gary, Really? What do you use? Can I buy it on Amazon? It would be nice to have the odd beer or even a glass of wine!
garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 5/9/2014 12:47 PM (GMT 0)
Personally, I don't drink alcohol anymore. Nothing to do with UC. I more than got in completely out of my system in my younger years. But, with UC I do have a histamine intolerance. Many UC'rs are low on the digestive enzyme DAO, which helps break down excess dietary histamines. Many foods and drinks (including most alcohols) are high in histamines and, if you are histamine intolerant (as many UC'rs are), then your UC symptoms can get much worse after ingesting high histamine foods and drinks. Since taking the digestive enzyme DAO (I get mine online from Swanson) I can now eat and drink high histamine foods with no problems. Unfortunately, it's not an exact science dosage wise. You can't overdose on the stuff but you need to take enough DAO to counteract the amount of histamines you are ingesting and, since histamine levels are not found in labels, it is all guesswork. If you take too much it merely goes to waste. I take more pills when I know I am ingesting foods known to be very high in histamines. I'm not guaranteeing you success in drinking alcohol but it is VERY LIKELY that taking some DAO before drinking will indeed help you. It doesn't hurt to give it a try once and see what happens. Just make sure you take enough DAO to compensate for the amount of histamines in the drink which, as I said before, is mostly guesswork and trial and error, dosage wise. If you research reviews well enough on the product you should find some where it does help with alcohol consumption.
tigerlady0810
New Member
Joined : May 2014
Posts : 4
Posted 5/9/2014 1:34 PM (GMT 0)
I think I'm going to research more into gluten because I've heard about
that from multiple people that gluten free is generally helpful. There's also the fact that he's just slightly lactose intolerant. His favorite foods are breads and ice cream unfortunately. I've looked around my local nutrition s'mart and they have a ton of dairy free gluten free foods, now its just a matter of figuring out which ones he will eat to start. He doesn't take to kindly to the idea of trying new pills at this time, only because he feels overwhelmed by the fact of doctors always being like "here try this one, then this one. and -maybe- it will work this time". :/
Poppie
Veteran Member
Joined : Feb 2014
Posts : 2169
Posted 5/9/2014 4:42 PM (GMT 0)
tigerlady, I'm lactose intolerant too, I was absolutely fine before UC, it seems to be a common problem with UC folk..anyway good look, he's lucky he has you to help.
Gary, thanks, its something I could try for a special night out, even then I would only be wanting to take one drink....which would be very nice!
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