Who is on Remicade and Rowasa enemas?

I was wondering how many of you are on Remicade as well as the Rowasa (or generic) enemas? I haven't used the enemas since I have been on remicade because I figured the remicade would do the trick for the urgency. I was also worried that I may have been allergic to the enemas and that they may have been causing things to be worse. I also may have been so bad that the rowasa wasn't able to do its job. What are your thoughts on starting them up again? Cortifoam seems to help, but just isn't reducing the urgency.

Been on Remicade for just over a year now. and been mostly in Remission that whole time. I did have a minor issue this winter with some minor bleeding and mucus for like 2 months. My GI doesnt believe 5asa's do much once you are on big gun like Remi. but since I had some still kicking around and since the bleeding wasn;t going away I self- medicated and did the enemas for like 2 weeks.

At that point I also got my infussion but the next day no more blood or mucus - not sure if enemas helped but they didn't do any harm - and if they did set up a bit of healing before the nest Remi than I'm good with that- would try again if issue come back.

With a disease like this my approach is - hey ! whatever works! Do it!

Lr21
How long have you been on Remi? have you reached remission at all and this symptom returned or is this the last lingering symptom?

I see you are at 5mg/kg@7weeks, I've needed nearly twice that to reach remission. I do 10mg/kg@8weeks. Maybe worth talking to your GI about stronger dose???

Not all docs. are comfortable with it and insurance companies don't like it.. (lol) but for me, my GI was ready to justify it and it worked!

Lr21 try any Metamucil? It might help a little.

Depends on what brand you get, dosing can vary. I mix a couple teaspoons of the generic, powdered Metamucil with a glass of water each morning and it firms things up a bit (it won't turn diarrhea into perfect poops) but a slightly more solid poop can reduce urgency, and for me it makes things more consistent day to day. There's Metamucil, Citrucel, and some generics in powdered form and there are also pill versions as well. Most are based on ground up psyllium seed husks.

Lr21, I don't do much diet wise at all. I've always been one to believe my body tells me what it wants/needs- so I eat well but not a fanatic on health foods nor to I avoid the occasional fast food.
I do take multivitamins and a pro-biotic, but other wise... go with my gut! (lol)

Hope this works for you!