Remicade success stories....

Remicade has changed my life. I have been on it five years now, have gotten pregnant, had a beautiful baby boy and breastfed him for a LONG time (remicade is safe for a breastfeeding mom as the drug is far to massive to pass the mammary epithelium, it highly protein bound to the mother's blood supply and is not orally viable). Remicade does has side effects, but the only one that tend to get are little skin infections. You DO have to be ontop of your skin. Beware swimming - heated pools are bacteria heaven. I use a tea tree oil shampoo and soap that works well. I have had Crohn's for 27 years and Remicade is the only drug I now take.

I will say I put on 20 lbs almost instantly on Remicade, but have finally gotten back to my normal weight.

I've been reading the stories posted here regarding Infliximab as i feel its my last hope.
I don't really care about the side effects as i'll deal with them as and when.

What suprises me is the price people have to pay for the drug that can change your life for the better.

Here in the UK its a bit of a lottery as to if you are prescribed it by your hospital due to the cost, the National health service pays for it meaning the patient pays nothing.

I cant wait for my infusions now, got a three week wait yet as i only had a sigmoid exam yesterday confirming that the imflamation is still present even after large doses of 6MP.

After receiving remicade infusions since 2004 to control my U/C (successfully after suffering since 1975) with zero side affects. For the past 7-8 months I've had continuous ear infections and an itchy rashes on my arms, thighs and turso. I have been to 4 different ENT Doctors and 5 different Dermatologists. Also in this same time-frame I developed an abcess in my groin area that reoccurred in the same spot 3 times and drained by the same doctor. The last surgery was May 4, 2013 and the wound has not healed after 2 follow up visits. In addition to everything else I have been going through, I have extreme constipation. Since my Feb 2012 annual colonoscopy I have no desire to move my bowels and I once waited 5 days just to see if I would eventually go, I did not. I discovered prune juice about 8 months ago and drink it early in the morning because worked for me like a laxative without the harshness I get from laxatives but for the past 2 weeks it no longer works like it use to. Initially, I consulted 5 different GI Doctors 4 within the group of my regular GI Doctors and 1 in another state. Not one of them think it is alarming that I can no longer move my bowels on my own. I have been to the ER several times when the rash and ear infection became unbearable, they referred me to ENT and Dermatology Specialists both I had already seen more than once each. My husband and I believe not having regular bowel movements along with the remiicade has caused my immune system to be compromised but we cannot get the doctors to believe this or run tests for my immune system. CAN ANYONE HELP ME PLEASE!!!!

Remicade has worked wonders for me and others with uc, so it is certainly worth a shot. Sorry to hear you are in the hospital over this. Good luck, and I hope you heal fast!