Patient healThyself Jorden Rubin

Hi there,

I know that Diet comes up a lot and it just so happens that today when I have logged in there are a few topics on it again so I apologise in advance if this sound boring but as I am new to finding out about my UC I am still searching a looking and listening to all advice and all avenues to try and get this fully in remission.


I have come across a diet called Patienthealthyself by Jordon Rubin. Can anyone please tell me if they or anyone they know has tried this diet and had any success with it.

I really would appreciate any advice on this.

Thanks in advance

Bez

Guardian...is that pic when he was on the normal diet on the right, and then when he went on SCD with no carbs on the left?

It's a giant add for his supplement company. Amazed people still buy into this type of marketing.

My over the top crazy religious step mom gave me the maker's diet book, it's pretty much sat of the shelf since.

I think it falls into the category of get-rich of others scheme to be straight up.

EDIT: I'll throw in there you might as well read it though.... what the heck. Specially if it's free. I'm sure someone will tell you on here if they tried any of the products with success. I'd ask around and go off what the people on here say than what the actual book says or claims about the (his) products.

Just remember he's trying to sell something....

Oh and I read SCD before my crazy step mom gave me the book, so I never bothered to read it other than scan through and noticed as Gaurdian says it's basically SCD/Paleo with some added food thrown in. The food suggested however just kills me. Sourdough being the worst reaction of all. Some on here love sour dough though. I'm terribly envious of their ability to eat it! haha

Post Edited (Canada Mark) : 7/28/2014 9:14:06 PM (GMT-6)

How do we know he was really sick, other than taking his word? I hate these kinds of books. If you are a good writer or salesman the book is bound to sound convincing. Who would write a book that doesn't sound good or is not convincing? If you are a good enough writer you can convince everyone that eating gluten is the cure for all diseases. I've never seen one of these books that isn't convincing. Anyone can cherry pick facts to prove their case. Liberals and conservatives do it all the time. The people who buy these books are already preconditioned to believe them so, in effect, they got what they wanted and it all makes perfect sense to them.

Who knows, Crohn's may be an immune reaction to leaky gut,where foreign intact proteins
pass through the gut wall,and excite the immune system that is one of the theories.
Mark remember your reaction to medium rare vs medium or well done meat.
Old Mike

Post Edited (Old Mike) : 7/29/2014 9:58:03 AM (GMT-6)

it's a resource to be used like anything else - treat it as gospel, and you might be disappointed - just because someone makes a living from selling information, doesn't necessarily make him a crook or his information wrong - it's no different than loovillegar telling you what works for him - believe what you want, your choice -

True OM

Thats why I wanted to try the DAOsin, for the food issues. On a side note that is exactly the route/description suggested by MAP infection.

I guess no matter how you look at it the only people that have managed to either recover or get into some state of near remission from the disease are those that have made significant diet and supplement changes to address food intolerances and inflammation.

Myself with WOO/Imuran. Gary with Grape Seed Extract/DAOsin. Path with antifungals/diet changes. Briggs with diet/supplement and anti tnf-a. Proto with WOO/diet. The list goes on....

I think for me I didn't read it because of the religious aspect more than anything. When I say my step-mom is religious that is an understatement. This caused serious issues between me an anything religious.

Canada Mark said...
True OM

Thats why I wanted to try the DAOsin, for the food issues. On a side note that is exactly the route/description suggested by MAP infection.

I guess no matter how you look at it the only people that have managed to either recover or get into some state of near remission from the disease are those that have made significant diet and supplement changes to address food intolerances and inflammation.

Myself with WOO/Imuran. Gary with Grape Seed Extract/DAOsin. Path with antifungals/diet changes. Briggs with diet/supplement and anti tnf-a. Proto with WOO/diet. The list goes on....

I think for me I didn't read it because of the religious aspect more than anything. When I say my step-mom is religious that is an understatement. This caused serious issues between me an anything religious.

Briggs, Hurst and all the ones who did FMT with success (see Sharron's thread) have no more restrictions, though Curl insists on taking mesalamines for that safety net (even though I believe he does not have to).

Hurst's story probably rivals Rubin's, though his case wasn't exactly terminal. He was about to have surgery, but instead took a hell of a leap with FMT (as well as with faith) to get out of his predicament. He eats like he used to prior to UC because there is no more UC pathology. Let me repeat that - It's like it never even existed for him (after having 11 years of pancolitis).

