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Ulcerative Colitis
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Posted 8/30/2014 1:29 AM (GMT 0)
Thought I would just start my own thread and stop posting in someone else's. Day one after patch. Had lots of weird dreams last night. Able to wake up and go back to sleep and pick right up where I left off, lol. Nothing horrid just remembered dreams again. Haven't done that in a long time.

Several BM's today. Pretty large decrease compared to what's been going on. May just be coincidence. i did spend half day working my tail off outside and sometimes that causes thinks to slow up too. As everything with UC will see how it goes over the weekend. No other problems with the patch though. Put it on my back above right scapula. No irritation. Swapped sides today.

Spent a week on the lozenges just to ease into the higher mg.
Posted 8/30/2014 1:50 AM (GMT 0)
Good luck Dr A. Works great for some of us. Keep us posted!
B
Posted 8/30/2014 1:36 PM (GMT 0)
awesome doc -

boy, I get seriously deathly sick from tobacco smoke - so it's hard to imagine me ever doing well with nicoteen - just the thought of it makes me want to puke -

BUT, it is certain at the top of my current list of next treatments if needed - I sure hope it doesn't come to that anytime soon -

thanks for sharing -
Posted 8/30/2014 1:54 PM (GMT 0)
Good luck Dr A. I am interested in your progress.
Posted 8/30/2014 2:57 PM (GMT 0)
What is your planned protocol?
Posted 9/4/2014 5:42 PM (GMT 0)
So yeah, last night we bombed Japan and I was like 40 mi. away and watched it happen. It was like a Pearl Harbor type thing although haven't seen that movie in forever. Night before I was singing with Garth Brooks at a concert..... and it goes on and on, lol. The dreams are actually interesting so I haven't took it off during the night. No bad dreams yet.

Planned protocol is to take what I have and see if it helps. Have month of patches and couple weeks lozenges left. That gives me a 6 week trial of the stuff. The generic lozenges sure are different from the nicorette ones. I just got into the nicorette ones and they are 100% better and dissolve quicker.
Posted 9/8/2014 8:32 PM (GMT 0)
How's it going? My GI called me today (after infusion nurse reported I am not doing well) and suggested I try an e cig or patches. I think I'm going to try the patch first. Just curious to see you were doing.

Post Edited (pink1) : 9/8/2014 3:38:18 PM (GMT-6)

Posted 9/8/2014 9:07 PM (GMT 0)
I to started on the e cig yesterday. Not much change yet but we will see. I quit smoking 6 years ago so it's a little weird for me but hey I'm sure it's no worse than 6mp or Pred... Hope it helps for you!!
Posted 9/9/2014 2:23 AM (GMT 0)
Hi Dr.A, I am in a flare currently and seem to have one 2 to 3 times a year. The past few times canasa has knocked it out, but this time it isn't looking so good. The last thing I want is to take Prednisone AGAIN.I have been reading all the posts about nicotine therapy and being that I was smoker in my teens and twenties I am hopeful this may work for me. I am planning to start slow so today I had a 2mg Nicorette gum. This made me very nauseous. Any suggestions on how many mg per day would be greatly appreciated.
Posted 9/9/2014 2:36 AM (GMT 0)
i love all the people trying nicotine!! i hope it makes a difference for you guys.

goincoastal, it will make you nauseous at first and you just have to deal with it. i know it sucks though!! i felt the symptoms for about 1-2 weeks but then my body got used to it. i started with 4 mg per day of the lozenge. with the patch, i get zero side effects though. i think it's just the oral methods that you feel nauseous/dizzy.
Posted 9/9/2014 2:51 AM (GMT 0)
bananagirl, thanks so much! Will try for 2mg twice tomorrow and see how it goes, anything to stay off

prednisone! Are you having any luck?
Posted 9/9/2014 3:15 AM (GMT 0)
Yeah, i agree! I hate pred,too!

Im not flaring right now.
Posted 9/9/2014 3:18 AM (GMT 0)
nicorette gum was easy. The off brand lozenges weren't too good. Too long to dissolve. I have like 10 packs of the nicorette mint lozenges and those are pretty tasty. For the love of God though they give you horrible gas. I mean, I thought... yeah I can handle a little gas, but this is spouse sending you to the other side of the house gas, lol.

Second day I had some naseau. After that it was pretty easy. Spent week or so doing that and went right to the 21mg patch which I highly suggest you pick up off ebay when you get there. Seem to tolerate the nicotine fairly well even though I was never a smoker. Patches so much easier though. I just shaved a couple spots on my thighs and rotate. Still use the lozenges along with them but not many. Giving it a month. Had slight improvement with bleeding. Small decrease in mucous. I think as bad as my colon is anything is going to take some time. Colon is pretty scarred from top to bottom.
Posted 9/9/2014 3:55 AM (GMT 0)
Wow that some powerful gas. Hate it for your wife! Thanks for the info hope the nicotine works for you. Will watch for updates.
Posted 9/9/2014 10:19 AM (GMT 0)
when I wear it to sleep I always dream good dreams like of my deceased mother and father and I thought this is great I get to see my parents again each night. I did stop using it at night cause I thought maybe that was why I had a hard time falling asleep, but I don't think it was the patch just me.
Posted 9/9/2014 10:21 AM (GMT 0)

Hi and thanks for your thread.

I find this extremely interesting as i have also been experimenting with nicotine for the past 6 weeks. I have been smoking an e-cig (vapour pipe) and i've significantly improved.

Before smoking the pipe i had 3-4BMs a day, mostly loose and bloody, after 1 week on the pipe i saw a huge difference....normally formed BMs and no blood and only once a day.

As well as this i have been eating very well and sticking with my meds (balsalazide 3 x daily). I have doubts that the nicotine alone has helped that much as if i hadnt been sticking with meds and foods i am not sure what would have happened, but it's definately added another "weapon" in fighting the UC. However, i think the UC was making me rather anxious in certain situations and i find the pipe knocks the anxiety on the head (i am an ex-smoker for 6 years, quit 4 years back).

It'd be great to understand how you get on with this and i'm happy to discuss my progress if you want to share.

I am currently "vaping" 12MG strength but i am planning to reduce this to 6MG to see if the weaker strength still has the same effect.

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