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Supplement Regimen-First Time

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Ulcerative Colitis
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Posted 8/11/2014 10:24 PM (GMT 0)
So I just recently got out of the "denial/only drugs my Dr. work will help with this" of my UC journey. I've been pouring through pages and pages of research and anecdotal evidence the last week and I want to start trying some supplements.

Next Remi infusion is scheduled for 8/22, next GI visit is 8/29. Based on what I've read and my personal symptoms I believe I have a histamine intolerance as a result of my UC. So I thought I would try a yeast free probiotic, DAOsin, and L-Glutamine. I am currently only taking a multi-vitamin supplementwise.

My question is should I wait till after my GI visit to try these supplements or should I go ahead and try them and then talk with my GI when I see him? Also, any other supplement suggestions are welcome.

Thanks,
Cam
Posted 8/11/2014 11:24 PM (GMT 0)
Hi Cam -

When it comes to doctors, I would highly suggest that you be your own advocate and make decisions on the best possible information available. It is your body and you do have the right to refuse medications. I found examine.com to help with this and to suit my personal supplementation needs.

As for my supplement regimen, I absolutely cannot go without vitamin D, magnesium (not oxide), COD Liver Oil, and vitamin K2. I do take daily iodine, weekly zinc and b-complex, but I am not sure if those are help as much.

Best.
Posted 8/11/2014 11:51 PM (GMT 0)
I also take a daily antihistamine, lactobacillus rhamnosus, and vitamins B 6, 9, 12 for my histamine intolerance and it has improved me greatly since doing so. I would go ahead and start ASAP but don't expect your doctor to be receptive to any of it. I think Guardian misinterpretted your post. Just to clarify, you're not stopping Remi are you?
Posted 8/12/2014 12:08 AM (GMT 0)
No, I am not stopping Remi. But so far Remi hasn't help much
Posted 8/12/2014 12:40 AM (GMT 0)
Hi Gary -

I wasn't suggesting remicade discontinuation... only that he has to weigh the benefits vs the risks that the "denial/only drugs my Dr." prescribes to him.

I will say that 22 is a heck of an age to be taking remicade. He is much braver than I was at that age.

Best.
Posted 8/12/2014 12:59 AM (GMT 0)
I think it's ok to start that stuff now, but I'd add stuff in one at a time and give each a couple of weeks, so you can gauge the effectiveness of them separately. No need to take stuff that doesn't work.

How many remi infusions have you had?
Posted 8/12/2014 3:08 AM (GMT 0)
Guardian, yeah I've been told that, I haven't had any negative side effects and I kind of enjoy going. it's about the only time I get 3 hours to myself just to chill. My mother made a deal out of it, even flew in to sit with me.

FG, I have had 4 Remi infusions so far, the first 3 seemed to help some, but since I'm doing the full six week spans between infusions now it has gotten significantly worse.

Would the Probiotic be a good supplement to start with?
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