advice anyone?

Don't be scared! UC is totally manageable with the right combo of lifestyle and meds. Make sure you talk to your doctor a lot and do a lot of *your own research* so you are educated on what's going on in your body.

UC is not glamorous or easy to bring up in everyday conversation (embarrassing at times!) but it doesn't have to rule your life.

1) Look at the resource section at the top of the forum, there are a lot of good sources of info there.

2) Can you tell us more about your diagnosis and medication history? Itll help us a lot in providing advice and explaining things

Welcome to our board.... *big giant UC friend hug*

I'm sorry you had to join our club this year.. UC is crappy! (hahaha!)
But it doesn't have to be scary with the right support! :)

As suggested, check out the resources page and look through our forum and the internet for as much information as you can handle (make sure it's form good sources!!)
A great place to start is the crohns and colitis foundation. And asking us any questions you may have, of course! :)

I had a very aggressive UC, from first colonoscopy to surgery was almost exactly a year... surgery is always an option... but don't focus on it or let it freak you out! there are lots of meds to try :)

And yes, more information on what you've been on drug wise and what your symptoms are would be great. Biologics are aggressive, but can be amazing!

Curious, where abouts are you located?

*good luck* and welcome!

krissy some advice for you.......loved one had this four years..nothing really worked until we looked at the eating or diet side of things.....progressive reduction of all rubbish foods began the change .... we looked at uc in a very different way...before uc the gut system functioned perfectly processing out millions of bugs germs parasites and nasties that come down it everyday but then suddenly uc ....we opined that first comes the unstable and unhealthy gut then comes the uc...we guessed that because of the large chemical intake in modern foods and generally what is done to our food in production the gut system begins to falter...aLL THE FINE BALANCAES THAT KEEP A GOOD GUT SYSTEM OPERATING bein tocollapase and instead of processing out the bugs the germs can now breed...thinking this way we were determined to reverse the process and so looked at everything loved one ate...slowly removed all garbage foods from the food chain and the tresponse was immediate...the meds simply did not really work for us but the food way did...got on internet and looked at stacks of uc sites and what people ate ...slowly found all foods thatb worked for loved one...looked for other things that worked for uc people and tried supplements...eventually got ones that worked...so try this if you will....alovera in pill form probiotic vsl 3 or supershield...no glutten foods no wheaton foods no heavy sugaratyed foods no junk foods no take aways...try to cook all foods yourself prepare all foods yourself..plenty of vitamin d from sun plenty of good heathy exercise and more sun

linc497 said...
krissy some advice for you.......loved one had this four years..nothing really worked until we looked at the eating or diet side of things.....progressive reduction of all rubbish foods began the change .... we looked at uc in a very different way...before uc the gut system functioned perfectly processing out millions of bugs germs parasites and nasties that come down it everyday but then suddenly uc ....we opined that first comes the unstable and unhealthy gut then comes the uc...we guessed that because of the large chemical intake in modern foods and generally what is done to our food in production the gut system begins to falter...aLL THE FINE BALANCAES THAT KEEP A GOOD GUT SYSTEM OPERATING bein tocollapase and instead of processing out the bugs the germs can now breed...thinking this way we were determined to reverse the process and so looked at everything loved one ate...slowly removed all garbage foods from the food chain and the tresponse was immediate...the meds simply did not really work for us but the food way did...got on internet and looked at stacks of uc sites and what people ate ...slowly found all foods thatb worked for loved one...looked for other things that worked for uc people and tried supplements...eventually got ones that worked...so try this if you will....alovera in pill form probiotic vsl 3 or supershield...no glutten foods no wheaton foods no heavy sugaratyed foods no junk foods no take aways...try to cook all foods yourself prepare all foods yourself..plenty of vitamin d from sun plenty of good heathy exercise and more sun

this is so unhelpful

it almost denies the genetic predisposition, and hardly acknowledges that different triggers are responsible for different folks.

Yes the gut microbes are important. Very important. But terms like "rubbish foods" are so imprecise as to be laughable. There are serious discussion to be had about nutritional components that affect populations of gut microbes, as well as those substances that might promote mucosal healing, or moderate inflammation/symptoms.

"stop eating rubbish foods" is almost useless, although in general highly processed foods aren't such a good diet.

I live in PA currently but I am from Maryland. I have been on Predisone Imuran and vancomicn. Thank you guys a lot. My doctor has not said anything about changing the things I eat I'll look into it. I am willing to try anything that will help. And yes so I have been told I do have a really aggressive case. Again thank you guys so much!