Creating a website/podcast for IBD heroes

The interviews have begun, having them transcribed right now. Amazing stories!

Here's the site - check it out if you're curious

http....

Post Edited By Moderator (iPoop) : 8/17/2014 5:05:15 PM (GMT-6)

appreciate the reply, Tunnelvisionary

I'm a born skeptic as well, and welcome the skepticism

Sure, some say its an incurable disease. So those that have found a "cure", are performing miracles, and these cases must be recorded, compiled, and shared. I don't mean 1 off cases, I've found many.

Website is completely philanthropic, no monetary angle

I'm interviewing those that have found relief. clinical remission, reversal of disease, mucosal healing, cured. It's all linguistics, all that I've researched no longer have symptoms, are off medicine, and have been so for quite a while. You'll hear it from themselves during the interviews.

@garylouisville - all you have is my word. that I'm not collecting email addresses for malicious intent.. Don't feel safe? That's okay, Just come back in a few weeks and you'll see the live website. What does true IBD mean to you? Both I've interviewed so far were diagnosed by more than one doctor, with Crohns - an incurable disease - or is it? I'm not selling products, it's an educational not4profit website.

beachlife: I'm just saying that your results are going to be one sided, biased and prejudiced. Your original post gives the impression that anyone who has gone into remission for years (doesn't say anything about meds) is welcome to take part and yet your subsequent posts refer to stories of people who have been off meds for years. So, you are not including anyone who has been in remission for years while taking meds (even the 5ASA's). I take this to mean you are only reporting inspiring stories of "heros" for those who have achieved remission through alternative means and your information will offer no proof that they were actually ever diagnosed with IBD at all and no proof that their stories are even accurate and truthful, other than their word. I'm still not understanding why we have to enter our email addresses just to view any information you have.

I know you post on here from time to time talking about alternative treatment options and yet every alternative treatment option you have personally tried or asked about has never worked on you. What is your current story? I must confess I find it a little weird that you suggest or recommend alternative therapy solutions and inspiring stories to others when you haven't even found one that works on yourself yet. I know you do Yoga and tried Chiropractors and didn't achieve remissions with those yourself. I believe it is a little hypocritical to report the stories of "heroes" who have gone into remission with Yoga and Chiropractors, etc., when you have tried those and they didn't even work for you while at the same time not reporting the inspiring stories of those who have gone into remission while taking very safe meds like the 5 ASA's. I personally think you should preface your work by admitting that you are only looking at this from the alternative standpoint so that you don't mislead people into thinking that the only way to achieve remission is by following the hero's stories that have gone the alternative route. There are probably one hundred times the number of patients who have gone into remission using the safe 5 ASA meds than there are those who have used any particular atlernative method to achieve remission.

What's heroic about not having any symptoms? The hard part of IBD is having the symptoms.

I'm concerned about the collection/harvesting of our members emails, others have been banned for this practice... at minimum you might need the hw site owner's permission for this... If you have a site to share do it without requiring use of an email address to see the content. Beachlife consider yourself warned.