These stories inspired me to go on my own journey as well and then subsequently realize the nature of my particular pathology (and I will not comment on anyone elses because that is their own journey to take).

I have zero dietary restrictions and can eat whatever I want with minimal issue. The very interesting thing is that I can eat as much sugar, chocolates, gluten, roughage, fiber I want without gastrointestinal distress. These are foods that would even give the average person without UC pathology trouble. I am not bragging, but that component was very psychological for me. I had to get over my own self-defeat tactics to tolerate those foods.

However, because certain food groups have proven to be inflammatory, I WILL NOT increase the risk of other diseases by eating hydrogenated oils, processed foods, etc, etc, but that is just my personal choice. My family has a history of heart disease and industrial oils (canola, cottonseed, etc) are the number oil culprit, point blank.

Oh and I don't want to speak for PathogenKiller but she eats everything nowadays, if we are going by her last hundred posts. She has you on ignore by the way.

Post Edited (Guardian7) : 7/29/2014 11:46:07 AM (GMT-6)

CM -

I am saying that people don't need to stick to their dietary regimens or supplements to stay in remission, or "cured" in the case of Michael Hurst (or the other FMT recipients). I did ask him if he's on any regimen and he's exactly as he was pre-UC (same foods, lifestyle, etc, etc), though he said he would have used mesalamines during the FMTs to help speed up the healing process. I would say this applies to PK because she found out the root cause of her situation and addressed it.

I think medicines, supplements, dietary changes are just tools to get to where you need to go, but I understand that people will flare if they deviate. I wouldn't risk it either, which is why I still eat healthy regardless of my tolerance to foods. That doesn't mean I won't indulge in the occasional pizza or hot dog however - life is too short to miss out on some things. And chocolate -- I'll never be able to give that up.

Best.

Hi - do you have a link to your own story of healing & recovery on here? You seem to be doing really well. Always up for new ideas : )

Guardian7 said...
It's one of the two books in my closet (I keep the rest in storage or have ebooks of everything else).

The before and after pic of him here inspired me to do everything possible to heal myself.

The book is just about the Makers diet. You will find a good summary of it if you google it. It's more or less the paleo diet with raw dairy like kefir, though they recommend starting with goat dairy. It also does not exclude fermented grains however, but I find that gluten does not agree with me mentally since it gives me brain fog.

I will say that it nailed one aspect that isn't mentioned in other dietary books: forgiveness. Maximal healing only takes place if one lets go of the mental burdens or stored hate towards anyone. This applies to me in particular since I just could not forgive my doctor for nearly crippling me (and destroying my future dreams in the process). I realize now that she only made me stronger and it was meant to happen.

He's a religious person so you will find some stuff about God or whatever, but he speaks from his heart.

Best.

High nitrate veggies,but just starting so have really not gone at it yet.
Have to get some radishes,even higher than beets, and cheaper.
The key to this I think is in the oral bacteria,do we have enough nitrate reducers or are most dead.
I do have nitrite in my mouth,tested with urine test strip,so some of the nitrate reducers are still alive.

Among other things I am trying to shut down my iNOS pathway.
Old Mike

Post Edited (Old Mike) : 7/30/2014 10:42:34 AM (GMT-6)

"I guess no matter how you look at it the only people that have managed to either recover or get into some state of near remission from the disease are those that have made significant diet and supplement changes to address food intolerances and inflammation.

Myself with WOO/Imuran. Gary with Grape Seed Extract/DAOsin. Path with antifungals/diet changes. Briggs with diet/supplement and anti tnf-a. Proto with WOO/diet. The list goes on.... "

You actually believe that? It seems to me that NOT getting into remission(refractory disease) and significant diet and supplement changes go hand in hand around here. The people that do really well seem to have used used conventional medicine and disappear, sometimes forever.

No Mark you just changed your claim from everyone to just those on a alternative path.


I don't believe food intolerance is considered is a common denominator to the disease but obviously inflammation is. Food intolerance is so common and they very likely will effect UC if active but I don't know where you are coming up with it being a common denominator. Not sure where your certainty about diet and supplements affecting inflammation and food intolerance comes from either. The evidence is hardly rock solid. Experimenting on yourself? You must know that with a disease so tuned to the mind, that comes and goes no matter what and that has something like a 30% placebo effect that is pointless.

I have no intolerence to any food unless I have a raging flare. Even then I am not sure.