would you rather ................. ?

i love that christmas picture of eli you sent me, lonnie! i still have it on my fridge haha

"i love that christmas picture of eli you sent me, lonnie! i still have it on my fridge haha"

I could give up "some" foods forever, "most" foods for a while, "all" food for a few days or so. Post-surgery diet is a major concern of mine.

well, you know my answer- I emptied my bag then scarfed down a bunch of peanut butter cookies I made over the wknd- with butter, flour, sugar, etc! Delish! Tornado, post-op diet is no big deal- I was on clear liquids for 2-3 days, then whatever I felt I could handle. I think my first real meal was a grilled cheese & chicken noodle soup, some squash, on day 3. Have been eating salads, fruit, all the roughage foods. I don't even chew all that well.... I try to remeber, but... Tonight we're having homemade pizza for dinner- 1 pesto, 1 cheese. And I drink beer, wine, etc. Coffee, tea... Soy, what gets me is that you think a bag is totally gross & inconvenient, but what the heck is a j tube or g tube? They both sound gross & inconvenient to me... yet you seem to pay them no mind when it comes to your child. How are either of those any different from an ostomy? I ask in all seriousness. Isn't it just getting nutrition thru an alternate route, not one's mouth? Which is the same as pooping thru an alternate route, no?

I get it.... I guess it just surprised me that you seem to find nothing gross about the feeding tubes, yet an ostomy grosses you out. I suppose it's all about what you get used to- if it's necessary, then it's stops grossing you out. And you know, the poop in an ileo bag is far different than the poop from your butt! Anyway, I like the act of eating, I need to gain weight as is, I like cooking, grocery shopping.... so bring on the food, I'll emoty the bag later!

the most interesting thing is the kid eats the same thing EVERYDAY but his poops vary, in consistency, amount and SMELL from one day to the next - only minor variances, but noticeable - it's weird -

soystud said...
and to be honest, a big reason for this thread has to do with a certain miserable feeling bag lady and curious as to her reaction to the question - but alas, she has not responded -

No idea who you're talking about but I'll respond... >_>

Yes, I would choose an ostomy bag over TPN. There is somebody on the Crohn's board who is on long-term TPN due to short bowel syndrome, but I remember him once saying he also ate 3000-4000 thousands of calories of food a day. Seem to recall there was another woman with Crohn's who was in a similar situation. At least they still get to eat, but long-term TPN is not good for you; it hammers the liver and probably has other side-effects that I don't know about.

The closest I've been to TPN was a couple of liquid diets. The elemental one was a nightmare - the drinks tasted and smelled like vomit - and my hair turned into brittle straw. It was a starvation diet. Gave up on that after two weeks. The non-elemental one was okay. I was on it for a month and found, to my surprise, I didn't really miss or crave solid food. A month is not very long, however, and I'm sure after six months I'd have been tearing my hair out.

So yeah, picking the ostomy bag over TPN is a no-brainer, even for me.

By the way, for the record, I am not remotely bothered by your saying the bag is gross and inconvenient. In my opinion, it's pretty much true anyway. It's just one of those things I have to try to accept that I needed to have. Some days are easier than others.