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Entyvio in the UK ?

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Ulcerative Colitis
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Posted 7/7/2014 10:22 AM (GMT 0)
So I am aware people have already posted about entyvio , I am currently waiting on my private physician to give me the go ahead . He , surprisingly has never heard of the drug and I was wondering if anyone in England or the UK had been prescribed it yet .

Also to all those that are on it should I be wary of long lasting side effects ?

I think this is my last option before surgery so any input would be greatly appreciated .
Posted 7/7/2014 12:21 PM (GMT 0)
I talked to my NHS gastroenterologist on monday and she said they weren't offering to anyone at the moment because they aren't convinced of its usefulness for UC patients. I didn't push her further on it because my UC isn't really at that stage yet but if yours is serious I recommend digging a little deeper.
Posted 7/7/2014 1:13 PM (GMT 0)
Hmm does not sound too promising .

I have a meeting booked in for next Tuesday (Dr is on annual leave ) . I think my flare is certainly down to University results stress , hopefully once that Is out the way I can focus on my health .

I will certainly push for it and see what happens , will certainly keep people updated .
Posted 7/7/2014 5:48 PM (GMT 0)
I think a lot of the people in the Entyvio trail would disagree with your doctor. Some found it very useful...

Post Edited (rogo66) : 7/7/2014 11:51:59 AM (GMT-6)

Posted 7/7/2014 8:55 PM (GMT 0)
It has better stat's than Remicade did- look into for yourself. It has been big news in the GI world, so if you are a GI and have never heard of it....hmmmm, me thinks you probably don't know much about your profession. The changes in the last few years based on new research are worthy of continuing education. Looks at us here-we study every new drop of insight.
That said, new drug isn't right for everyone, not one of the drugs for UC is! Do look into it before surgery though and make up your own mind.
Posted 7/7/2014 11:23 PM (GMT 0)
I mean I have researched intently like most of us do with new breakthroughs . My GI is very highly regarded in London which is why I was thrown off by his lack of knowledge .

Every drug I have used I have subsequently reacted to with great success , this is until I have used it to its limit and its run its course on my body .

I feel like this disease gets smarter every time I try to nip it in the bud . Steroids are useless , asacol is useless and now my azathioprine ( with which I had great success ) is not proving to be so effective any more . With all this entyvio hype I'm feeling confident it could work , no harm in trying I suppose .
Posted 8/11/2014 10:52 AM (GMT 0)
The drug is approved for use in the UK so can be purchased privately with the support of a gastro consultant for example.

I spoke to the Nice team doing the report on it (Nice have to 'approve' or recommend that a drug be available on the NHS) and they said they should be done by around Easter 2015.

In the meantime however, if you have tried Infliximab/Aza etc and are out of options it is possible to obtain via the NHS as long as your primary care/nhs trust or whatever is willing to pay for it. IIRC I remember the cost being ~£2k a treatment (my Infliximab is £4k) so already a decent case to the PCT.

If you are really out of options you could pursue it more vigorously but where there's a will there's a way.
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